4 Months of Penile Pain, Irritation, Dribbling, Rash - No STD or Diagnosis. Help!
Posted , 234 users are following.
Hello, I am seeking advice! I am 32 years of age and situation has lasted over 4 months. It started when a female at a strip club slid her hands into my pants and rubbed / grabbed my erect penis near the urinary meatus (opening). I felt a sharp pain at the time (not sure why honestly). I feel like perhaps it was due to her rubbing near the meatus. The symptoms below started almost immediately from what I can recall.
Symptoms:
1. Slight rash on the top of the penis glans (head of penis). It is worse after a hot shower. It comes and goes, and can appear almost like a plaque covering, scaly at times. It sometimes starts at the top of the corona (where head meets shaft) and runs straight down to the urinary meatus (opening) like a stripe.
2. No visible lesions (or blisters) or warts on the exterior skin surface. Does not appear to be any internally as well and doctors have not been able to observe anything.
3. Slight purple on one side of urethra, when the meatus is opened to look inside. A small bump is near the top of the purple, or tip of the meatus; however, two urologists believe it is vein related.
4. After urinating, urine dribbles out of the bottom of the meatus. The meatus opens and closes (at the bottom) and urine drops drip / discharge. I have to wipe considerably. The glans around the meatus looks swollen (more one side) and when I press on it, urine will discharge. It is almost like urine gets stuck in the tip of the urethra.
5. No noticeable discharge, but the penis appears and feels “wet” inside, especially post urination. It seems that I am leaking / dribbling throughout the day, after urinating. Urine color is clear.
6. Pain consistently on the underside of the glans near the meatus. The pain can sometimes be very sharp and burn. I also feel a tickle or tingle sensation in the head of the penis that comes and goes. The entire glans is sensitive to touch. This is extremely irritating.
7. The meatus looks red and inflamed at times. It can be very sensitive or painful to the touch and irritated by clothing. This feeling comes and goes in intensity.
8. The bottom of the meatus opens wide (top remains closed) when the penis has increased blood flow and/or is erect. This is abnormal for my body. You can see directly into the urethra when this happens.
9. When erect, the glans / head region seems larger than it had previously and I would describe it as swollen. There is also an internal pain near the underside of the meatus, where it opens up near the bottom (as described). Feels like it is stretching / pins and needles.
10. The glans has a more prominent reddish rash, during and after an erection. The rash appears like I have scaly / dry skin. Post ejaculation my urethra appears red and inflamed as well, when looking inside the meatus. This subsides after some period of time.
11. Semen color seems to be more yellow that I remembered, prior to this incident. Sometimes I feel like there is pressure on the front of my testicles.
12. The pain and irritation increase throughout the day. When I wake up in the morning the symptoms are not as noticeable, besides a dull pain on the under-side of penis glans. Sometimes there is some redness on the top of the glans area.
Testing:
I have been well tested (multiple times) and am negative for the following STD's; HIV (RNA testing done as well), Chlamydia, Gonorrhea, Trich, HSV-2, Syphilis, Mycoplama & Ureaplasma, Hep A, Hep B, & Hep C. Again, all negative.
I found in this process that I am HSV-1 positive and likely have been for some period (so is a large % of the population). I have had blisters and a HSV like rash on the bottom of my nose in the past. I don’t think this is HSV-1 as there are no lesions in my genitals and this has gone on too long.
Due to viral load factors, I tested the viral infections (HIV, HSV-2, Hep) at 30 days and again at 95 days post exposure. I assume that I am in the clear based on statistics, but am certainly not a doctor. These tests were unlikely to be positive given the event as there was no intercourse.
Urine analysis looked okay. Red and white blood cell counts were okay, no bacteria infection or UTI found or diagnosed based on urine culture.
Treatment:
I have seen 5 urologists, 1 dermatologists and 1 family practice doctor. I have had 2 cystoscopies, and nothing was found (same urologist).
