31 months none stop tingling

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hi all i basically woke up on 11th dec 2016 with tingling in both my feet within hours it had spread to my knees then into both hands it has stayed there none stop without a second break in 31 months ,also everything i touch increases the tingling in my right foot i feel the same sensation so if i wave my hand in the air i can feel it across my right foot if i squeeze my left upper leg it will be felt in the right foot with every single thing i do theres two signals all the time ,the tingling is horrific i have pain and bulging veins in my hands they look awful ,my calves hurt all the time like they will bust ,ive seen several neuros over 2 years had various bloods 4 mris of brain and spine ,4 nerve studies 2 emgs all show nothing ,1 neuro said hed never seen anyone like me in his 30 year career its the acuteness ,ive been told its likely small fibre neuropathy but havent had biopsy as because its idiopathic neuro says no point its pain relief only ,every day is a complete battle there are no gd days no gd 5 mins ,i cannot get away from this for a second ,sitting or laying down is horrendous ,i have full strength still can walk as before can feel hot and cold have brisk reflex which one neuro said is less consistent with nerve damage ,they all say different things as dont know what to do ,i dont know where to go with this its a living nightmare ,as i type i feel the dots in my right foot ,my nervous system has gone haywire,any advice appreciated or if anyone has heard of anyone similar on these boards its no life living like this everyday i just wish i cud find someone who understands a condition like this i can pay private but have no idea which neuro would be best with this i dont want to waste my time to be told they havent seen anyone like me before and im none the wiser

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  • Posted

    Thats a shame hes very good. Hellbent on getting tests to prove it. He has tried every test available on me but still nothing shows. Its just pain meds.

    • Posted

      This was about two years ago, I'll check his clinic times again.

      I'm not in pain. I have numbness in my lower left leg and foot caused by Fluoroquinolone toxicity syndrome plus some other problems

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