Skip to content

Adrenal Disorders

New discussion Join group Also known as Addisons Disease, Hyperaldosteronism, Phaeochromocytoma

All discussions in this group

  • tismesue 2

    Addison's disease psychological symptoms

    Hi, after 13 years of being unwell and always declining, much faster in the last 3 years I seem to finally have an answer. I have a short synacthen test tomorrow for Addison's but I have many classic symptoms including darkening of skin, so I think it is highly likely to be positive. I really hope so!...

    6 replies 0 votes Last reply
  • adesa11340 1

    ACTH Stimulation test results

    Greetings everybody,  I had a ACTH stimulation test last week and these are the results: cortisol basal 106 ng/ml cortisol_30'    190 cortisol_60'     228 The endo thinks that AI is ruled out in light of these results, which makes me happy. The baseline seems a little low to me tho, specially

    4 replies 0 votes Last reply
  • Justhormonal 2

    3 "borderline" cortisol stim tests, am I ok?

    Last December my OBGYN ordered a bunch of hormone tests due to some strange female cycles. Several of them were lower than normal, so she sent me to the Endocrinologist, who wanted to do a cortisol stimulation test, I think because of the very low DHEA result (31.1 mcg/dL; normal range is  57.3-279.2)

    11 replies 0 votes Last reply
  • taro93814 2

    Extreme fatigue, weakness, exhausted and don't know why

    I am suffering from extreme fatigue and exhaustion and every test is coming back negative. Except for vitamin d deficiency. Vitamin d is just a missing part to my symptoms. I am worried that it's my adrenals and maybe thyroid. I finally got my doctor to refer me to an endo. Still waiting for

    9 replies 0 votes Last reply
  • fara35640 2

    lumps in the body

    I keep getting a lump on the right side of my ribs, feels like a bony mass and really hurtss. Has anybody else experienced this? I read on the internet that this could be related to Addisons.

    3 replies 0 votes Last reply
  • StrivingOn 2

    My cortisol results

    Please can someone give me their views on my results in simple easy-to-take-in terms (I'm really struggling with brain fog and just can't take in the long reads that I can find on the internet). I had a Cortisol test done as I'm looking to see if adrenal issues could be the source of my

    9 replies 0 votes Last reply
  • daisy1 1

    Phaeochromocytoma difficult to get a diagnosis

    I have been suffering a headache every day for the last 12 months, the specialists have blamed it on everything from thyroid trouble to cluster headaches, eye strain & migraines. All of which have proved totally wrong. I am positive that at first my GP & the \"experts\" thought I

    5 replies 0 votes Last reply
  • jameshartley 1

    Low Energy Levels, Unable to Figure Out Why

    Hi, I've been to a doctor's recently about this issue. It used to be quite worse, and I often required at least 12 hours sleep to feel well (I am in my mid 20s). Most days I am only out of bed around 2-3pm. However, these days I find it difficult to get out of bed most days. I also find it

    4 replies 1 vote Last reply
  • kristinathomas 2

    Phaeochromocytoma Specialist

    Hi everyone. I have been very ill for almost 2 years and doctors have struggled to diagnose me correctly. I have been getting gradually worse and worse. Finally after an MRI scan it turns out I have a tumour in my adrenal gland and it has a self contained hemorrhage which shows that it is still

    23 replies 0 votes Last reply
  • crustyduh 2

    Horrible symptoms no diagnosis yet, can you help?

    I'm a 47 year old female. Health conscious vegan, not overweight, non smoker & until recently, drinking well less than the weekly limit. (due to ill health have given up all caffeine - including tea & alcohol). I apologise for the length of this posting, but I am desperate to get some support &

    1 reply 0 votes Last reply
  • Castle805420 2

    Can Addison's Disease symptoms come and go?

    Just to make this short because I don't feel the greatest right now I'd like to get the opinion of someone diagnosed with Addison's on this. Is it possible for the symptoms to come and go or are they just there permanently until you start getting treatment? Any help with this would be much

    2 replies 0 votes Last reply
  • fara35640 2

    Addison's and hairloss from the scalp

    Before I was diagnosed with Addison's I noticed I started to lose a lot of hair from my head. I have lost 60% of what I used to have.  I now wear a scarf as I don't like wigs. it's not coming back even though I am on the Hydrocortisone tablets.  I was only diagnosed back in September 2016.  Has

    3 replies 0 votes Last reply
  • Needhelp asap 6

    Does this sound like Addison's disease?

    Hey, so for the past 3 days I've had extreme fatigue. It started 3 days ago when I was coming back from uni and I suddenly felt my legs really heavy and I felt overwhelmed with fatigue. I was eating pretty much fine, I ate fine that day too. (quite a lot). 2 days ago, I went out for a walk where I

    17 replies 1 vote Last reply
  • rachael92330 1

    SAI, following kidney transplant - anyone else?

    Hi all, new to this latest problem.  I am almost 5 years post kidney transplant.  Since October 2015 have been throwing up and it's getting to the stage it's every 2 weeks now.  I was only diagnosed with secondary adrenal insufficiency on 1st Feb 2017.  Haven't actually had an appointment with a

    2 replies 0 votes Last reply
  • Lorraine W 2

    Hydrocortisone and wind

    Hi does anyone else suffer with bloating and wind?I'm currently on 40mg hydrocortisone daily. I find myself feeling very bloated most of the day. Thanks Lorraine 

    2 replies 0 votes Last reply
  • Only Way is Up 2

    Low Adrenal Glands

    Hi! ​Does anyone have any experience on the best way to raise adrenal glands without eating animal glands?  My blood pressure is fine but adrenals are too low.  Am currently using licorice root as a tea, however would like to know anything else I could be taking to assist with improving their

    1 reply 0 votes Last reply
  • gayle14m 3
  • david72297 5

    Adrenal tumors

    I have 2 Adrenal tumors on each kidney. Can anyone give me information on this?. The doctor  just said that she would just moniter their size yearily. Can anyone tell me how they effect a peson?

