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Endometriosis

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  • I really need someone’s help 😢💔

    Long story short I live in the UK. I had prostap (lupron) injections from July-September. I had my diagnostic lap in August and they fitted the Mirena during the procedure. I’ve been fighting to have it out since week one and I have book myself in for the 28th to have it removed. I bled heavily for 8...

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  • Endometriosis... Need help...!!

    Hi, I'm 26 years old, married since 1.5 years. I have endometriotic cyst. Trying to get pregnant. Last month I had a severe pain in my left lower abdomen, and I consulted my gynecologist. Then I was under gone an ultrasound scanning. The result was  "3.4 CMS isoechoic changes in the...

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  • Please please help

    Hi guys,  I really need some insight and advice. For the past almost 2 years, I've been having anal pain. Its sharp, it happens randomly while I'm doing whatever. I could be laying down, sitting, walking and it shoots up to lower abdomen (around the ovaries and strikes). It has been so...

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  • I've been reading all of your blogs

    I'm 47 and I had a full hysterectomy about 10 years ago or so. And like many of you I am now experiencing a sharp pain in my right lower abdominal area. It at times shoots right thru to my lower back and down the right top leg. I'm in so much pain. At times it hurts to function at full capacity....

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  • Long term management endometriosis?

    Hi I had a laproscopy 10 weeks ago to remove an 8.5 cm complex cyst and advanced endonetriosis ( grade 3 and no adhesions). I thought the surgery would be the fix. My soecialist expkained that endo. is a long term disease and requires long term management. The problem is I took Visanne tablets as per...

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  • Recurring endometriosis and cysts

    I have had 3 laparoscopies in the past 8 months all for endometriosis and cysts. The first 2 surgeries were a waste of time and the third one I had 3 weeks ago found that I also had appendicitis and severe adhesions. It looks like I may need a fourth surgery to see what else is going on. I’m on medications...

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  • endometriosis after total hysterectomy :(

    hi everyone, i had a total hysterectomy in june 2010 due to endometriosis. i was put on climavil hrt patches after which caused headaches and pains and i was then changed to livial approx a year ago but for the last 2 to 3 months i have started to experience the abdom pains, back pains, leg aches, exhaustion,...

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  • endo after hysterectomy

    can anybody help? I had a total hysterectomy 4 years ago. around 18months ago the pain in my back started again. it's now got to the point of pain down my legs and its seriously affecting my life!! tried every painkiller nothing works. I have a hospital appt end of this month to see gyni....

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  • facebook group

    This is a message from a group that I am a member. The group wants to create a list of names as a resource. UK ladies and not only, I was diagnosed with endometriosis, cysts & fibroids and I struggled to find an affordable private hospital in uk and a specialist on NHS so I went to Ecuador and had...

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  • Bleeding after one ovary removed

    I had endometriosis for several years which had encased my entire right ovary and started to attach to my appendix. On December 2 2016 I had my right ovary and appendix removed. Dr stated that he did check my left side and there was no signs of endometriosis cells on that side. I have been on continuous...

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  • Does this sound like Endo??!?

    So I am on birth control and should only have a period every 3 months BUT I spot throughout every week. I have constant pain in my lower back/tailbone that cannot be relieve by massage and 800mg of anti inflammatory meds doesn't touch! I also have pain in my ovary area. I am also on medication for...

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  • Help... bad pain after surgery

    I had a laparoscopy and a coil put in on Tuesday. The wound pain is getting better but i have really bad cramps abd sharp pains in my stomach and vagina. Should I go and get checked out? I called the ward and they said a&e if they dont get better.

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  • weirdest symptoms ever- could they be endo?

    OK. I'm 35, no children, and have been on the pill since I was 17. So I've had always had this weird heaviness feeling a couple weeks before my period comes- it's always on the left side, where my inner thigh meets my crotch and it radiates along that crease to my butt- and the feeling also...

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  • Chronic pain after surgerical removal of endometriosis

    Hi anyone and everyone I have never been a part of a forum but am at the end of my tether both physically and emotionally.  I am 24 and have 5 surgeries within 2 years to remove stage 4 severe endo, one of which resulted in the removal of my left ovary.  After all of this, I still suffer...

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  • Endo is back after 1 year :(

    I have been an active member here when I was first diagnosed with endometriosis mid of last year and since then I have been on 2 kinds of birth control pills. I had bilateral cysts last year and went through the c-section surgery. Today i went for a follow up check after the last check 5 months ago when...

