32 yo nobody is helping me

Posted , 6 users are following.

I want to say this all started on Halloween but when I really think about it started roughly 5-6 years ago. But when I was 20 I began to have bowel problems went through a bunch of tests and diagnosed with IBS. Went on a high fiber diet plus psyllium for the next 3-5 years when I began to notice that my breakfast was coming out of me after lunch. Thought to myself that can't be good so I stopped the psyllium and just ate normal. Everything was fine for awhile I thought I was back to normal. Then I began getting these gas pains in my luq and ruq wrote them off as IBS. I started noticing incomplete bowel movements and pencil thin stools again I thought it was IBS. so I started taking psyllium again worked like a charm. Then roughly 2 years ago it stopped working went to dr who also has IBS he told me to take 3 heaping tablespoons of whole psyllium before bed plus a probiotic. This worked for a couple years with occasional constipation problems l. If I'd stopped the pencil thin stools would come back. Then this past summer the gas pains in the luq and ruq came back and became more frequent. This lead me to repeat er visits repeat ct scans egd colonoscopy and blood tests everything "normal". I started to feel like I was getting better when I then again stopped the psyllium but this time bowels kept moving this was before the colonoscopy. I went ahead with the scope which this young dr did and told me everything was normal. After the scope is when things got real bad. Constant burning pain followed by spasms inability to pass gas bloating which leads to more pain weight loss multiple er visits ct scans everything "normal". I finally was able to see the supervising gi at her practice he told me did they ever tell you you have Diverticulosis. I said no. now it's been roughly 2-3 months since that visit and I was given antibiotics but I couldn't tolerate the side effects. They didn't see it necessary to aggressively treat me for diverticulitis. So currently I slowly increase fiber and add psyllium but then the burning and spasms get worse. This leads me to nothing then I get pencil thin stools and backed up with air. Slowly add in fiber spasms and pain return. Also mucus increases each time this happens. What do I do? My WBC count is fine no fever. Am I repeatedly irritating a mild smoldering diverticulitis that drs say isn't there? I really am left with no options. A low fiber diet backs me up so bad. I tried miralax but everything is still pencil thin psyllium is the only thing that cleans me out but then I get the spasms and the burning pain that leads to inability to pass gas. Then back off and pencil thin stools. If I fast for most of the day then eat a small meal that triggers a huge gas movement and I feel a little better. This leads me to believe it's gas not stool that's causing pain. And the gas is trapped behind this diverticulosis that's either inflamed or infected from fiber. Help me somebody please????? I would be so grateful.

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  • Posted

    All that fiber could be too much! 
  • Posted

    Thanks for all the responses. I wanted to share this you all. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3724216/

    • Posted

      Thank you for sharing the article but as you know there is contradicting research  also so you don't know what is best. I guess we each have to figure out what works best for us. I have to follow higher fiber because of my history of polyps. Maybe for me moderation of fiber might work.

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