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I feel like I might as well update my info and I feel a bit of a rant coming on too. It's been 5 months since things started to go wrong for me and I don't seem to be getting better.
The medicine I'm currently on is as follows:
Prednisolone 5mg (currently on 5 tablets a day tapering down by 1 every week)
Omeprazole 40mg (2 a day)
Mezavant XL 1200mg (4 a day)
Iron Supplement tablet (2 a day)
Calcium supplement (2 a day)
Basically over the last 5 months I have been in hospital twice, had the worst Christmas ever, gone to my GP's office about 12 times (rarely seen the same doctor twice over there) been given a whole load of conflicting information by every doctor who has seen to me and also the medication I've been given has done hardly anything for me.
My Ulcerative Colitis has eased after almost 4 months. I haven't passed blood with my stools now for about 3 weeks and I have been experiencing far less abdominal cramping. Also I've not been tired and weak everyday like I was back in November. However I am still passing loose stools and going on average 4-6 times a day.
In 2 weeks I'm going for a Colonoscopy and a Gastroscopy which I am highly dreading. But before that I am seeing a Gastro Specialist at my local hospital this Tuesday. I have no idea what he's going to say to me or even really what the point of the session is, but Lord knows I will have a thing or 2 to say to him. I have developed a rather high level of resentment towards our dear healhtcare services. I really do appreciate that the NHS is free, however to be honest I feel like I have been left to suffer for months.
I'm really starting to worry about what's wrong with me and I'm doubting my doctor's abilities to treat me. I have been told a range of different things as to what is wrong with me over the last 5 months. I've not once been given a straight answer nor been given the same answer twice. For example I still don't know whether I have this damn H.Pylori infection which would explain my chronic stomach aches that I've had everyday now for almost 5 months. I was told in the beginning it was Gastritis after NO tests were done on me. Then I was told it COULD be an ulcer, then I was told no it wasn't. Then later I had a bit of a panic to my doctor after suffering for a couple weeks.
I started sprouting fears of stomach cancer, pancreatic cancer, gallbladder problems, atrophic gastritis and crohn's disease. After this little episode I displayed my doctor actually had the nerve to tell me that it was ALL down to my anxiety, and he tried prescribing me antidepressants. I feel like I was ignored and all my symptoms were pushed away to the side and have been dismissed.
The last time I saw a doctor which was about 3 weeks ago I pushed as to why my stomach has hurt for months and he told me that it was my ulcerative colitis. I'm sorry but that's bullsh*t. Ulcerative Colitis doesn't give people chronic stomach aches. He told me that once my Colitis calms down then my stomach will feel better too. He might as well have told me to just go home and be happy. He said that the steroid treatment I'm on can give me stomach aches, which is just such bullsh*t. Why can't I be given something to relieve and heal my stomach aches..????
One doctor at hospital told me that I've developed an ulcer, then the next doctor told me that that was wrong. I don't know what to think anymore. The infamous H.Pylori bacteria has been mentioned a number of times to me, but not once has any doctor told me if I have it or not, which would nicely clear up the reason as to why my stomach has been hurting. If I DO have it I will be pissed off so much that its been left to fester for months inside me.
I'm concerned that because I'm 22 the doctor's haven't taken my symptoms seriously and they've missed something or things have gotten worse as a result. I hate my life right now. I have been basically house ridden for 5 months apart from being in hospital of course.
What should I do..? Anyone...? What should I say to this specialist that I'm seeing on Tuesday..? Does anyone have any idea what the Hell is wrong with me..? Please help me someone I can't take much longer of this, I am so depressed from it all.
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