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My son is 5 he was diagnosed with HSP on 31st October 2014 it started with a rash to his feet then it spread to legs,bum,hips,arms,hands,face and ears. They became clustered and purple and look terrible he gets swollen ankles, feet, knees, hands. He also had swollen testickles and a swollen penis his blood tests and water samples have been ok. He had an ear infection just last week he woke up and his head was swollen I contacted the hospital to be told it is no it HSP related contact gp so I made an appointment to be told off my gp it was probably his jaw swelling there for HSP related. we had a follow up appointment Friday gone and his appointment was for 3pm we did not see a doctor till 5pm having to wait in the waiting room for 2 hours made my sons feet swell double there size and he was crying it still made no difference they made him wait. They put him on a ward and they said they were not happy at sending him home because of this we told them it was because of waiting and we elevate his legs at home then a nurse came and took a swab of his toe instead of his penis my husband and I just looked at each other in shock then we had to tell her what she was doing wrong. I feel like I can't help him its one thing after another I give him paracetamol and ibuprofen to help him and lots of TLC but I feel useless. Any advice would be appreciated
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