54 years old great shape P M R.

Mjjollywood, I believe that diet does matter. Have two doctors one does one does not. I try to eat food that does not cause inflammation and take supplements that fight inflammation. I try to stay active walking 7 days a week, goal 15K steps a day. Good luck on your journey, I try and keep a smile on my face, think that helps also. 🙂

pred, activity / exercise, diet, state of mind.

I don't particularly know what a pmr friendly diet looks like but I can't imagine diet not making a difference.

Probably more in response to "pred hunger" than diet which reduces effect of pmr I eat less carbs and manage to keep weight reasonably stable. If it helps the pmr that's nice but I can't be certain.

Hi mjjollywo - I have going going almost gone GCA but not PMR. Diagnosed in October 2016. Now prednisone is reducing 1mg per month (currently on 7mg). Feeling so much better. The initial migraine-like headaches disappeared as soon as steroid was started. None since. No pain anywhere else. Diet? Doctors (GP and hospital rheumatologist) said eat what you like. But include lots of fibre, fruit and drink milk. Put on a tonne of weight: they said appetite increase is a side-effect, it will reduce in time. I play petanque three times a week. Do not go for walks much as I live in the hills in Auckland (NZ) and it's either crawling uphill or racing downhill. 

Have full confidence in the management, treatment of my doctors. They have been spot on.

Keep well. And smiling.

I have been eating an anti inflammation diet for the past  6 weeks.That means no dairy, no animals beef or poultry, no gluten.  Lots of olive oil, avocado oil, coconut oil, I am allowed to eat lots of non-farmed fish (difficult to find and expensive) few eggs, some fruit and as much veg as I want.  No sugar.  

Omega 3 supplements daily

Result after 6 weeks..... energy levels have soared..... I can drive inter city to work, do physical work for several hours, drive back and still be able to talk.....   

Pain levels are just the same in my shoulder and arms.... which doesn't bother me while I am active and working but wake s me at night several times and spoils my sleep.

Mood - much improved....  outlook more positive

so, I am sticking with the anti inflammation diet and have begun tapering g from 9 mg to 8 mg on alternating days and will continue that way for at least a month to see if the pain will lessen.

i am convinced that diet plays an important role in this journey.  Oh.. and I actually lost a couple of kilos too.

I think diet is very important, we are what we eat .. lots of interest and work being done lately on the gut and the importance of the microbiome and its effect on the immune system.  What seems to suit me is high fibre, low carb meaning loads of veg, full fat milk and yogurt (good coating for stomach when taking pred) fish, olive oil,eggs, limited fruit (sugar content) very little meat (although a lamb roast is my downfall about once a month but what is life without a little bit of what you fancy..) And drinking plenty of water throughout the day. And a square or two of dark (85%) chocolate.   I've lost a few kilos too, so something's going right.

You sound very active, just take any reductions in pred quite slowly and build in a bit of rest time when tapering - makes a difference if you have confidence in your doctor, but question anything you don't understand or want help with.  Best of luck.