3yr old son has Hsp cant stop worrying

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Basically my 3yr old son developed a horrible bruised like rash all over his bottom last Friday and a swollen sore knee, doc said he had hsp and now I can't stop worrying thinking the worse, the rash has cleared from his bum but is now station on his legs these bruises and red spots and last night both his legs swelt up, docs ain't much use n have just told me to check his urine for blood n protein sad can anyone give me some advice or light on this and if I'm worrying for nothing?

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  • Posted

    Hi dizzydoll. I totally understand your anxiety. I was in tears several times when my 4 year old got HSP. He is now 5, almost 6, and is fine. I was worried every time he peed and I had to keep him in my sight at all times. He ended up not being able to walk for a few days because of his knees and so my husband had to carry him everywhere. We first went to our pediatrician but then went to a pediatric rheumatologist. We ended up giving him a tapered dose of Prednisone (steroid) for a few months because he started vomiting and that suggested it had gotten to his gut. Anyway the steroids really really helped everything! They did make him a little hyperactive and his face looked swollen but they saved us. I understand your worry but this will go away. It is hard to watch since they can't actually "treat it," but it's so much better that he got it at such a young age rather than being older. The prognosis for kids who are young with HSP is really really high in terms of it getting better with no complications. I would see how he does and maybe make an appointment with a pediatric rheumatologist  - unlike most pediatricians this specialist has a lot of experience with HSP and that was really helpful I think. Let me know if you have any other questions. Sending good energy your way! Jeanna
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    • Posted

      Thankyou for ur reply jeanna that's really reassuring I've just read some really bad things about it and scated myself, n it's horrible seeing him in pain sad, do u know what caused ur sons n how long it lasted? X
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    • Posted

      My son had strep that the doctor thought may have been scarlet fever a couple of weeks before he got the rash and was diagnosed with HSP. His was way better, meaning he could walk and was not in pain, about a day after starting the Prednisone and he started that a few days after being diagnosed with HSP. But he had to take the steroids for maybe 3months - I am asking my husband who may have a better memory of the specifics so I'll get back to you when I hear back from him. I think though his rash etc started going away within 2 weeks. And it didn't get worse, it started getting better. I'm in the U.S. but did the doctor there mention steroids as a possibility. If he does start vomiting don't worry - as soon as he starts steroids that goes away - i freaked out when my son Emmett started throwing up, thinking oh my god he's going to die! But it was OK, we just had to make sure he stayed hydrated and as soon as the prednisone kicked in he was able to keep food and liquids down. I'll be in touch soon. Jeanna
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    • Posted

      My husband also thinks it mostly lasted two weeks and that the doctors all said that most kids get through HSP and recover fully, no complications. It's auto-immune and it just seems to go away. Take care. Let me know how things gosmile -Jeanna
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  • Posted

    Hi dizzydoll, my experience of HSP is very different as my daughter is 19 and therefore the symptons are much worse. Just so you know she got it as a reaction to the Hepatitus B vaccination (she is at Uni doing nursing, and needed a course of vaccinations before doing her hospital placements). She is also on a very high dosage of Prednisone which helps with her tummy and bowel although does not help the rash (she has now had it for 3 months). However in young children it does go away fairly quickly, so your son will be fine. Take care
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