    36 replies 0 votes Last reply
  • rosie34970 3

    How long to feel better?

    Hello, me again I'm afraid. Just wondering - for those of you diagnosed with adrenal issues - how long did it take you to start feeling better once you were on medication? Roughly? Thankyou Rosie

    24 replies 0 votes Last reply
  • seesmith123 2

    My Adrenal Insufficiency Disappeared?

    i was diagnosed with AI, due to hypopituitarism, a little over 6 months ago. been taking hydrocortisone 3 times a day, and i got tired of it so i just stopped taking it. I was expecting headaches, tiredness, vomiting even but none of that has happened, i feel wonderful. i dont know how this

    20 replies 1 vote Last reply
  • ScattyFairy 2

    Cortisol levels

    Hi to you all, I am a new member and my question that I need an answer too is what is the measuring scale that indicates a cortisol level. I had the short synacthen test this week and my level is 155 from a previous blood test. I do not know if this is anything to be concerned about and the nurse couldn'

    9 replies 1 vote Last reply
  • Chris6543 1

    Life insurance

    Hi guys I have Addison's disease can anybody suggest a good company that will insure me please

    3 replies 0 votes Last reply
  • kenzii92818 2

    Primary Addisons Disease ignorance

    I just got the realisation of how I have been fighting my diagnosis of Addisons disease for 8 years. Maybe going to a therapist that worked on massaging my adrenals didnt help,  when she told me that my adrenals were still working afer the massage I couldnt sleep till 4am even though I didnt take

    2 replies 0 votes Last reply
  • sarah8393 2

    Primary Addisons Disease

    I have had Addisons for 6 years, I take 12.5mg of Hydrocortisone daily 10mg at 10.30am with 0.5 of Fludrocortisonethen evenings just  and 2.5mg of Hydrocortisone at 4.30pm, I am managing fine, however I forgot to take my meds all day and realised this at 5.15pm after work so took them straight

    11 replies 1 vote Last reply
  • beeboop 2
  • tracy15302 2

    Addison's Disease

    Hi my name is Tracy I have been in agony with my spine now for years , I had an opp to my c5-c6 and had a cage fitted in may this year . I would complain to my GP all the time saying I feel like I'm being strangled . I feel sick all the time have what feels like acid belly and when I need to go to

    9 replies 0 votes Last reply
  • ScattyFairy 2
  • Justhormonal 2

    Female cycle exacerbating AI symptoms?

    So I know that both menstrual cycles and adrenal insufficiency are related to Wondering if any of you (females) with AI notice particular problems around the beginning of your menstrual cycle? I am being evaluated for AI (2 ACTH Stim tests in last 3 months have been borderline, so they

    3 replies 0 votes Last reply
  • dena 79123 2

    Low cortisol in urine

    My morning serum cortisol was 4.4. I just got the results back from 24 urine cortisol test and it was 4.3. I am off from cortrosyn test this morning. It is very hard to find information about low cortisol. All the endocrinologist has said is that is "on the lower side." My BP is extremely low,

    13 replies 0 votes Last reply
  • kenzii92818 2

    Primary Addisons Disease

    I have had Addisons disease for 7 years, lately though I found BP was high so had to drop Fludrocortisone, my blood pressure before meds is 112/68 resting then on standing it goes up to 122/ once my meds are taken even 8 hours after my BP is higher but not alarmingly however on standing

    6 replies 0 votes Last reply
  • Canader 2

    Can my TSH affect the Adrenal Glands so much ?

    I had my thyroid totally removed about six months ago and now my TSH is seven. I feel extreme fatigue. After the gym by body shuts down and I feel tired for two to three days. I don't gain weight, I lost just a bit and I have the tendency to lose weight in general.   I have nervousness, light

    4 replies 0 votes Last reply
  • rosie34970 3

    Self care til ACTH test?

    Hi I wonder if anyone could give me some advice. My endocrinologist suspects Addison's and has requested an urgent ACTH stimulation test. Apparently it will be in 2 weeks. I have been really struggling with faintness and vomiting and cramps and things and I wondered if there is anything I can do

    11 replies 0 votes Last reply
  • Lorraine W 2

    Addison's disease

    I got diagnosed with Addison's about 3 weeks ago after going into adrenal crisis. I'm doing really well but find that I'm awake very early,usually stir about 4am then can be wide awake from around 5.30am. Should I take my morning meds as soon as I wake or should I wait? Many thanks Lorraine x

    8 replies 0 votes Last reply
  • jEpeel 2
  • dena 79123 2

    Addison's Diagnoses

    I am not sure how to condense all of this. After a neck surgery two years ago, my health took a serious decline. I have been diagnosed with mild heart failure and seronegative rheumatoid arthritis. A few months ago, after having shingles, my BP started staying very low. The lowest was 52/28, I

    4 replies 0 votes Last reply
Back to top Next

Forums Terms & Conditions