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5 months in, relapse?

Posted , 9 users are following.

Guest
Guest

Hi all,

It’s been a while since I’ve posted on here - mostly because my anxiety lessened hearing others going through the same struggle, so thank you for that.

I also saw a slight upswing in my symptoms and thought I’d turned a corner. The last two weeks though, the virus has put me squarely in my place and I feel like I’m in the worst Groundhog Day ever. Almost all of my original symptoms have come back - blurred vision, breathlessness, unexpected bouts of being overwhelmingly tired - along with horrible cold symptoms, sinus and ear pain, neck and jaw pain, congestion, GI upset, etc. 

This is first so unbelievably depressing. I can’t wrap my head around feeling this way again or the idea of when I’ll get better.

What’s even more frustrating is that I reached out to my primary care doc, and she said it sounds like I caught a virus, as mono doesn’t relapse. She literally said to me, “that’s not how mono works, it doesn’t go away and come back.” This is contrary to everything I’ve read online and heard from folks on this forum.

She wants me to come in for an office visit on Monday to be seen for a virus or possible sinus infection (!!!!!!) and all I can think is she either doesn’t get it and won’t be able to help with the mono, or I’m going to die of sepsis from having this mix of viral/sinus infections.  Either way, my odds aren’t feeling great and I just feel SOOOOOOOOOOOOOO FRUSTRATED. Sooooooo very very frustrated. 

Also, as an aside, I bought this tea sampler pack - it had echinacea and some other “breath easy” etc type ones, and I’m too scared to drink them because of all the crazy warnings about people allergic to daisys or with liver problems. I know that sounds silly but I don’t trust my body to drink tea right now. Sigh. 

0 likes, 21 replies

21 Replies

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  • Mono_too
    Mono_too Guest

    Posted

    The same thing happened to me, but after a while it went away and true recovery began.

    I think doctors dont understand this virus at all. Good thing we have each other, this forum has helped more than the doctor ever could.

    • craig07920
      craig07920 Mono_too

      Posted

      Definitey Mono too, the forum has helped me too just been on it and getting to chat and exchange encouraging messages with good people like you. Hoping you and your family are doing better at the moment.

      Craig

    • Mono_too
      Mono_too craig07920

      Posted

      Hi Craig,

      Just hoping and praying my daughter turns the corner soon, Granddaughter is doing well, two down and one to go. 

      How is your back? I hope you are feeling better.

  • patsy20827
    patsy20827 Guest

    Posted

    I was diagnosed back in August 2017 with mono while doctoring for gallbladder.    After my surgery I started picking up but mid December I spent a day making cookies with the family and pushed myself too far.   I never came back but the mono hit me hard again.   My Dr said it returned so at least Dr agrees that it can relapse.   For me it seems to come and go.   The second time around was worse.   Possibly because I was run down from the first time around or from the length of the visus.    If you aren't happy with your Dr you can always ask for a second opinion.    Hang in there.    

    • Guest
      Guest patsy20827

      Posted

      I’m sorry to hear you’ve been struggling Patsy but thanks for sharing that your doctor agrees it can come and go. Really baffling to me that doctors don’t know much about this virus. Kind of makes me lose confidence in doctors all around!
  • kris0633
    kris0633 Guest

    Posted

    Currently at Month 9 of Mono and having my 2nd relapse. At my 1st relapse (when I had hoped I just had Influenza) the doctor said the Mono was reactivating again. I started crying when she told me it was the Mono again.

    Now, with this 2nd relapse, I came here from some reassurance. I was feeling pretty down as if I would never kick this awful virus. But, the forum really picked up my spirits. It is very reassuring.

    I see you posted this two months ago. Are you feeling better now?

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