A family practice doctor thought it was due to some soap or lotion, but referred me to the 1st urologist. He thought nothing was visually wrong.
The 1st and 2nd urologist said they have no clue as there was nothing outside of normal visual tolerance. The 2nd urologist gave me the 2 cystoscopies (camera up the urethra to the bladder) and nothing abnormal was found.
2nd urologist thought it was contact dermatitis due to the rash as nothing surfaced in either cystoscopy. My prostate was examined physically and was ruled to be okay. He referred me to another urologist and also said I should see a dermatologist.
The 3rd urologist confirmed the inflammation in the glans. He suggested to try Quercetin (there are clinical trials which have shown it has helped the prostate) and then potentially Doxy over a longer period as a next step (can be anti-inflammatory). My fear is taking an antibiotic without having a bacteria pathogen diagnosis could be pointless.
The 4th urologist (who the 2nd urologist referred me to) believed that this was related to nerves in the penis. He is a pain specialist and put me on Nortriptyline.
The dermatologist (urologist said I should see one) also saw inflammation and diagnosed the rash as a non-infectious seborrheic dermatitis. He prescribed a topical antibiotic / corticosteroid, which I used. I also tried a steroid. It has reduced some of the redness but not relieve any of the described pain or urine dribble. I am concerned about the use of a topical for an extended period (skin thinning) and have stopped using it. I have a follow-up visit with him scheduled.
Medication:
1. Doxycycline 100mg x2 times a day for 10 days, initially when symptoms started. No relief.
2. Topical cream for rash: Ala-Quin initially for 4 weeks, then tried another steroid cream. Has somewhat resolved the rash issue (not totally).
3. Metronidazole (Flagyl) 2g, x 1 dose for Trich as there is not a great test for this (urine apparently has weak sensitivity). Trich can cause swelling, come and go symptoms, etc.
4. Nortriptyline 20mg every day to resolve nerve issue. I just started this.
5. Supplements currently taking: 1g of Quercetin daily (shown to reduce inflation in clinical trials), Multivitamin, AHCC, Folic Acid, Vitamin E and B12.
The symptoms continue to persist and these treatments have not worked.
My Questions:
1. Does this sound like an STD? Could it be another bacteria pathogen or NGU?
2. If this nerve related due to some trauma, would it cause the rash?
3. Are there any ideas regarding further testing or a diagnosis? I was considering a semen culture but don't know where to have this done.
4. Would a HPV virus cause these symptoms? In men, I believe the HPV virus is typically asymptomatic and/or presents itself with warts.
5. How can I test for HPV other than a biopsy of the penis or penis scrape (which most doctors don’t perform)?
6. Could this be yeast related based on the symptoms? I have noticed an increased coating on my tongue which scrapes off and dry mouth symptoms. I have also noticed the coating and dry mouth is much worse after drinking alcohol or eating sugar (yeast related).
I should mention that my anxiety over this is through the roof and am aware of some changes in my body as a result of it (anxious, no hunger at times, weight loss, etc.). I also think the dry mouth could be related to anxiety.
Please, I am looking for some help! I know there is someone out there that can help me as this has gone on for so long. This is such a struggle and always on my mind.
Further, I am terrified about infecting a new person who I just started dating. A couple doctors indicated that I was safe to have intercourse as I was well tested, but I don’t feel right about having intercourse with the symptoms persistent.
