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Hi, i was diagnosed with an over-active thyroid 4 months ago when i was 21 (I'm now 22) and my levels were so off the charts that i got an immediate appointment with the specialist where I live in Portsmouth so i was being treated within a few weeks. I was put on 30mg of cabimazole and 140mg of propranolol per day. I had an xray on my neck for the bulge thing and also an ECG (think thats the right one) which said my heart was beating at 128 bmp. I also lost 3 stone in just under 2 1/2 weeks.
I have had specialist appointments for the last 4 months (complete with blood tests) but in my last appointment (last friday) my T4 (i think) was at 22 which apparently is still apparently too high and so the doctor took me off propranolol and upped my carbimazole to 40mg. He's saying that in the new year, I'm definately looking at radio-iodine or surgery because he doesn't believe it will go away by itself. They still don't know the exact cause but they're leading with Graves Disease.
I was just wondering if anyone else had been on this sort of high dose and if anyone had had surgery or radio-iodine treatment so soon after being diagnosed?
At my first appointment, i was told i wouldn't need any further treatment for 2 years or longer. I'm just kinda worried about it and wanted to hear from anyone who is in the same kinda boat.
Btw, coming off the propranolol was not a wise decision cos all the symptons have come back so I'm going to talk to my doctor about that.
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