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hi everyone! first off, you guys are amazing and i wish every one of you the best. this illness is very scary and debilitating to say the least. i'll do my best to summarize everything without getting into too much details because it can take forever.
i got sick end of July 2019th, so i'm 5 months in. I'm a 33 y.o. female. had a baby not that long ago and was under a lot of stress (i was also working out a lot and joggling other things). my initial symptoms were: sore throat, extreme fatigue, weakness (especially in my upper body), dizziness/off balance/feeling that you're floating or walking funny, muscles aches, neck pain, brain fog/feeling of complete detachment from the outside world, anxiety.
i just found out i had ebv, and the reason why it took so long to diagnose ebv in my case is because i didnt first present with typical mono symptoms. i didnt have a fever, my throat still looked normal although red and irritated. my main symptoms were fatigue, dizziness and all over achiness. a had a couple episodes with night sweats, but i thought its just hormonal ( i was breasfeeding at tha time). i saw many many specialists and was very much confused because even though everyone told me i'm fine, i though i was slowly dying. at least now i know i'm not crazy, i'm definitely not dying, and i'm not alone, so it's a huge relief.
when i got sick, i felt at 30% of my former self, now i feel close to 65%, sometimes even 70%. i wish i got diagnosed earlier, but what's done is done. many of my initial symptoms diminished (muscle aches and anxiety), but fatigue/dizziness/brain fog are still there. dizziness drives me nuts the most! prior to ebv, i used to walk a lot (at least 7-8 miles a day), which i really enjoyed, but now it's very hard to enjoy walking.
things i do to speed up recovery: *rest, *good night sleep (epsom salt bath + melatonin before bedtime), *anti-inflammatory diet (fruits, veggies, some protein; foods higher in lysine/lower in arginine), *supplements (multivitamin, vit c, lysine, monolaurin, nac, something for liver support), *drink lots of fluids!
i don't exercise now because every time i do, i feel like it greatly slows down my recovery. it' very tempting for me to get active on the days when i feel better, but i feel it's not worth it. i'd rather take things slow and once i feel my situation is more stabilized, i will reintroduce exercising. as of right now, my recovery is very zig-zaggy. two steps forward, one step back, but i'm hopeful.
ps. on a more philosophical note, i do think that no illness is thrown at you by to kill you. it's something you go through in order to learn something and become better and stronger. before i got sick, i used to either live in the past or in the future, but never in a moment. now, i cherish every moment of the day when i feel good because i don't know how i'm gonna feel tomorrow. NOW is all we have. i used to try to control everything in my life, now i understand that you have a very limited control over your life. sometimes things just happen, and it's up to us to do our best even when we feel at our worst.
this forum gave me life! without you guys i would feel completely lost. looking forward to reading more recovery stories in 2020. happy holidays to you and your families! xoxo
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