35 and diagnosed with a congenital heart defect of my right artery
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hi guys,
ok so my story for as long as i can remember ive suffered with major/panic attacks which causes
me to feel unwell with sickness upset stomach, pains low mood feelings of dizziness shortness of breath, then 4 years ago out of the blue i had intense chest pain all symptoms of heart attack went to hospital many times all test were normal GP just constantly said was irrational fear causing my heart rate to spike as adrenaline was being released in my system causing all sorts i wasnt happy so demanded to see a cardiologist, so after many test and many months in december 2017 was diagnosed with a congenital heart defect. my right Connery artery comes from the left side of my heart and runs in an abnormal way it runs between the aorta and the pulmonary artery, which according to my research carries a high risk of sudden cardiac arrest. my consultant wasnt to concerned but asked a heart surgeon and he saw me and said because i have angina like symptoms open heart surgery to correct this would be best to get rid of the risks still havent had surgery living every day in fear i get all sorts of weird heart feelings had an event recently that caused me to faint and pulse rate to low so GP took me off beta blockers now of work with the stress and its a new job so im now worried ill lose me job. just wondered if anyone has had this? or similar and what u did or do to cope with the fear and worry
0 likes, 3 replies
jen86183 charlotte82836
Posted
I am surprised Charlotte you were not offered a defibrillator, they put one in my husband ad they said he could have a cardiac arrest without it.
jen86183 charlotte82836
Posted
I am surprised Charlotte you were not offered a defibrillator, they put one in my husband ad they said he could have a cardiac arrest without it.
charlotte82836
Posted
well this is exactly why im so worried as surly someone that has an increased risk of SCA would normally have a ICD They say that there is an increased risk but as so little information or studies have been done on people of my age that have been found to have this condition it’s very hard to say one way or another what the adverse affects would be hence they suggested the open heart surgery to correct the abnormal artery but as you can imagine someone with severe panic and anxiety I didn’t want to and I cancelled three times but as I’ve had an episode of fainting the GP has now referred me back over to see the cardiologist was meant to be urgent and three weeks later still no appointment I just don’t know what to do for the best I’m living in fear I’m not living a normal life especially for someone my age it’s affecting my job and now I’m stressed about that as I could potentially lose it for the amount of time I’ve had off with Cardiac events I guess until I see the cardiologist to ask all of these questions over again and get complete clarity I just have to carry on as best I can but every day it’s like I’m waiting for death