47, Robotic Prostatectomy April 26 @ Mayo
Posted , 16 users are following.
Hi everyone,
I'm barely 47, in fact, got the cancer diagnosis for my birthday. I'm in excellent shape, great sex life. Gleason was 3+3=6, PSA 7.2, cancer cells found in just 1 core (55% of it) from the biopsy. Surgeon is nearly certain that it is contained in the prostate. I am scheduled for surgery at the Rochester mayo clinic April 26th. Needless to say I'm pretty nervous about it after reading some of the posts. 1 person mentioned his penis retracting into his body? What is this all about? I think I missed that part of the discussion. Sounds like about a year before sex is really possible again. And incontinence issues... Wearing adult diapers and/or a pad? I heard the surgeon loud and clear about that and I know it isn't going to be enjoyable in the least.
Give me some good news somebody...
0 likes, 23 replies
n-mac Aaron90245
Posted
Hi Aaron,
If it were me 1 year ago with your stats & numbers, I'd today be on active surveillance (AS) under the care of Drs. Ehdaie or Coleman at MSKCC, New York, NY, and I still be capable of making a good splash .
My PSA was only 4.4, but the Gleason was 4+3. RALRP was my best option, and all things considered, except for no ejaculate my outcome has been most excellent so far (including 100% dry from moment catheter was removed). If you can swing it, get yourself to MSKCC in NYC. See Drs. Ehdaie and Coleman.
My main point here is assuming the stats you mention constitute all of the there-there, then your situation does not sound to me to be of the highest urgency. Take your time, seek out testing and diagnoses from the best you can find (IMO MSKCC is one of them), carefully consider, then decide as you go. In addition, prayer is IMO a huge factor.
Wishing you the very best,
n-mac.
charles61038 Aaron90245
Posted
The best of luck to you...
52331 Aaron90245
Posted
Ask Doc why he did not do this and also ask him how many RP he has on his belt? Also ask him to approve a 3t MR and gather all this data and now you can make an educated decision. Based on what you shared with us it appears your a perfect candidate for AS. Your antennas need to be up next time you visit. God speed.
richard98806 Aaron90245
Posted
Take your time. Don't let this Dr rush to surgery. A few of the previous blogs laid out the numerous steps needed to happen BEFORE any surgery or other major treatment occurs.
I'm post RARP almost 1 yr post op, but I am 68 and had 10 of 12 samples with cancer and Prolaris testing intermediate range for aggressiveness.
Researching isn't easy but you will beglad.
GOOD NEWS: YOU HAVE TIME
mosski Aaron90245
Posted
There is clearly a theme in these replies - - don't rush into treatment!!! You sound like a perfect candidate for AS. It seems harsh, but the fellow who said your doctor is nuts is spot on.
You have months and probably years before to majority of the fellows responding to your post would recommend treatment.
Consult with an oncologist, not a uroligist/surgeon or Radiation Oncologist -- they have personal motivation/biases to steer you toward surgery or radiation. An oncologist has no `skin in the game,` so to speak.
Take your time! You've got PLENTY of it. ...
Good luck.
mosski
Posted
brock75394 Aaron90245
Posted
Mine is a bit of a horror story compared to others who have been through the procedure with minimal problems but if I had the option, I would have passed on all of it.
barney34567 Aaron90245
Posted
I cannot agree more with those who wrote that
3+3 is not cancer;
that you need not treat it; and
that you should obtain a second or third opinions.
Mosski is so right when he writes "cancel the surgery".
3+3 need not be removed.
There is a very good chance that you'll have 3+3 for many years and that it will
not develop further. And that it will not cause you any problems.