Skip to content
Ad

Vasculitis

Also known as Buerger's Disease, Churg-Strauss Syndrome, Hypersensitivity Vasculitis

All discussions in this group

Next
  • vascular desease

    Go ,od Morning, I have vascular pain after a short walk in my calf and ankle, Does any one know of any pai killers that work? Thank you Brian32549

    Last reply
  • Holiday insurance

    My dad has just been diagnosed with vasculitus and we are taking a family trip to Lapland (booked pre diagnosis) has any one had any experience with holiday insurance or can recommend any one thank you in advance 

    Last reply
  • positive P anca

    Hi I have been referred to a rheumologist with joint pains, flare ups of all over pain, low grade fever and fatigue.  She suspects rheumatoid arthritis or possibly lupus and I am awaiting results of further tests. My initiatial blood tests are positive for ANA, inflamatory markers are raised, however...

    Last reply
  • PAN and GPA

    How strange....... When I was 21 yrs old I was diagnosed with PAN (kidneys affected) full remission after 5 years the when I was 51yrs old I was diagnosed with GPA Lungs affected with coin lesions). What are the odds of this happening and has anyone else had this happen to them or am I a good case...

    Last reply
  • Hypersensitivity/Leucocytoclastic/Urticarial Vasculitis

    Hi, I have had Urticarial, hypersensitivity vasculitis for 4 years now in November, trying to get a diagnosis has been a nightmare. I am 45 years old. For the first 2 years I was diagnosed with idiopathic urticaria and tried on loads of medications. None worked so they sent me for a biopsy this confirmed...

    Last reply
  • Looking for some tips to help my dad please?

    Hi all, my dad has Polyarteritis Nodosa and Mononeurtitis Multiplex.  He was diagnosed in November 2015 at the same time as being diagnosed with Hep B, following months of generally feeling unwell and then loss of feeling in his feet, followed by his hands.  One specialist has said that...

    Last reply
  • GPA - Holby City (Oct 2017)

    Holby City (BBC1) SE 19 Ep 56, 31st Oct 2017 - Know yourself know your enemy.....has a patient with GPA (Wengers) as a potential case study for a young Dr.....ANCA test mentioned, came back positive.....(Wegener's/GPA)

    Last reply
  • I have recently been diagnosed with Urticarial Vasculitis

    I was recently diagnosed with Urticarial Vasculitis. I am seeing a Dermatologist and Allergist to find out what caused it.  I am wondering if any of the  medications I am taking might have caused it; One that I have been taking for many years is a thiazides (Hyzaar) . Does anybody know of...

    Last reply
  • Is this hypersensitivity vasculitis??

    I have been getting a rash on my lower extremities for the past two months now on and off. The only correlation I have made between my lifestyle and the rash is that it emerges a few hours after the ingestion of alcohol.  The rash is not itchy but instead it is achy and sore like a bruise. It is...

    Last reply
  • Vasculitis?

    This may be rather lengthy, but anyone who actually has vasculitis, I would love to hear from you. Last fall I started experiencing a burning/aching type pain in my knees. It has since spread to my entire legs and my left arm. My sed rate has been elevated, although only a little. It was 36 last time...

    Last reply
  • Self diagnosed Vasculitis .

    Hi , I don't know if what kind of vasculitis i have only by pictures off the Net, But only by going on patient uk for another illness i have and talking to some people on that forum i have ended up here.   I suffer from high blood pressure ,Crohns. I just wanted to ask if anyone who as...

    Last reply
  • Still Pain Free

    Entering into my 2nd year of being pain and drug free is a wonderful thing. Check out my amazing story at rejve50plus.com.au

    Posted
  • Swapping from Aza to Cellcept

    Hi, I have Churg-Strauss syndrome and after a year on steroids I relapsed (7.5mg at that point) and after hospitalisation was put on Azathioprine. Not good. I managed 3 weeks but it was at the point where even when I dropped to 50mg of AZA I was being sick for hours on end evey day. So my consultant...

    Last reply
  • MPA or something else?

    I was diagnosed with ANCA Positive MPA three years ago. I, like most of you I'm sure, have undergone azathioprine (which didn't improve my help), and Cellcept (which made me more ill), and Rituximab (which initially helped for the first few months and four rounds), and obviously prednisone, but...

    Last reply
  • Wegeners

    Just going from strength beating this disease: No Drugs, No Pain. ​Life is good - check out my amazing story. www.rejuve50plus.com.au

    Posted
  • Buerger's Disease, my brother has it, in the mo...

