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My son is 5, almost 6 years old and has been dealing with non stop flares of eczema since he was 6 months old. Literally his skin has never been 100% since the first flare. Even on "good days" he still looks awful.
We have tried everything. Every kind of lotion recommended by 3 different dermatologists, homemade lotion with cococut oil, shea butter, and 4 different essential oils, vaseline, aquaphor, tons of various prescription topical cremes and ointments, both steroid based and steroid free, clariten, zyrtec, hydroxyzine, benedryl etc. He has been tested for both food and contact allergies and we have removed as much as possible. He is on probiotics and vitamins, fish oil and iron. We do regular bleach bathes, and wet wraps and often times he looks worse after a wet wrap!
We even ripped up every fiber of carpet from out home and replaced with vinyl flooring to eliminate the dust mite allergy.
The only thing he has ever been given that gives him any relief is oral steroids but he can't be on those long term.
And now here recently, anytime we put any lotion on him, doesn't matter what kind, he screams out in pain because it burns and begs me to stop with tears in his eyes.
How can I justify to my son that I am helping him when to him all I am doing is hurting him?
His break out spots are on the tops of his feet, his outer ankles, his shins, the back of his knees which currently look like they've burned they are so raw, his fingers, his wrists, his armpits, his neck, his chin and eyes, and his scalp. Basically his entire body is lit up like a christmas tree. 3 different dermatologists....nothing changes. They just prescribe the same stuff in a stronger strength and reiterate doing the same thing we've been doing for 4.5 years.
Has anyone been in this same boat? Is there something I am missing? I am at a loss. I am desperate to find some answers. My baby is suffering. Is there a special place or doctor out there I can travel to?
Thanks for any info, and thank for listening to my rant.
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