Thanks all for your help. - Steve
12 likes, 867 replies
john58680 Guest
Edited
hello guys I've been feeling pretty good for a few months now i don't have pain nor irritation and i can urinate normally again eventho i still feel and know that my meatus became tighter because of all i went through cum stays stuck in my urethra i have a thinner line when i pee but i can live with that
The urination part was mentally the 3 th urologist that i saw told me to split my urination in 6 times over a day so i would hold it every 3 hours and that did the job
the irritation pain and burning part was solved using a creme Terra-Cortril with tpolymyxine-B there are many brands who have it it's originally used as a eye ointment but weirdly the urologist told me to use it on my meatus and it worked so good he told me to use Clovate 0,5 mg/g crema if that didn't work because he advised me not to use that for a long time but it worked out so i didn't had to use the second ointment
john58680
Posted
And the cause of my problems was diabetes i saw a sudden change in my pre ejaculate fluid aka pre-cum it became like super glue so you guys can imagine my penis sticking on my underwear and whenever i pull my penis out i damage my penis. I always had a dry mouth that time a year ago i felt dehydrated i used to pee so much that my body had not water so my precum had no water either i went to the gp and told them that i felt dehydrated and that my precum is very sticky and that i had damaged my meatus badly. After some tests they told me that I'm healthy and that I'm not diabetic. But i know what the problem was so i told my urologist and i was right i was diabetic and my precum was the problem. I reversed the case i lost 25 kg's it took me 5 months to find out what was wrong imagine how many times i damaged my meatus because i didn't know what the problem was.
ashleigh2000 Guest
Posted
Guys did any of you get diagnosed for acute or chronic bacterial prostatitis. I think I'm hundred percent sure that this might be the case
mike01515 ashleigh2000
Posted
every doc i been to says the prostate is fine. im curious to why you are 100% sure that is whats going on?
john58680 ashleigh2000
Posted
do you have discharge after ejaculating i always have some precum like discharge after i ejaculate I'm pretty sure it's precum it's clear and sitcky i always try to clean my pipes my urinating after ejaculating but even after urinating it drips that made me think about my prostate aswel
mike01515 john58680
Edited
mind does the same thing, after i pee if i go sit down or do anything a few minutes latter is still feeling like some cum running out . to me i thought that was normal. but i dont know what is normal anymore . what i have noticed is when i get hard before sex or masterbation i get a lot of pre cum then , i mean it almost looks like i finished before i even get started.... anyone else have this happen?
john58680 mike01515
Posted
exactly I'm experiencing the same problem that's not normal i didn't have that before i can feel the cum or precum running through my urethra even until 20 minutes after ejaculating it's so annoying i don't want to ejaculate anymore because of that
john58680
Posted
If I get even a partial erection, just for a minute, I'll later notice my glans is covered in precum (clear, mucousy, no odour, and it is only associated with sexual activity). During sex there will be an excessive amount. If I ejaculate, the clear fluid continues to leak for hours afterwards. Even if I urinate it continues, which used to be effective in 'clearing the pipes' for me. I should also mention that this fluid is much thicker and stickier than it used to be, and despite the increase in what seems to be precum, generally the volume of ejaculate I produce is much less. And a lot thicker than normal. Again, the increase in discharge is entirely related to arousal/sexual activity. This is exactly what i experience every time
mike01515 john58680
Posted
do you guys have abdomen pain after you ejaculate ??
john58680 mike01515
Posted
no i don't
mike01515 Guest
Edited
you guys have anything new going on?
chris61007 mike01515
Posted
I have an appointment today with my new doctor, at this point I don't expect for him to give me a solution or an answer but hey its worth a try! I'll keep you guys updated. I'm just tired.
mike01515 chris61007
Edited
keep us updated, nothing new on my end , still having bad knee pains and thighs. hope all is well with everyone
ashleigh2000 mike01515
Posted
Hey bro. I'm sorry it's been a while i had login issues. 2 weeks back when i last responded i also had very bad inner thigh pain and the pain was now in my knees it was so bad, my problem is that i am in Africa so it's hard to go to see physicians about these kinda issues. But good news is that these past 2 weeks i have been really better, pain in my thighs has reduced dramatically i only got slight pain in my left thigh but not that much and i got no more pain in my knees, and my penis pain on the tip has reduced, i haven't had pain on the tip for about a week and i bet it stays that way. So my guess for this is that this is bacterial related, remember when i asked about chronic bacterial prostatitis? I did a lot of research on it and i my guess was that it might be it because i also saw that it might be hard to diagnose so i also thought that is why most of people in this forum are having a hard time trying to figure out what's going, so please if you can got to the doc kindly ask to be tested for chronic bacterial prostatitis. Then to make symptoms better i have been using home remedies this because my first thought when i saw "bacterial" my cultural knowledge is that sugar makes it thrive and i think other previous replies also stated something about sugar levels in the body. So for now please try this....1. Anything liquid that you consume should not contain any sugar ,if you can please drink water only (no drinks, caffeine, alcohol, soda and the like) 2. Try looking for a detox (i have been drinking balsam tea every two days)
3. And mostly eating healthy although it's hard but avoid eating a lot of snacks
4. I'm thinking about going vegan for a while maybe it might completely go away. For now please try the above and give an update after a week.
