5 year old with uncontrollable eczema. Nothing is working! Any advice welcome.

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My son is 5, almost 6 years old and has been dealing with non stop flares of eczema since he was 6 months old. Literally his skin has never been 100% since the first flare. Even on "good days" he still looks awful. 

We have tried everything. Every kind of lotion recommended by 3 different dermatologists, homemade lotion with cococut oil, shea butter, and 4 different essential oils, vaseline, aquaphor, tons of various prescription topical cremes and ointments, both steroid based and steroid free, clariten, zyrtec, hydroxyzine, benedryl etc. He has been tested for both food and contact allergies and we have removed as much as possible. He is on probiotics and vitamins, fish oil and iron. We do regular bleach bathes, and wet wraps and often times he looks worse after a wet wrap! 

We even ripped up every fiber of carpet from out home and replaced with vinyl flooring to eliminate the dust mite allergy.

The only thing he has ever been given that gives him any relief is oral steroids but he can't be on those long term. 

And now here recently, anytime we put any lotion on him, doesn't matter what kind, he screams out in pain because it burns and begs me to stop with tears in his eyes. 

How can I justify to my son that I am helping him when to him all I am doing is hurting him? 

His break out spots are on the tops of his feet, his outer ankles, his shins, the back of his knees which currently look like they've burned they are so raw, his fingers, his wrists, his armpits, his neck, his chin and eyes, and his scalp. Basically his entire body is lit up like a christmas tree. 3 different dermatologists....nothing changes. They just prescribe the same stuff in a stronger strength and reiterate doing the same thing we've been doing for 4.5 years.

Has anyone been in this same boat? Is there something I am missing? I am at a loss. I am desperate to find some answers. My baby is suffering. Is there a special place or doctor out there I can travel to? sad

Thanks for any info, and thank for listening to my rant. 

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6 Replies

  • Posted

    Hi kenimowy,

    I'm sorry to hear you are going through this painful ordeal with your son. And I'm even more sorry to hear that doctors cannot seem to be helpful, despite the fact that there is growing scientific evidence that a very common bacteria may be the main culprit behind the disease. Simply type "Staph and Eczema" in your search engine, to read the results modern research has to offer on eczema.

    So you may want to have your son's skin tested for Staph colonization, if your doctors allow this. Trouble is, even if they do and confirm that is the case, they may only be in a position to prescribe a short-term dose of conventional antibiotics, and the infection will likely return soon afterwards, because most strains of Staph have now become resistant to conventional antibiotics.

    So that would leave you with the somewhat risky option of having him try plant-extract based antibiotics, which are not officially approved by mainstream medicine, but do potentially offer more hope. One of them is St. John's Wort, a well-known anti-depressor, but also a powerful natural antibiotic, even against the most resistant strains of Staph. There are others as well, such as Turmeric, Calendula, Comfrey, Berberine and many others. It's all trial and error, unfortunately, until science may find a better solution. But do know that I have successfully cured myself from a rebellious 20 year case of Eczema, by taking St. John's Wort Capsules, over a 5 to 6 month period; and I also know about others who have found relief likewise.

    Best of luck, and please feel free to ask any questions after reading on the subject,

    Greg.

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  • Posted

    hi, my daughter found after 10 years of eczema for 10 years that goats milk Kefir cured it to 90%. Took six weeks. Kefir is well worth a try.
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    • Posted

      Yes, according to some research, Kefir may help reestablish a better balance between the "good" and "bad" bacteria present on the skin surface; some people even claim that applying it directly on the eczema wounds has been helpful. It will not kill Staph (the enemy), but it may help overpower it by allowing favorable bacteria to reclaim some lost territory.

      Regards,

      Greg.

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    • Posted

      Yes Im sure it has something to do with the particular infection. But def worth a try as it worked for my daughter and it was just a miracle after all other treatments failed including diet for allergy. 
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    • Posted

      Does she soak her eczema in it? Very interested to know more!!! I have bad eczema on my hands and desperate to get rid of it.
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  • Posted

    I cured my excema in my early 20’s by a fluke. Since I was 7 years old I’d had eczema very bad on my hands and feet, especially my feet. One day while skiing I was so upset I went outside and stood in the snow barefoot. I stood there for about 25 minutes to a half hour and melted all the snow around my feet all the way to the ground! A normal person could never have lasted that long standing on what is vertically ice. It was the breakthrough I was looking for. The itching almost immediately stopped and in a matter of days (keeping my feet and hands cold) my excema went into remission. Since then anytime I have flareups I put my feet in ice, the itching instantly disappears and if I keep my feet cold and as dry as possible the eczema just goes away. I’ve told doctors this but no one takes me seriously. The problem is heat!!! Somehow the nerve stimulation creates heat which creates the blisters. Once you’ve rid your feet and hands of the eczema the rest of the eczema on your body will go away on its own. The main places for eczema is your hands and feet. Fill some Ziploc bags with water and freeze them and hold onto them with your hands. You’ll be surprised how long you can hold the ice pack. If the excema is bad enough you’ll be able to melt the whole bag of ice. Put your feet in ice water. Put a towel next to the bucket and keep your feet as dry as possible once they’ve gotten them cold. “Keep” your feet and hands cold. As cold as you can take it at first. And then after your feet and hands have heeled you must keep your hands and feet cool for the rest of your life or it will return. And for heavens sake never ever scratch or rub your affected area! Scratching promotes the heat. It takes vigilance. You can’t let the tingle start or it can come back in a matter of minutes. When I get the sansation and the itchy feeling I don’t care where I am, I kick off my shoes and socks and wag my feet around to get them cooled off. Then I immediately head for an ice bucket as soon as possible. Heat is the enemy. Oily creams and lotions don’t help and trap the heat. Keep your hands and feet clean, dry and above all “cold!”  Since we’re dealing with a child you won’t be able to do things as extremely as I did. Be carful not to go too far. Maybe use cold water instead of ice.  Eczema sucks! This is my cure. I’ve been excema free for 30 years. Just try it. You’ll see. 
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