5 years of dizziness

Posted , 6 users are following.

It coming up on 5 years now for me I have come a long way from almost going crazy to living what is very close to a normal life . I have good and bad days they all include weird feeling or dizzy spells what I hag ethe most is the way my brain works now kinda like when it wants to things that use to come easy just don't anymore and I could forget the simplest thing and when I say forget it is gone .when it started I couldnt walk without holding the walls my eyes sight was bad I was spinning even with my eyes closed basically everything (most are feeling ) like everyone else I have been to the Ent , eye doctor neurologist mri all the same people everyone here has seen I don't even go to the doctor anymore sad to say it does get very expensive I do drive again I work I commute I have come along way I think the balance thing with me is huge gives me some major issues but Its not killing me so all I can do is keep moving forward as hard as it is one thing is guaranteed whatever it is it has made us all great actors because we just try to be back to normal and others don't even notice .

1 like, 7 replies

7 Replies

  • Posted

    I am sorry you have to feel this way and I am still hoping for an answer ..for you and for me . My dizziness, balance, forgetfulness are just the past few months and I am beginning to feel like I will have to lean to live with  ...as you are doing sad .

    • Posted

      Me to. Life is almost intolerable despite several Eplley manoeuvres, which have relieved it a bit but dosnt seem to quite get there.
  • Posted

    Have you been diagnosed with BPPV? Do you do any of the maneuvers posted Epley or Brandt-Daroff? Have you been to physical therapy for it? Hopefully you are managing it well, using some of the maneuvers
    • Posted

      To be honest no I have not been diagnosed Ithe almost bothered me more continuing to go to get bad news or no news and like I said it was getting expensive as far as tools what I do is eye exercise's focus on something far and something close and go back and forth and the hand and eye exercises they all talk about basically try to stay happy an drain yur balance back it's like starting all over with certain things but I do well now I'm not fixed by any means but I can handle it now at least well enough to get by

  • Posted

    Good job daniel, I am 4 yrs,in.  I am a wall toucher and can drive. I have some forgetfullness (am aging) and terrific fatigue. Fatigue is the worst thing. I could not get diagnosis but believe my canals atrophied on one side, also VN in the beginning. People w;ho suggest BPPV and epley do not understand the long term problems. Living is my exercise :-)
  • Posted

    I'm having a bad day today. Mine is 10 years. Began with dizzy and vomiting. After a few years no vomiting but banging in the head. After

    A few years diarrhea and banging in the head. For the past two days

    I have diarrhea and sick to my stomach. I do have breaks in between

    When I'm completely free, thank god for that.

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