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I just wanted to post an update on my progress for all of you who just started going through this. Recap for those of you who aren't familiar with my situation: 3+ months ago I fell ill with DEBILITATING fatigue (bed bound no energy to make myself food, even showering was a struggle for a few weeks), chills, lack of appetite, nausea, super sensitive to smells and tase for a few days, disorientation the first few days (would be confused after a nap and have strange vivid 3 second dreams which would wake me up every few minutes), joint and muscle pain, headaches, back pain, night sweats, and a mild sore throat. Monospot was negative, blood tests showed past EBV and CBV infection (though CBV test was taken about 3 months in so maybe the early antigens just didn't show at this point). The doctors concluded it was either mono and I was part of the very few % who don't show up (+) on blood tests, OR it was a mono-like virus, OR it was post viral syndrome / CFS. Yeah... no formal diagnosis but I always believed it was mono just because of my symptoms and the duration.
Anyways. I am now 3 months in. The fatigue has pretty much gone away - I am able to get out of the house for hours, clean, shop, visit, cook again. I haven't gone back to work yet, but I am planning on going back in a few weeks, starting part time and seeing how my body reacts to it and then building up my hours. The only symptoms that I really have left is muscle and joint pain and occasionally feeling flu like, mostly when I am tired and it's time for bed or if I am stressed.
If you are reading this, if you haven't received an official mono diagnosis.. make sure you get comprehensive blood work done and see your GP but be OK with not having a definitive answer. I know it's hard not having a definite diagnosis.. I was googling my symptoms for weeks and stressing myself... please relax as much as possible.
At the beginning, it was emotionally difficult being in bed for weeks and not feeling any better despite getting lots of rest. Be patient, read positive recovery stories, take supplements, and meditate. Come to this forum if you are stressing.. lots of great people to cheer you up and reassure you that you are not alone in this experience.
I wanted to share my recovery progress because there is a lot of scary stuff on the internet and not enough positive stories. But to be honest, the reason why you might not read as many "Hey, I recovered!" stories is because once people feel better they are NOT on the forums. They are living life again... as you will too. The only reason I am sharing my progress is because I don't want anyone else feeling as freaked out as I was. I want to reassure people things will slowly start to improve. I am not 100% yet but in a few months, I am optimistic that I will be feeling better than I am today.
My advice: REST. If you can, take some time off work. Ask your family and friends for help cooking, driving, etc. Get blood work done to rule out other possible conditions. Stay in touch with your doctor. Eat as much as you can so your body has strength. Read positive stories, meditate, and stop googling your symptoms. And believe in your own recovery, just remember you must be patient. Also, when you start to feel better... take it easy! I did not follow this advice that other people gave me and had a bad relapse for several weeks - bedbound. Also, please get lots of sleep. Even as I'm recovering, I can feel my body feeling terrible when I am tired.
I hope this post brings someone some reassurance. I will update again when I am 100% back at work full time and at the gym too (used to work out intensely ... miss it).
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