4 Months of Penile Pain, Irritation, Dribbling, Rash - No STD or Diagnosis. Help!
Posted , 234 users are following.
Hello, I am seeking advice! I am 32 years of age and situation has lasted over 4 months. It started when a female at a strip club slid her hands into my pants and rubbed / grabbed my erect penis near the urinary meatus (opening). I felt a sharp pain at the time (not sure why honestly). I feel like perhaps it was due to her rubbing near the meatus. The symptoms below started almost immediately from what I can recall.
Symptoms:
1. Slight rash on the top of the penis glans (head of penis). It is worse after a hot shower. It comes and goes, and can appear almost like a plaque covering, scaly at times. It sometimes starts at the top of the corona (where head meets shaft) and runs straight down to the urinary meatus (opening) like a stripe.
2. No visible lesions (or blisters) or warts on the exterior skin surface. Does not appear to be any internally as well and doctors have not been able to observe anything.
3. Slight purple on one side of urethra, when the meatus is opened to look inside. A small bump is near the top of the purple, or tip of the meatus; however, two urologists believe it is vein related.
4. After urinating, urine dribbles out of the bottom of the meatus. The meatus opens and closes (at the bottom) and urine drops drip / discharge. I have to wipe considerably. The glans around the meatus looks swollen (more one side) and when I press on it, urine will discharge. It is almost like urine gets stuck in the tip of the urethra.
5. No noticeable discharge, but the penis appears and feels “wet” inside, especially post urination. It seems that I am leaking / dribbling throughout the day, after urinating. Urine color is clear.
6. Pain consistently on the underside of the glans near the meatus. The pain can sometimes be very sharp and burn. I also feel a tickle or tingle sensation in the head of the penis that comes and goes. The entire glans is sensitive to touch. This is extremely irritating.
7. The meatus looks red and inflamed at times. It can be very sensitive or painful to the touch and irritated by clothing. This feeling comes and goes in intensity.
8. The bottom of the meatus opens wide (top remains closed) when the penis has increased blood flow and/or is erect. This is abnormal for my body. You can see directly into the urethra when this happens.
9. When erect, the glans / head region seems larger than it had previously and I would describe it as swollen. There is also an internal pain near the underside of the meatus, where it opens up near the bottom (as described). Feels like it is stretching / pins and needles.
10. The glans has a more prominent reddish rash, during and after an erection. The rash appears like I have scaly / dry skin. Post ejaculation my urethra appears red and inflamed as well, when looking inside the meatus. This subsides after some period of time.
11. Semen color seems to be more yellow that I remembered, prior to this incident. Sometimes I feel like there is pressure on the front of my testicles.
12. The pain and irritation increase throughout the day. When I wake up in the morning the symptoms are not as noticeable, besides a dull pain on the under-side of penis glans. Sometimes there is some redness on the top of the glans area.
Testing:
I have been well tested (multiple times) and am negative for the following STD's; HIV (RNA testing done as well), Chlamydia, Gonorrhea, Trich, HSV-2, Syphilis, Mycoplama & Ureaplasma, Hep A, Hep B, & Hep C. Again, all negative.
I found in this process that I am HSV-1 positive and likely have been for some period (so is a large % of the population). I have had blisters and a HSV like rash on the bottom of my nose in the past. I don’t think this is HSV-1 as there are no lesions in my genitals and this has gone on too long.
Due to viral load factors, I tested the viral infections (HIV, HSV-2, Hep) at 30 days and again at 95 days post exposure. I assume that I am in the clear based on statistics, but am certainly not a doctor. These tests were unlikely to be positive given the event as there was no intercourse.
Urine analysis looked okay. Red and white blood cell counts were okay, no bacteria infection or UTI found or diagnosed based on urine culture.
Treatment:
I have seen 5 urologists, 1 dermatologists and 1 family practice doctor. I have had 2 cystoscopies, and nothing was found (same urologist).
A family practice doctor thought it was due to some soap or lotion, but referred me to the 1st urologist. He thought nothing was visually wrong.
The 1st and 2nd urologist said they have no clue as there was nothing outside of normal visual tolerance. The 2nd urologist gave me the 2 cystoscopies (camera up the urethra to the bladder) and nothing abnormal was found.
