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Adrenal Disorders

Also known as Addisons Disease, Hyperaldosteronism, Phaeochromocytoma

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  • Cortisol levels

    Recently had my cortisol checked through my doctors office via a 24 hr saliva test. My results are as follows:  8AM- 0.19 mcg/dL  12PM- 0.10 mcg/dL 4PM- 0.19 mcg/dL 12AM-0.10 mcg/dL The doctors office says these are within normal range, but is still referring me to a endocrin to explore my...

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  • Help! :(

    Most days, with the exception of a few here and there- I have the “jitters” inside. I do not drink caffeine at all because of this. I feel like I would if I were to drink Coffee or a few Redbulls. This makes it terribly hard to fall asleep at night. Sometimes it feels like my heart is beating a million...

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  • Please help

    So I have been dealing with this for about three years now! I have repeatedly told my primary doctor that something is wrong but got absolutely no where I was sent to a psychiatrist for “depression” well that didn’t help anything at all, I have just recently asked my primary doctor for the referral to...

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  • Hormones and stress

    In 2012 I had a hysterectomy I was put on estrogen. In 2015 I quit which I regret and I don't remember why I quit. I did really will not having to take the estrogen. In August 2017 I lost my job and that's when the stress begun. I went through hurricane Harvey, lost my cats, and lost several...

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  • Please help me...

    I am desperate. I am scared. I have lost all hope. I just had my 22nd birthday, but somehow I feel as if I will not make it to my 23rd. I have been suffering from a mysterious debilitating sickness for a year and a half. I have seen numerous specialists and doctors in hopes of getting this resolved,...

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  • Post Adrenal Insufficiency Primary

    I will appoligize in advance this post may be lengthy; History: 3/2017 had an left adrenalactomy. (Cushing’s Syndrom)Placed on HC 30mg per day. 1/2019 after a stim test was ordered because my numbers looked good we began to ween me off of the HC because the right suppressed adrenal gland began to wake...

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  • excess hormones

    i've been experiencing symptoms of high cortisol for about 4-6 years. i finally went to my GP to get it checked out. bloodwork came back showing high cortisol. i've been sent for a CAT scan. GP isn't saying much but he says it might be a problem with my adrenal gland. i'm so worried that...

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  • Is this an adrenaline rush

    Ok so I wasn't having a panic attack it came from my heart palpitation and it was causing tightness in the stomach then tightness in the heart area. I've had it for 20 minutes and I've been suffering from extreme anxiety disorder but tbh this one was caused by having the heart palpitations...

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  • ACTH test

    hi can anyone tell me how they got on with acht test SSTest side effects if any as due one this wk thank you

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  • synacthen short test

    Had this done last week. They put a Cannula in (took some time, my veins are a bit rubbish) and took blood, injected the synacthen and took some more blood 30 mins odd later. That was it, I felt great for rest of day and evening. However woke up at 5am didnt feel great, flu like feelings and really tired/s**t...

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  • Addisons affecting my nails

    Hi people I was diagnosed with Addisons recently and started taken Hydrocortisone a month ago. Since then my toenails have got really thin and are splitting down. It is getting painful and I am worried they might rip off. Has anyone had this too? And help or suggestions what to go would be amazing!

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  • Adrenal Tumor

    Hi, After being treated for about 20 years with conditions such as stomach pain, high blood pressure, diabetes, tons of stomach issues, and bowel surgeries, I recently requested that my doctor send me to a gastroenterologist. A few years before that, a tumor showed up on a stomach CT. They had been...

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  • Worried incase I have addisons disease

    Hi all, I'm 32yrs old and have 5yr old twins and a 2yr old. Since I had my youngest I've been very unwell. I was diagnosed shortly after his birth with underactive thyroid and take daily levo thyroxine. Still don't feel at all well even with adjusting dose etc. When he was 3 months old I...