chris61007 mike01515
Posted
So my new doctor ran a bunch of test on me, I showed him this forum and he was impressed on how many of us have the same symptoms with no solution so he is pretty determined on finding out what it is. Although we have all gotten a bunch of test done on us and still have no clue what it is we must remain faithful there's no impossibles for God . It is very hard to live the way we're living but we will find a cure lets keep our head up guys and thankyou guys for being so supportive! And @Ashleigh I will tell him about the Chronic Bacterial prostitis you mentioned. As soon as I get any info I will let you guys know!
noah1836 chris61007
Edited
Hey Mate,
I'm in a similar situation to you guys. I received oral sex from a women. The day after the tip of my penis was red and i had the strong urge to urinate. (UTI Symptoms) ive now had these symptoms for 5 months. i cannot consume caffine because it makes things worse. had every test done, all negative. Anyone have similar story?
chris61007 noah1836
Edited
Noah you are not alone, we are all here because we have the exact same symptoms as you. And I believe we all started getting symptoms after risky oral sex. And yes peeing constantly is one of the many symptoms we all get. Most of us already got tested for UTI, Herpes, Aids, STDs ect. All of our results always come back negative so we can rule that out. What I have read from other guys in the forum and I absolutely agree on is that it is definitely saliva driven. So maybe some bacteria in the saliva from the girls that gave us oral sex. whatever it is, it is very hard to detect so we are all getting tested for many different things in hope that one day one of us gets tested for the right thing and find a solution to this problem. But on the mean time keep your head up, you are not alone! And on the peeing part I also read something on this on this forum that helped me out alot. Try scheduling your pee every 3 hrs, The urge to urinate is often in our heads as well, I'm not saying the urge to urinate is not there but I would spend all day thinking to myself "When will I pee again" and just as I would think about it I would have to pee. So try to stay distracted don't think about it so much and like I said try to schedule your pee everyday 3 hrs and eventually 4hrs, It's normal for an adult to pee about 6 to 8 times a day , if you can do that and stop thinking about it you will feel alot better I promise. The problem is we start to forget what is normal and what isn't, but think about it before all of this we probably peed every 3 hrs anyways we just never thought about it because it was normal to us. But now with all of these symptoms we don't know what is normal and what isn't so try to relax and live your life like you would before any of this, it will help you out alot! like I said keep your head up and we'll find a cure there are no impossibles for God. One last question for you Noah, was the girl you where with someone you would consider high risk for Stds? or was she just a regular girl, the reason I ask is because I wonder if it we could get this from just any girl or if its usually from a high risk STD person. because I have read that alot of us are here from a risky one night oral sex experience and others from oral sex with their girlfriends that are clean.
ashleigh2000 noah1836
Edited
same bro. my symptoms began after oral and next month it's gonna be a year. I pray his thing doesn't kill us
ashleigh2000 chris61007
Edited
as for me the girl was risk free, actually a virgin. This is saliva driven and that bacteria somehow is hard to tackle
chris61007 ashleigh2000
Posted
Ashleigh that makes me feel a little better I always thought it was because of the girl being high risk. And I don't think we will necessarily die from this, I read literally all 700 plus post on this forum, there was a guy probably in his late 40s, said he had it for 10 plus years already he said it went away after a couple of years and had recently came back after his wife and him had a night of very rough intercourse. I wish there was a way for all of us to get together and get looked at. Honestly that would be the only way doctors would take this serious.
noah1836 chris61007
Posted
Hey Mate, thanks for the reply, i completely agree with you about not knowing whats normal anymore. And i too believe its saliva related. Very interesting.
