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Adrenal Disorders

Also known as Addisons Disease, Hyperaldosteronism, Phaeochromocytoma

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  • Please Help. Undiagnosed Disorder

    Please I am looking for help understanding if my issue is related with the adrenal glands and the cortisol production. I think I am in the right place since many of you should know the symptoms of that. Please advise me. I have been sick for seven years and no Dr knows what is the cause of all my symptoms....

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  • Do LH or FSH values change after hydrocortisone thereapy?

    HI!     I was diagnosed with Secondary Adrenal Insufficiency in 08-2017. At the time, I had very very low values of FSH & LH.  (That was only a small part of how I was diagnosed but my question is only related to these 2 hormones.)       I have been on hydrocortisone...

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  • Extreme fatigue, weakness, exhausted and don't know why

    I am suffering from extreme fatigue and exhaustion and every test is coming back negative. Except for vitamin d deficiency. Vitamin d is just a missing part to my symptoms. I am worried that it's my adrenals and maybe thyroid. I finally got my doctor to refer me to an endo. Still waiting for approval...

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  • Taking levothroxine and vitamins

    Hi there I'm new here so hello to you all. I take 75mg of levo every morning with a full glass of water 1 hour before food. The doctor said I could take 100mg one day and 75mg another day if I wanted to test it as my level was a tiny bit low. I noticed that I have alot of hairloss recently it only...

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  • Low Cortisol...little NHS help

    Hello, I'd been feeling fatigued/jelly legs/craving for sugar/energy for about a month until I went to the doctors. First blood tests identified cortisol was down at 170 (bloods done at 11am) and lacking in Vitamin D. 2nd Round of tests was at 9am and cortisol remained at 170. 3rd test (9am bloods)  ...

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  • Sleep, pain, anger

    Hey so I’ve been getting my 8-9 hours of sleep at night, but I wake up 3 times to go to the bathroom. I have a syndrome called elhers danlos and my body produces too much adrenaline while I’m asleep. I get to sleep normally, but wake up every 3 hours or so to go to the bathroom. I’ve noticed I’ve became...

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  • adrenal fatigue? Could this be it?

    Twice now in the space of 12 months I have developed a very similar set of symptoms which have followed a similar progression yet I remain undiagnosed. On both occasions I began with some mild stomach discomfort which I thought might be gastritis. My GP didnt seem overly concerned though. Following...

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  • Cfs

    Skinny, physically exhausted, restless legs. Can this all be hormone imbalances? I seem to have chronic fatigue and Fibro symptoms poking me throughout a day. Pain in lower right side of tummy, scan shows a bulky uterus.  This has been happening all my life every time u have been off contraceptive...

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  • Mother was misdiagnosed with Addison's 15yrs ago. Now what?

    She was diagnosed with Addison's Disease over 15yrs ago. Now her endocrine, a new one by the way, is hinting that she never had Addison's to begin with. He will not come right out and say it. Now that she is getting older I am having to step in and help when and where I can. Her has been in extremely...

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  • Post Adrenalectomy

    I had a benign non producing adrenal tumor removed 5 months ago.  My endocrinologist has tested blood cortisol levels twice since surgery and believes remaining gland is working properly.  I have had dry skin on my face since surgery that I cannot seem to balance out.  I also have joint...

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  • Does failing the Synacthen test definitely mean AI?

    Hi there, I recently had a 30 min synacthen test to investigate symptoms of muscle pain, weakness, fatigue, joint pain, headaches and brain fog for the past 2 years. My basal cortisol was 396 and 479 after 30mins. Endo described the results as 'subnormal' in his letter to my doc and said...

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  • Urine Adrenaline levels, what's the ideal? I know the 'range'

    For over 3 years now and getting worse I have been living constantly feeling stimulated. Can stay awake for days, etc. We have done many tests and even hospital stays with no confirmation, the doctors can see my symptoms, such as hugely dilated pupils and shaking during this cycle (which is like a yoyo,...

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  • Adrenal Adenoma

    I was in hospital for abdo pain in March and during scans a suspected Adrenal Adenoma was found on right adrenal gland. Had further CT which confirmed but have no further details or confirmed follow up yet. I have had fatigue for ages but put it down to being overweight. Since discharge from hospital...