2nd urologist thought it was contact dermatitis due to the rash as nothing surfaced in either cystoscopy. My prostate was examined physically and was ruled to be okay. He referred me to another urologist and also said I should see a dermatologist.
The 3rd urologist confirmed the inflammation in the glans. He suggested to try Quercetin (there are clinical trials which have shown it has helped the prostate) and then potentially Doxy over a longer period as a next step (can be anti-inflammatory). My fear is taking an antibiotic without having a bacteria pathogen diagnosis could be pointless.
The 4th urologist (who the 2nd urologist referred me to) believed that this was related to nerves in the penis. He is a pain specialist and put me on Nortriptyline.
The dermatologist (urologist said I should see one) also saw inflammation and diagnosed the rash as a non-infectious seborrheic dermatitis. He prescribed a topical antibiotic / corticosteroid, which I used. I also tried a steroid. It has reduced some of the redness but not relieve any of the described pain or urine dribble. I am concerned about the use of a topical for an extended period (skin thinning) and have stopped using it. I have a follow-up visit with him scheduled.
Medication:
1. Doxycycline 100mg x2 times a day for 10 days, initially when symptoms started. No relief.
2. Topical cream for rash: Ala-Quin initially for 4 weeks, then tried another steroid cream. Has somewhat resolved the rash issue (not totally).
3. Metronidazole (Flagyl) 2g, x 1 dose for Trich as there is not a great test for this (urine apparently has weak sensitivity). Trich can cause swelling, come and go symptoms, etc.
4. Nortriptyline 20mg every day to resolve nerve issue. I just started this.
5. Supplements currently taking: 1g of Quercetin daily (shown to reduce inflation in clinical trials), Multivitamin, AHCC, Folic Acid, Vitamin E and B12.
The symptoms continue to persist and these treatments have not worked.
My Questions:
1. Does this sound like an STD? Could it be another bacteria pathogen or NGU?
2. If this nerve related due to some trauma, would it cause the rash?
3. Are there any ideas regarding further testing or a diagnosis? I was considering a semen culture but don't know where to have this done.
4. Would a HPV virus cause these symptoms? In men, I believe the HPV virus is typically asymptomatic and/or presents itself with warts.
5. How can I test for HPV other than a biopsy of the penis or penis scrape (which most doctors don’t perform)?
6. Could this be yeast related based on the symptoms? I have noticed an increased coating on my tongue which scrapes off and dry mouth symptoms. I have also noticed the coating and dry mouth is much worse after drinking alcohol or eating sugar (yeast related).
I should mention that my anxiety over this is through the roof and am aware of some changes in my body as a result of it (anxious, no hunger at times, weight loss, etc.). I also think the dry mouth could be related to anxiety.
Please, I am looking for some help! I know there is someone out there that can help me as this has gone on for so long. This is such a struggle and always on my mind.
Further, I am terrified about infecting a new person who I just started dating. A couple doctors indicated that I was safe to have intercourse as I was well tested, but I don’t feel right about having intercourse with the symptoms persistent.
Thanks all for your help. - Steve
12 likes, 867 replies
Tunnso Guest
Posted
Please update on your status. I'm having the same issue for 6 months now. Treated ureaplasma but that didn't really help.
alex88463 Guest
Posted
hello same symptoms here. any update on this? I’m experiencing the same symptoms as everybody else. hopefully this can be resolve anything helps mine occurred after having a sexual encounter with my partner and i had a force hit on the tip and i noticed it the next day got paranoid its been driving me crazy i get random pain on my inner thighs and i can urinate just fine but i do feel like a leakage is there but i'm completely dry any advice?
o16774 Guest
Posted
I have the same problem. How are you today? Have you figured it out? What is it?