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  • MD won't treat secondary adrenal insufficiency

    I have type 1 diabetes of 46 years. I have been recently diagnosed with secondary adrenal insufficiency and also have low insulin like growth factor. They refuse to scan of my pituitary and refuse treatment with a steroid for the adrenal insufficiency. What am I to do? By the way my doctor told me to...

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  • Please Help. Undiagnosed Disorder

    Please I am looking for help understanding if my issue is related with the adrenal glands and the cortisol production. I think I am in the right place since many of you should know the symptoms of that. Please advise me. I have been sick for seven years and no Dr knows what is the cause of all my symptoms....

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  • Do LH or FSH values change after hydrocortisone thereapy?

    HI!     I was diagnosed with Secondary Adrenal Insufficiency in 08-2017. At the time, I had very very low values of FSH & LH.  (That was only a small part of how I was diagnosed but my question is only related to these 2 hormones.)       I have been on hydrocortisone...

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  • Extreme fatigue, weakness, exhausted and don't know why

    I am suffering from extreme fatigue and exhaustion and every test is coming back negative. Except for vitamin d deficiency. Vitamin d is just a missing part to my symptoms. I am worried that it's my adrenals and maybe thyroid. I finally got my doctor to refer me to an endo. Still waiting for approval...

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  • Taking levothroxine and vitamins

    Hi there I'm new here so hello to you all. I take 75mg of levo every morning with a full glass of water 1 hour before food. The doctor said I could take 100mg one day and 75mg another day if I wanted to test it as my level was a tiny bit low. I noticed that I have alot of hairloss recently it only...

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  • Low Cortisol...little NHS help

    Hello, I'd been feeling fatigued/jelly legs/craving for sugar/energy for about a month until I went to the doctors. First blood tests identified cortisol was down at 170 (bloods done at 11am) and lacking in Vitamin D. 2nd Round of tests was at 9am and cortisol remained at 170. 3rd test (9am bloods)  ...

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  • Sleep, pain, anger

    Hey so I’ve been getting my 8-9 hours of sleep at night, but I wake up 3 times to go to the bathroom. I have a syndrome called elhers danlos and my body produces too much adrenaline while I’m asleep. I get to sleep normally, but wake up every 3 hours or so to go to the bathroom. I’ve noticed I’ve became...

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  • adrenal fatigue? Could this be it?

    Twice now in the space of 12 months I have developed a very similar set of symptoms which have followed a similar progression yet I remain undiagnosed. On both occasions I began with some mild stomach discomfort which I thought might be gastritis. My GP didnt seem overly concerned though. Following...

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  • Cfs

    Skinny, physically exhausted, restless legs. Can this all be hormone imbalances? I seem to have chronic fatigue and Fibro symptoms poking me throughout a day. Pain in lower right side of tummy, scan shows a bulky uterus.  This has been happening all my life every time u have been off contraceptive...

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  • Mother was misdiagnosed with Addison's 15yrs ago. Now what?

    She was diagnosed with Addison's Disease over 15yrs ago. Now her endocrine, a new one by the way, is hinting that she never had Addison's to begin with. He will not come right out and say it. Now that she is getting older I am having to step in and help when and where I can. Her has been in extremely...

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  • Post Adrenalectomy

    I had a benign non producing adrenal tumor removed 5 months ago.  My endocrinologist has tested blood cortisol levels twice since surgery and believes remaining gland is working properly.  I have had dry skin on my face since surgery that I cannot seem to balance out.  I also have joint...

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  • Does failing the Synacthen test definitely mean AI?

    Hi there, I recently had a 30 min synacthen test to investigate symptoms of muscle pain, weakness, fatigue, joint pain, headaches and brain fog for the past 2 years. My basal cortisol was 396 and 479 after 30mins. Endo described the results as 'subnormal' in his letter to my doc and said...

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  • Urine Adrenaline levels, what's the ideal? I know the 'range'

    For over 3 years now and getting worse I have been living constantly feeling stimulated. Can stay awake for days, etc. We have done many tests and even hospital stays with no confirmation, the doctors can see my symptoms, such as hugely dilated pupils and shaking during this cycle (which is like a yoyo,...

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