6.5cm complex cyst on left adrenal gland

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Hi i wondered if anyone had info or advice. for 5 yrs now i have suffered terrible with back and abdominal pain, stomach swelling sometimes for days, after several GP visits and being fobbed off with IBS. i finally got sent for abdo scan last november. this showed a cyst on left kidney, this was scanned 6 months later and i was referred to urology as they said it was now classed as a complex cyst. it has changed structure and showing calcifcation. urine shows increased wihte cells on every check but clear of infection, kindney function fine and as far as i am aware all other bloods are fine. uroilogy consultant sent me for CT scan with contrast and has now said the cyst is from the adrenal gland as this is not his area, so he has referred me to endocrine specialist. i have an appointment with the consultant in 3 weeks but im worried i dont know what to expect

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18 Replies

  • Posted

    Just an update. 10 days ago I had cyril the cyst removed in what turned out to be a complicated operation. Expexted to take around 2 hours took 6!!! Turns out cyril had a bloomin family in there. A multilocular cyst. Much more complex. Had the adrenal gland removed as it was part inside the cyst. Post op has been extremely painful but ive needed no cortisol replacement. Feeling much better day by day. Awaiting my cconsultants report hopefully next week.
    • Posted

      Hi Claire, It must be a relief to have the cyst taken out. I was diagnosed with an adenoma of the adenal gland last June after a CT scan for something else so  they are just keeping an eye on it for the moment. Like you I got the feeling that something is in the way on my left side especially when I cough or twist around. The adenoma was 1.2 cm 5 months ago so don't know if it has grown since then. I wish they could take it out.My brother told me a few days ago that he had an MRI  scan and they found cysts on his kidney and adrenal gland and the Dr said it is nothing.I don't know the difference between a cyst and an adenoma. Did you get high blood pressure and what other symptoms did you have?. I was told the adenoma was rare. 

      Hope you continue to feel well.  


  • Posted

    I have been sick for 3 weeks with a pain right under my left ribcage. I couldn't stand the pain any longer or not eating. Broth & crackers was all I ate. I went to ER last night. They did a CT and said I have a 3.5 cyst on my left adrenal and a 1.6CM on my right adrenal. Sometimes my beely hurts so much, the only relief is my fist pressing against my upper left abdomen. I am suppose to go see my regular doctor tomorrow..I am scared what is going to happen to my stomach...one of my few enjoyments in life is eating!

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