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  • Anger and breathless after i exercise???

    After I exercise I get very hyped up and angry can somebody tell me if this has anything to do with my adrenal gland’s? I also have trouble breathing when this happens.  It may take hours to days two weeks even to return to normal. 

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  • First day after surgery

    Yesterday they removed my right adrenal gland with 2.7 cm hopefully adenoma.  Pathology report will be ready in a week or so.  I feel fine,I quess, except  really bad headache after anesthesia.  I didn't know anesthesia recovery was so bad for some people.  The give me 100mg...

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  • Constant Elevated Blood Pressure, Possible Adrenal Problem?

    Hi everyone, I've had constantly elevated blood pressure for about a year now, maybe a little more. I also frequently get headaches, have sweating spells, and feel anxious. My doctor did a blood test on me, which came back normal, because she suspected it was hyperthyroidism at first. I also had...

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  • New and haven't a clue!

    Hello everyone! I am new here. I went searching for a forum where someone may understand what I'm going through. I had spinal surgery in August 2017 and was placed on a special floor because my heart rate dropped extremely low and my blood work was coming back abnormal. I was told to follow up with...

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  • Feeling horrible after adrenal surgery

    5 days after surgery I feel horrible.  Very weak, nauseous, headache.  Does anybody know if it can be side effects  from hydrocortisone which I am on 15/10  a day. Maybe it's too low dose for me . I thought I would feel better but I don't.  I tried to call endo.  She...

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  • Desperately Seeking A Diagnosis (Headache, High BP, Etc)

    Good afternoon all. I'm 25 yo, had always been healthy, thin and do not have BP cases in my family.  Long story short: for the last 2 years I've been feeling like total CRAP.  I have visited several different doctors and no one could diagnose me until now  Main symptoms: headache,...

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  • Non auto immune Addisons

    Has anyone out there got non auto immune Addisons, if so what are the causes. My consultants thinks I have this but hasn’t given me a reason why, just 6 months of steroids 10mg am and 5mg pm. No advice just a see you in 6 months. I am a bit scared to start steroids as I really don’t think with my body...

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  • Adrenal growth

    12 months ago I was admitted to hospital with high BP 167/240. I've had lots of tests and currently take beta blockers and water tabs to help manage this. For about 18 months I've had headaches, dizzy spells, nausea, upper body tremors, lightheadedness, blurred vision, palpitations and chest...

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  • Chicken poxs

    Hi guys dose anyone no if I should stay clear of someone with chicken poxs I do have Addison disease and now just been diagnosed with hyperthyroidism thanks

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  • Addison's and Narcotics

    A couple of years ago, I weaned myself off Fentenyl, a pain patch I have been on for many years.  After about ten months off the medication, I had my annual endocrinology check up.  My new endocrinologist (one with an actual brain!) decided to retest my ACTH levels.  Surprising to me,...

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  • Anybody familiar with a pheochromocytoma?

    Long story short I have been having some pretty severe symptoms over the years, muscular issues, lightheaded, feelings of being intoxicated, raynauds phenomenon, and i had my family doctor screen me for a pheochromocytoma. It consisted of of a 24 hour urine to check for all the usual, according to my...

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  • Levothyroxin vs armour thyroid

    Hi - My partner had to his have his thyroid removed in 2013 due to cancer. He is 40 years old and has been on levothyroxin ever since. He has been on 250mg a day. He has been doing ok on this dose apart from excessive sweating, tiredness , weight gain and heart palpitations. He recently saw a new consultant...

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  • Addison's new diagnosis and very confused

    Sorry for asking so many questions but is it normal to not feel hungry at all? Even with the steriods I don't want to eat. Maybe it's because when I do eat my stomach hurts so bad. I've had so many stomach problems. I had to have 5 bowel obstruction surgeries in the last 2 years. They ended...

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  • Addison's and pain management

    I am learning how to live with Addison's Disease but I am struggling on getting my doctor's to answer questions or provide any help. I am not one to complain but I feel I am going crazy every day. Every morning I wake up to tremendous pain in my back and left hip, barely able to walk better...

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