ive been diagnosed with vascultis 2yrs ago

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Hi everyone

I'm new this group,was flicking through peoples posting so I thought Il give it whirl, 2 yrs ago got diagnosed with vascultis,since then been on right roller coaster off ride in out off Hospital,ive been various dosages off steroids from 60 to 15 ml 60000mg off mycophenalate a day daspone that nearly killed me well the list goes on,but to get to the point I'm at a point were there ready to put me through cycophosphamide iv infusion so has anyone had this course off treatment if so could u give us some honest answers to my question thanks for reading


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Thanks for your help!

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