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  • Should it be my period? Am confused

    Hallo everyone, It is 3 months after my laparoscopy. I saw my period on the 20th of September, and after 19 days, I had intercourse with my Mann with no pains and I started bleeding the next day which happens to be 20thdays after my last period. 3days now am still bleeding.... Is thus another menstruation...

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  • Pulsating

    Hi just wondered if anyone suffers from pulsations around their body, like a strong heartbeat and something rushing through your blood? Or palpitations, particularly at the time of the month or ovulation? 

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  • Has anyone tried to shrink endo cysts naturally?

    Dear endo buddies, i have 2 week and a half till my next check at the hospital after finding out that i now have a 5 cm cyst on my right ovary which i believe is the endo again and I am wondering if any of you have tried a natural way through diet to help shrink the cyst. I am trying to go on a radical...

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  • Bleeding after intercourse?

    Hi, So, I know that pain during intercourse can be associated with endo. But can endo be associated with bleeding after intercourse? Has anyone else experienced this? I've been having this issue. Not every time, but enough to worry. And its really dark, thick and clotty. Of course its followed...

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  • Discharge under Birth control pill

    Hi all, I have been taking a combination birth control pill for about 2 months now and it has been working fine but recently i noticed that i have been having dark discharge normally during the day when i am out and about. I take the pill daily at night so i wake up with very little discharge but it...

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  • Just diagnosed with endometriosis. No symptoms. Confused

    Had anyone been diagnosed with endometriosis but didn't feel the pain and symptoms that are often read about online???? I was diagnosed with endometriosis a few months ago and just recently had surgery to get a cyst removed from an ovary. However I never expletives any of the pain/symptons prior...

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  • Diagnosed with an endometrioma

    Hello all. I'm 22 years old and got diagnosed with endometriosis a few weeks ago. I began having painful periods from April of this year, but before that I never did. Then in May I was in the most pain I had ever been in, but dismissed it. Then end of May and June I got my period again but was pain...

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  • I think I have endometriosis

    I have been suffering with right pelvic pain for about 10 years. I am 28 now and I have lost count at the amount of times I have been in and out of my gp with pain in that area. My doctor keeps telling me that I have ibs but I am not convinced at all. The pain has got a lot worse over the years, almost...

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  • Prostap and Mirena advice please

    So back in July I got my first prostap injection.. things were great. 5 weeks ago I had a laparoscopy and a Mirena fitted. Today I had my last prostap injection. She put it in my tummy not my leg were I've had it the last 2 times. As you know if you have the injections is a powder then a little door...

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  • Visanne (dienogest)-progesterone

    Hi everyone I had a laproscopy 4 weeks ago to remove an 8 cm complex cyst on one ovary and a very small cyst on the other ovary but I also had grade 3 endometriosis everywhere which was also removed. Today, my specialist gave me a prescription for Visanne (2mg progesterone only pill) as he explained...

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  • Chest endo

    Hi really hoping someone can help. I've had stage 4 recto-vaginal endometriosis which was removed in 2012. I've since gone on to have 2 two children and since having the first I've noticed a shortness  breath which has gradually got worse over the 3 years.  I have an almost constant...

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  • Please help

    So I've been having some strange symptoms my dr really has no idea what's going on. Bleeding from back passage had colonoscopy all clear. Strange vaginal sensations always worse just before period, going to the toilet all the time and feeling of needing to go again straight after, this is always...

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  • No idea what I'm dealing with?

    Hi So I've been having some strange symptoms my dr really has no idea what's going on. Bleeding from back passage had colonoscopy all clear. Strange vaginal sensations always worse just before period, going to the toilet all the time and feeling of needing to go again straight after, this is...

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  • Can anyone relate to all of these symptoms? Help!

    Hi, first off thank you for taking the time to read this. I'm not entirely sure I'm in the right forum but since my doctor thinks I am "fine" I am doing research myself and trying to piece together pieces of my health! Lately, I'm thinking some of my symptoms match with those of...

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  • Continuous birth control for endometriosis? Endo on the liver?

    Hello all, I seen my doctor last week, and he (unofficially) diagnosed me with endometriosis. Although he has not yet performed a laparoscopy to confirm this, he is pretty confident its endo. He based this off my symptoms and the fact that every woman in my family has had endo. Additionally, all...

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