The women i was with was older, and is a sex worker (She's en escort) i found this out afterwards. She gave me oral, then i used a condom for intercourse, but fell asleep after sex. Normally i would have a shower and wash, but on this occasion i didn't.
I only get the frequent urine when i have caffeine. That seems to iritate my bladder.
I do have a girlfriend now, and thankfully it has stopped effecting my life to the point where i was very depressed and scared. I too am hoping it goes away with time. Its comforting to hear people going through similar experience as me. Its baffling how Doctors don't know what this is
noah1836 ashleigh2000
Posted
I doubt its going to Kill us mate. Its so small no tests pick it up. Stay positive, eat healthy, have safe sex
noah1836 chris61007
Posted
Also, i was getting weird very faint pains in my prostate, and my doctor recommended Saw Palmetto. Natural supplement, helps with inflammation of prostate. I recommend
ashleigh2000 noah1836
Posted
how about the knee and thigh pains, because mine keep on persisting. How did you go about it
Steves8012 ashleigh2000
Edited
I think your knee pain might be a bit of a case of causation vs correlation ie. correlation doesn't mean its the cause. I get it as easy to jump to these conclusions, I've been dealing with this rubbish for two years so aware mentally draining. For what its worth im also convinced bacterial, after certain antibiotics mine almost goes only to reappear 3 weeks down the line.
chris61007 Steves8012
Posted
Steve I know you probably can't say what antibiotics you're using on this forum but do you have an Insta, snap or FB where I could ask you more stuff?
Steves8012 chris61007
Posted
Hi Chris. As a side note we all could have different issues. Mine involves a sore penis glans, randomly on one side, get balanitis symptoms with shiny surface snd small lines on glans. Plus did have both epididimytis and groin/abdominal pain. Been going on some time, antibiotics give relief for a short period but then comes back. Testicular pain has now subsided. Tried Cipro, Levo and ofloxicin amongst others
chris61007 Steves8012
Posted
I see what you mean Steve, man this has just been a crazy journey. Thank you for sharing your experience with us, I hope we find a permanent cure soon.
mike01515 ashleigh2000
Posted
the knee pain is so bad for me, my thigh muscles are so sore . it goes all the way down my legs in my knees and thighs and tendons. been to 2 orthopedic doctors and they have no idea. they say my knees look good so its something viral or bacterial that has spread.... i have also read that alot of people are having severe joint pain after having covid 19 . i have not had it that i know of so thats not the case with me. of you have had this for a while and havent had these symptoms , just wait .. its coming
ashleigh2000 mike01515
Posted
exactly thats the pain i am feeling also in my inner thighs to my knees. its so bad i am even failing to do some things because of thinking about it
mike01515 ashleigh2000
Posted
how did it start for you? both of my knees started feeling wet on my knee caps, then i would get cold feelings down my shins , that went on for a week or so then the aching pain set in and then i got to where i couldnt climb steps at work , i had no strength in them. now my tendons from my knee to my ankles hurt and are extremely sore and my thigh muscles are aching and i have knots in them ... is yours anything like this?
noah1836 Steves8012
Posted
I've had the shiny surface lines etc too, are you consuming caffeine? That was the reason behind my abdominal bladder pains. Which has stopped now
Steves8012 noah1836
Posted
Yes. However have for for years so wasn't the cause of my issues.
noah1836 Steves8012
Posted
I've been drinking caffeine all my life with no problems. But after my symptoms started caffeine seemed to irritate it