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Endometriosis

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  • YOUR Endometriosis Story🌸

    Hey Ladies!!🌼 I’m wondering what your symptoms and signs of endometriosis were before and/or after diagnosis and what medications, treatments, and procedures you tried. I’d like to hear your story to offer hope and wisdom for all the women who suffer from this debilitating disease. I’ve had endo...

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  • Please someone help

    . About 4/5 years ago I had suspected Endo, the gynecologist wasn't convinced, disbite having all the symptoms. However my Dr treated me with Zoldex injection which worked a treat. After six months on them I was nearly pain free. The next year was really good normal periods manageable pain ext....

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  • Please HELP. Someone anyone

    I'm getting sick dizzy from going around and around in circles. About 4/5 years ago I had suspected Endo, the gynecologist wasn't convinced, disbite having all the symptoms. However my Dr treated me with Zoldex injection which worked a treat. After six months on them I was nearly pain free....

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  • Pain

    Hi guys I’ve posted once before I have endo and just having my first period since a miscarriage I get pain every time with my period in my shoulders any one else have this and what do you do for it to ease its so so painfull help? 

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  • doctor facebook page and group

    Hi ladies, if you are on fb and are looking after a support group, is a nice small group with lots of info. You will have to answer the questions before they approve your request.  Endometriosis, fibroids, cysts and infertility treatment support group UK And if you are after medical advice, then...

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  • Endometriosis Infertility Treatment Success Stories

    Hello ! I'm yingleton from canada.I was diagnosed with complex typical hyperplasia endometriosis,which made me fail to conceive for many times. I was on megestrol and IUD treatment and spread more. I was wanting to get pregnant but according to Obgyn last option is to remove my uterus, I would...

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  • I have endo and keeps having misscariges

    Hi guys I’m new to this I’m just 25 and was diagnosed at 16 with endometriosis so far I have had 2 surgery’s one to explore and one to get rid of some I’ve caught pregnant many times now and keep misscarrying anyone else going through the same? What can I do to prevent this? 

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  • Pain below ribs - endometriosis???

    been on the pill since around April 2017 after I went to a&e with severe pain on the left side as well as passing out which turned out to be an 5cm ovarian cyst I was given morphine and stayed in hospital until the Monday when I could get scans to see the size of it. No further treatment was given...

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  • endometriosis after total hysterectomy :(

    hi everyone, i had a total hysterectomy in june 2010 due to endometriosis. i was put on climavil hrt patches after which caused headaches and pains and i was then changed to livial approx a year ago but for the last 2 to 3 months i have started to experience the abdom pains, back pains, leg aches, exhaustion,...

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  • confused

    I have seen my Gyn 3 times this week and I’m the ER twice with pelvic and lower back pain.  I have been taking seasonique for 3 years for debilitating menstral flow. I have had no trouble with pain up until now and i am severally I’ll. Can’t get out of bed. Function as a human being. Gyn suggested...

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  • Which treatment is better for endometriosis

    I have been having vert painful periods for a decade. The pain starts a week before and stays until day 4 of the period. I have finally found two doctors who took my pain seriously and told me I may have endometriosis. One is suggesting Zoladex injections while the other one wants to do a laparoscopy....

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  • Should I ask/demand a laparoscopy?

    Ever since January 2017 my husband and I decided to try for kids. I thought this would happen fast because it had for my mom, sisters, and most of my cousins. Getting off of birth control started horrid pelvic pain for me. Ever since April 2017 my pelvic pain reached another level. I learned I had a...

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  • Endometriosis???

    Hi, this is the first time I’ve written on a forum but needed some advice if anyone has been through the same thing. I came off the pill 2 years ago as I was having some problems, ever since then so many different symptoms have started. I have had the most painful period pains but only for 2 days or...

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  • Endo? Polyps? Any ideas?

    Hi, I'm a 29 year old, never been pregnant female and im at my wits end in need of opinions... Ive been having pelvic pain a number of years. Always a week or so before my period woukd start; I'd be be in crippling pain for 4-5 nights. I saw a gynecologist once who said she suspected endo. She...

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  • Endometriosis do you also have upper abdominal pain ?

    I have had abdominal pain for 2 months now both upper and lower. I have had every test possible even with my gi doc. I have had ct with contrast ct without upper gi endoscopy, MRI with contrast bloodwork all comes back normal. I finally go to my gyno because the one thing that did show up was cysts and...

