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As the title confirms I was diagnosed with Vasculitis earlier this year.
I first went to see my GP because of a rash on my legs - I also experienced some blood and crusting in my nose, although very little. The GP diagnosed an allergic reaction and I was prescribed anti-biotics. As the medication didn't work and the rash got worse I went back to the GP who referred me to a Dermatologist. The Dermatologist did several tests and a skin biopsy and confirmed Leukocytoclastic Vasculitis. I was prescribed Prednisolone which I then tapered off over a couple of months.
Since finishing the steroids and being discharged I still do not feel 100% - I am consistently exhausted, experience shooting pains in my joints (which is no longer just limited to the lower half of my body!) I find it very difficult to carry out simple day to day activities due to the fatigue. I am breathless from walking any distance and suffer a fair bit with what I think is my asthma, especially at night.
I just wanted to check other peoples experiences with Leukocytoclastic Vasculitis as I not completely convinced I am out of the woods just yet!
I have been given very little information from anyone I have seen about Vasculitis and how long it lasts. I am unsure if this is normal following steroids (even though I have been off them for quite a while now?
Any of your own experiences and advice would be greatly appreciated as I feel a little lost!
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