4 yr old girl with HSP (Australia)
Posted , 4 users are following.
My daughter was diagnosed with HSP last Thursday and was hospitalised for a night for monitoring. Since coming home her rash has increased, she has swelling in her ankles, knees, tummy and hands. She seems to wake up in good spirits but by late afternoon she is miserable, swollen and in pain. As a mum this is really distressing.
We went to the dr today. She has some protein in her urine but he wasn't concerned. (He has never seen HSP before)
She is supposed to start her very first day of school on Wednesday however I am very unsure if I should let her go. Even at 4 she is concerned about all the spots on her legs. I'm worried parents are going to think it's contagious.
Does anyone else use panadol and nurofen? One dr said not to use nurofen with HSP.
I would greatly appreciate any input.
0 likes, 5 replies
nichola32658 erica0505
Posted
lucynewas erica0505
Posted
Your daughter should be monitored for protein in the urine and blood pressure for at least 6 months. Protein is a sign the kidneys are working too hard. Treatment is steroids, but because of the risks associated with them, they are only used if the protein in the urine can't be controlled.
We have found that anti-histamine helps with the rash and fatigue. Try nurofen or paracetemol in half usual doses for the abdominal pain.
Lots of fluids and TLC, and let her have a rest when she needs to - so I would say, go into school for an hour or so, but come home again or have a rest, so she can build up the friendships.
erica0505
Posted
pelhamed erica0505
Posted
I higjly recommend you to find a doctor that has experience with HSP cases. We saw a few doctors that did not have a clue how to react/diagnose and made mistakes.
For myson it has been a 2 month long jurney already and whoever tell you that it will resolve in xx time most likely hasno experience.
best of luck
pelhamed erica0505
Posted
Unfortunately that alone did not work so his doctor started him on a steroid (prednisone)