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  • Endometriosis, IBS, IC, and acne

    For the past months, I've had a long list of symptoms, and just this past Friday was diagnosed with Endo, IBS, IC, and a mild case of vulvodynia (she suspects from biking). I am undergoing physical therapy for the vulvodynia, have been prescribed a medicine for the IBS, and my doctor also gave me...

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  • What would you do?

    Hey guys.  Finally got into see the second gynaecologist. He was surprised by what I had been told earlier (have babies!) and after chatting with me for a while and doing examinations and looking at ultrasounds, he wants me to have a laparoscopy done. He believes there is a 40% chance it is endometriosis...

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  • laparoscopy to diagnose endometriosis firs time please help

    Hi everyone I am 21 and am getting a laparoscopy to diagnose endometriosis. Honestly I am terrified. I wondered if anyone could put my mind at ease and also give me some tips of things to take to the hospital that I might need but the hospital don't tell you about. can anyone also let me know about...

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  • Insensitive doctors. Feeling very hurt after Dr appt.

    I'm feeling really hurt. I got diagnosed with endometriosis last summer. My primary doctor who's very understanding prescribed me low dose narcotic painkillers to use as needed since my pain is debilitating at times (I work full time and go to classes full time) so I really can't deal with...

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  • Endometriosis sufferer

    I have been taking visanne since the 7th of Feb this year I started taking it the day I got my period and I haven’t had one since but my problem is I’m getting all the pains like I’m getting one but nothing and my boobs are like rocks so sore to touch.

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  • endometriosis after hysterectomy-please help

    Dear Friends, I had a hysterectomy on Sept. 1st. due to a fibroid. The pathology reported endometriosis. I have had severe back and pelvic pain every since. My belly is so distended that I look 9 months pregnant. My surgeon and bladder specialist prescribed me with Lupron. I received the shot about a...

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  • Laparoscopy to Diagnose Possible Endo

    Hi all, I have a laparoscopic surgery scheduled for next week, 3/21 to hopefully diagnose the source of my ongoing pelvic pain. I was wondering what to expect of the surgery and the recovery. I know it varies from person to person but I have no idea what to expect. My birthday is April 7th and I have...

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  • Diagnosis

    Can anyone tell me how to get my doctors to listen to me? I am convinced that I have endometriosis but no doctor will refer me or take me seriously. I have been in pain now for about 6 years and codeine doesn’t take it away. Any help will be appreciated 😊

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  • Does the Mirena Coil help with Endometriosis?

    Last week at my Gynae appointment, where I had a cervical polyp removed, I was offered the Mirena coil for Endometriosis. I'm struggling to make a decision. If it would help with the pain I would love to have it. However, I am very anxious about having it placed in my uterus. I had a coil fitted...

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  • Laparoscopic surgery

    Hi! I am having laparoscopic surgery next Friday and for some reason I am so nervous. I’ve had really bad abdominal pain both upper and lower and had all kinds of Tests done from ct scans to mris to even a bunch of gi work ups and everything comes back fine. I have a lot of symptoms to have endometriosis...

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  • Doc wont discuss possible endo

    Hi all, for the last six years after complicated birth of daughter and three miscarriages since and suffering constant pain through out my cycles. with bad depression, sleeping all the time and joint pain and shortness of breath i am constantly back and forth to gp but all they seem to say is the only...

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  • Should I seek endometriosis specialist?

    I have had discomfort and ovarian cysts off and on for the past 10 years. I have been on birth control during this time to supress any growth of endometrium but I have never had a proper diagnosis (lap surgery in 09 did not identify endometrium). My obgyn suspects endometrisosis based on symptoms and...

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  • Mini pill

    Anyone take mini pill to help with endo symtoms would like your advice if what pill to try 

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  • newly diagnosed endo patient

    hi all, I've been diagnosed with endo about a month ago by my gyne after several ultra sounds and blood tests were done, Ive joined this forum to be educated and if possible contribute from my experiences to future posts however, I'd like to know has anyone ever experienced bleeding while on...

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  • Next option

    Last June, 2017, I decided I was not going to have any more babies, I already have 2 beautiful girls. I scheduled a tubal ligation. I told the Dr. that if for some reason she saw something in there that wasn't right, to go ahead and do what she needed to do. She just looked at me oddly and told me...

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