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45 no children but considering a hysterectomy due to stage4 endo, anyone the same?

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esther23254
esther23254

Hi all its been 4 years since i was diagnose with stage iv endo and i had a lap and during that the surgeon discovered cysts, adhesion, and basically everything was all joined together. After trying different contraception to manage the condition i have now got a mirena coil. i'm not sure if it is helping or not as i've only had it in for about 6 mths. I am suffering from severe back a pain and a recent scan showed a mass on the same side as the back pain around my ovary, alongside fatigue and what i think might be depression. I have had a referral to a endo specialist and i am considering pushing for a hysterectomy. Has anyone else had one in a similar situation? how did it or did it improve your symptoms and quality of life? I mention that I don't have children which has been more of situation and circumstance rather than choice but i have come to terms with not having any given my age and endo. it is a no going back decision so just wanted to get some idea if it's helped anyone else? Thanks 😃

0 likes, 2 replies

2 Replies

  • aitarg35939
    aitarg35939 esther23254

    Posted

    I had all reproductive organs removed at 27, and that was one of the best decisions i've ever made. It came back 27 years later when i was 54 & i had a small section, 6-8", of my colon removed. It's been 11 more years of peace & quiet so i can't complain. The surgeon says that my abdomen is a mess of adhesions, said the same after lap gallbladder removal in '04.

    Some women get my result and some women don't. Docs/surgeons won't say this but it seems like removing the uterus & leaving one or both ovaries is a recipe for continued agony. I might be waaay off on that. When they leave ovaries in, another surgery seems to be needed in a few years to remove them. You've got adhesions already and you'll get more from each surgery so have a clear conversation with your specialist and/or surgeon.

  • luluwho
    luluwho esther23254

    Posted

    i understand how you feel,, if you do that do not mean it will not come back, unfortunately i have stage 4 as well as have it in my lung... we cant forget i can grown out side the uterus

    i hope this help you

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