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5 months of hell and still no solution

Posted , 4 users are following.

sam00437
sam00437

I posted here back in february after suffering a severe attack of vertigo.. This was the first time it had happened and I thought I was having a heart attack.

I went through all of the tests I've had an ECG, Echoe, blood tests, lung xray... Nothing in the brain yet though...

My doctor told me it was Vertigo and just said it would go away. I went back two months later still suffering from constant diziness and episodic attacks of severe diziness that would feel like the floor had suddenly been removed from underneath me. She said the same thing and said it would be gone soon.

After a while I started to feel I was getting back on track. A few weeks ago I started to notice ringing in my left ear (tittinus) at night. Then i noticed it in the day and then I had the vertifo sensation... Since then I've been dizzy non stop. Constant cloudy feeling in my head, near impossible to concentrate, ringing in my left ear constant.

I've had no hearing loss that I can tell of.

Could this be Menieres? Or something else? And when or will I ever be able to regain some sort of normality.

I'm a 27 year old male. I have had type 1 diabetes for 11 years. And these last 5 months have been so taxing that I'm becoming depressed... I have no social life any more... And I am self employed so earning money is becoming harder and harder due to inability to work....

I have an ENT appointment in three weeks... 

Can anyone shed some light?

Thanks for reading. 

Sam

0 likes, 4 replies

4 Replies

  • christine42810
    christine42810 sam00437

    Posted

    Sounds like vestibular neuritis to me. You need to see a specialist neuro otologist, who can run the relevant tests for this condition. It won't show up in blood tests or any of the normal health testing,  You can find a lot of info about this on the internet, including some retraining the vestibular system, exercises to assist you,  but don't be fooled into believing that the exercises will solve the problem quickly. They won't, you have to persevere, sometimes for a very very long time, also walk as much as you can and move your head from side to side as if window shopping. I find this one the best of he lot as you have to use all your balance system when walking,  

    live been suffering from this for a while now, after the usual vertigo onset. Like you I was told it would go away, but I kept seeing an answer, and found it eventually,

    don't despaired it will get better, bit by bit, and you'll have good days and bad days, and you can learn how to deal with it.

    take care d let us know how you go. Christine

    • sam00437
      sam00437 christine42810

      Posted

      Hi Christine,

      Thank you for taking the time to reply to me... 

      I don't find that tilting my head in anyway or anything causes any more onsets or makes the diziness worse... Is this the same for you? 

      DO you also have tittinus?

      My heart sank when you mentioned a neuro otologist becasue I know that means I will have to be waiting for a long time... It's taken 5/6 months just to get a recomendation for the ENT and no doubt they won't send me anywhere else quickly.

      How long have you been suffering?

    • marlene21102
      marlene21102 sam00437

      Posted

      Hi Sam your not alone ,I've had tinnitus for 18 yrs now ,and Mdds ( mal -de Debarquement) syndrome now for 4 years ,

        With tinnitus ,you need to get checked out by ENT ,maybe get an MRI ,this will depend on a hearing test ENT will get you to have .Depends on your area if in UK how long waiting list is .Tinnitus there is no cure to date ,regardless what your told .There has been trials to a drug  which looks promising .thishas found to benifit ones who's had tinnitus between 6 to 18 months .There is a site I can put you on to ,which answers a lot of questions regarding tinnitus ,best site I've found ,I will pm you it ,well worth joining .

          With the balance ,best to stay on the move ,exercise ,make your eyes ,ears and brain work at balancing you up .Plenty of exercises out there ,there's a foundation here in UK that can give you good advice .Its a miserable condition ,along with tinnitus .

  • deb39563
    deb39563 sam00437

    Posted

    Hi I too have the same you I have had balance issues for years last year got full on vertigo hospital I went thought I was having a stroke or something my head weighed a ton so dizzy vomiting it was awful scary stuff any way doc said I had bppv I went and had the epsey manuer at physico therapist and gave me balance excercises to do twice a day which really seem to help slowly patients ot takes a long time to feel better still have bad days but more good days I also have tinnitus but I hear my heart beat all the time plus I feel like I am swaying inside my body this is hard to get used had all tests they are doctor has no answer for me so on my own
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