4 year old daughter HSP, please help

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Hi.

My daughter was diagnosed with HSP on 7th jan 2017. She had a horrible angry rash on her legs and feet so we rushed her to A&E thinking meningitis. We were told after urine tests and blood tests that it was HSP, all very confusing.

She had blood in the urine but not visiable to the eye. She had to have weekly BP checks and numerous blood tests

On 12th Feb she started to urinated blood. Very scary. We rushed her to A&E where they discovered her protein was 4+ and blood was 4+ so she had a 4 day stay at hosp.

It then happened again yesterday, she's now vomiting.

We are being told a million different things and I feel no one is really helping her. I can't sleep for worry. She's only little and she has no life because of this. She hasn't had the rash since jan but her BP has crept up, she had an ultrasound done showing a light area on her kidney and protein at 3+ and blood still off the scale.

Please someone help and reassure me. I just want her to get better

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    I'm sorry to hear about your daughter, my 4yr old son is going through the samething we first went to er on jan 4th 2017 because of severe abdominal pain doctor said just to give him Tylenol. A week later he got a rash so se took him back to see the doctor and they said that he had hsp and it would go away on its own . Few days later he had no more pain and the rash was almost gone . 3 weeks later he had blood and protien in the urine so we took him to see a nephrologist cuz of swelling and blood in the urine. He put him on prednisone he's been on it for a week in a half sweelling went down but is now starting to come back . It is very stressful to see this going on . We will be contacting the doctor tomorrow to see what he suggests.

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