    This is a terrible disease, my brother has it, in the most terrible form. he is in constant pain, has had many amputations, and the depression is so severe. 8 YEARS he has lived with this and 27 operations. He is losing the will to live and has lost his independance. I am so lonely as we have lost the...

    Last reply
  • Where do I go from here? Any advice is appreciated

    Please forgive me for not being well informed and if I ask stupid questions. I have only just recently heard about it this disease. I have been dealing with multiple symptoms over the course of the last several years. I have been to several doctors trying to figure out what is causing all this. I have...

    Last reply
  • Cutaneous Polyarteritis Nodosa

    My wife has been diagnosed with CPAN and we would like to find a doctor for full treatment. We live in Finland and feel there isn't enough knowledge about this here. Could anyone point us to an expert? Edinburgh or London are best for us but Oxford or Cambridge would work well too. Anywhere really.

    Last reply
  • Living with Wagners

    Hi We could all wake up some mornings and wonder why? Why me? Why this disease? Why aren't the drugs working? There really are no simple answers to any of these questions. We just have to trust the wonderful professionals who look after us. I'm just waiting to find out my next steps as Azathioprine...

    Last reply
  • LMI LMI

    Any experience with vasculitis specialist in US?

    I've recently been diagnosed with urticarial vasculitis.  I live in Honolulu, Hawaii, where the population is small enough that less common diseases (like vasculitis) rarely occur within the State and therefore, local doctors may not be very familiar with such diseases.  I am contemplating...

    Last reply
  • Auto Immune Disease - Gluten - Eosonophill

    Hi All, I had vasculities haemmarge in my right eye and hence I was treated for steroids. My inflmaation in right eye is fine now. But eosonopil count is high and Im on Montek LC for 3 months. Recently I heard and read about Gluten which is major root cause for Auto Immune disease. I dont know where...

    Last reply
  • The bruises and hematomas on my arms and legs have gotten worse

    I was a sun lover for many many years. I understand the damage it has caused . However, the amount and the extent of the bleeding under the skin is frightening . My shin can barely be touched by something and you can see the blood under the skin start moving down my legs. My hematoma I have right now...

    Last reply
  • I have discovered a thin hard vein in the back of my neck

    I have just noticed this evening that on the back of my neck, a couple of inches to the right of my spine, I seem to have a long, thin, distended hard vein leading from my neck vertically up to the back of my skull.  I have never noticed it before and can't see it because of where it is, but...

    Last reply
  • I have discovered a thin hard vein in the back of my neck

    I have just noticed this evening that on the back of my neck, a couple of inches to the right of my spine, I seem to have a long, thin, distended hard vein leading from my neck vertically up to the back of my skull.  I have never noticed it before and can't see it because of where it is, but...

    Posted
  • Lycocytoclastic vasculitis and joint pain

    Hi, I have been diagnosed with the above and have been in hospital for a week, in Germany. They have been really good and I have felt well looked after. Still waiting for some test results (eg the biopsy). I am back at home in the UK now and I still suffer from joint pains pretty much everywhere. Feel...

    Last reply
  • Urticarial Vasculitis Help

    Beginning in May of 2016 I began noticing a faint red rash on my legs. It was almost like razor burn but didnt hurt. It lasted a few weeks and went away, but then it came back and far worse, spreading to my feet and all the way up my thighs. I saw my doctor in June and he recommended blood work and referred...

    Last reply
  • Vasculitis effecting other organs

    I am 24 years old from San Antonio, Texas. I am graduating next month from bachelor nursing program when I noticed red spots/petechiae on my lower extremities. I had these spots for over 6 months but they were really minor so I thought it was probably allergic reaction to something. But recently, it...

    Last reply
  • Diagnosed

    Hi I'm new to the group. I've been tested positive twice now for vasculitus however I haven't been told what type. Just that I don't need anything doing and that was that. Do I go back and ask for more information? Unsure??

    Last reply
  • does anyone else take rayos?

    greetings, ​I have been fighting with idiopathic urticarial vasculitis for 3 years. It started on my left shin and has now spread to my abdoman, breasts, arms and neck. My dr has me on Rayos, it works sometimes but then a flare up will occur. Has anyone else been put on this med?

    Last reply
  • Dr won't test me for vaaculitis. What to do now?

    Hello my name is Matthew. I began having weakness in my limbs 4 months ago. I then experienced an inflamed esophagus, stomach ulcers, and an inflamed colon which was diagnosed by an endoscopy and colonoscopy. I have last 25 pounds since this all started. I am in pain and weak nearly all day everyday....

    Last reply
Next


We want the forums to be a useful resource for our users but it is important to remember that the forums are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the forums is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.