mike01515 o16774
Posted
i dont think anyone has figured it, seems like we are all suffering from the same thing . same symptoms , same pain . hope all is well
joey68341 Guest
Posted
hello. I'm 35 and I have some of the same symptoms but not all and looking for some help. so this year I had been laid up for awhile due to surgeries and a lot of antibiotics and randomly one day with 2 days my glans and a little in the left side of the shaft started to hurt. all tests negative but had a rocephin shot and been using antifungal cream but then got thrush and have been taking fluconazole but the junk issues seems to come and go. no blood in urine or semen. ache mainly if glans is messed with and after a min or two of having an errection. no drainage and feels like dribbling but I dont think anything comes out. get random cold sensations every so often for a few seconds. my primary care physician and urologist sees nothing to do further tests. I can urinate fine and sometimes ejaculate fine but dont want an errection due to this. been doing epson salt baths. I'm circumcised. some days are better but i can't barely mess with it or it'll get achy for a day or so. idk if it's a nerve issue. urologist said sometimes bladder issues can cause tip pain but he doesn't think its that. activities seem to help sometimes but sitting can aggrivate sometimes. sometimes pain in the lower abdomen. he doesn't think its fungal which I thought it would be. ive been on the candida and gluten free diet for a few weeks. this has been going on now for over a month. any questions or thoughts?
Cali74669 joey68341
Posted
You are describing the problem I have had for the oast 9-10 years now. Its gotten real nad in the last year and i have seen countless doctors and spent a lot of money. I believe it is Viral because it comes and goes in waves. If it was bacterial i was told it would have gotten worse over time and would not subside significantly at all. Stress makes it worse and it has not responded to ANY of the steroid creams, anti virals, yeast medication, Countless antibiotics, and its just a slightly darker color red painful swollen tip of the penis. Only thing that makes sense is a virus, but unfortunately i have tested Negative for all know virus.
sushantnagpal Guest
Posted
Hi @abbs91763 @abdul85640 @caleb04109 @carlos91987 @Cali74669 @jack3288 @jhon37179
any cure or updates?
Thanks
mike01515 Guest
Posted
could everyone check in ??? updates on how everyone is doing ? any nee symptoms or the lack of ?? just checking in with you guys. mine has eased up some in the penis area , ejaculation is pain free now , irritation is almost gone but still a little discomfort, the stinging pain on my penis tip is gone and the redness has almost went away.. it seems like everytime i ejaculate my symptoms get a little better. hope the road to recovery continues. everyone check in please
mike01515
Posted
also my knees and feet have been killing me in pain, i dont know of ots related or not bit now im dealing with all of this .it seems it never ends
sushantnagpal mike01515
Posted
hi @mike01515, @abbs91763, @abdul85640, @Albert51211 @alex69712, @caleb04109, @Cali74669, @carlos91987, @zead77698, @mac1985
did somebody get any relief?
Thanks
Cali74669 sushantnagpal
Posted
nothing here. I am not giving up but the doctors are starting to think that I have a mental illness. I have even started to doubt my own mind. Unfortunately, the pain is real and its like living a nightmare. I finally figured out that the red bumps on the other parts of my body was a food allergy which was unrelated. The issue with swollen painful tip of my penis is still active and driving me to the brink of absolute terror.
ashleigh2000 mike01515
Posted
hey Mike how are you feeling
rahul16847 mike01515
Posted
hey mike. i also have pain in knees. i also think its related. you got any update?
sushantnagpal Guest
Posted
hi @mike01515 @abbs91763 @abdul85640
@carlos91987 @caleb04109 @Albert51211 @jack3288 @jack36165
does anybody have any relief here? anybody alive here?
My legs are killing me in pain..
Thanks in advance
Cali74669 sushantnagpal
Posted
I saw an Immunologist yesterday and I am having some autoimmune tests done to see if that is at least a contributing factor. I will keep you posted with the results.
sushantnagpal Cali74669
Posted
Hi @Cali74669
Any update ?
because i also went through some autoimmune tests.
ANA Factor which was slightly positive but I think that is due to celiac disease I have.
I also went through another autoimmune profile tests last year, and fortunately, all those were negative apart from ANA.
I dont think that this is some autoimmune disorder which is causing these issues.
sushantnagpal
Posted
Hi @Cali74669 @Albert51211 @abbs91763 @abdul85640 @abdullah97299 @mike01515 @caleb04109 @ben26231 @carlos91987 @daniel23223 @Erickson7
any update on this? did you find out what it is?
Thanks