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Adrenal Disorders

Also known as Addisons Disease, Hyperaldosteronism, Phaeochromocytoma

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  • Dosage of hydrocortisone for Addison’s

    Hello! I have had Addison’s for 20 years now and for the most part have been taking 15mg hydrocortisone each day (10mg in am 5mg in late afternoon)  My endocrinologist has recently changed my does to 20mg a day (10mg am 5mg afternoon 5mg evening)  Just wondering how many mgs other ppl take...

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  • Mother was misdiagnosed with Addison's 15yrs ago. Now what?

    She was diagnosed with Addison's Disease over 15yrs ago. Now her endocrine, a new one by the way, is hinting that she never had Addison's to begin with. He will not come right out and say it. Now that she is getting older I am having to step in and help when and where I can. Her has been in extremely...

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  • New here... what do you think of my symptoms?

    Hi there, I recently read about Addisons after many years of struggle... I'm sure it's not my only issue but... here goes... * Neuropathy / nerve pain in legs and feet. Rarely, in my hands * Extremely low weight + fatigue * Muscle wasting / tightness * Dizziness when eating, especially high...

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  • Recently diagnosed with Addison's

    Good morning I was recently diagnosed with Addison's disease. It took about 6 months lost 60 lbs mostly muscle finally went into the ER on October 14th and that's where they diagnosed me. I started getting lots and lots of compliments on my tan even though I didn't go out in the sun so much....

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  • New to the group. Just a few questions.

    March of 3/2017 had my left adrenal gland removed, tumor producing excessive Cortisol benign, was diagnosed with Cushings now Adrenal Insufficiency. My right gland is sleeping and I am currently on 25 mg of hydrocortisone. Cushing was horrible and i am pretty sure it started somewhere around 2005, when...

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  • Scarry dizziness… low cortisol?

    Hi Summary: (I apologize for the long post but i tried to make it sufficiently detailed. I made this summary in hope of making the rest of the text more digestible.) I was sent to ER and diagnosed with adrenal crisis. When i was discharged several days later this diagnosis was disputed. I still have...

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  • Low Cortisol Levels

    I'm getting very depessed & upset.My Physician just upped my Fldrocortisone to 12 0.1mg a day along with Decadron 3 2.5mg tablets. I am maintaining and holding a AM Cortisol level at 1.6........We can't seem to get above that level.Any one out there that has experienced this before?? I'm...

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  • Cortisol test results

    Hello there! I was wondering if I might ask someone to lok over my test results? I have been very ill all year and newly diagnosed with FND. However, I now want to revisit my cortisol results, as they were low. I had these done through Blue Horizons: SALIVA:  Waking: 2.19       LOW...

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  • Adrenal surgery and tumour removal post surgery pain?

    hi I've just had major abdominal surgery to remove a 15 cm benign tumour from my adrenal gland. They took it out successful plus my left adrenal.  I've been recovering well and am 3 weeks post surgery. However in the last week I've started to feel a real heavy dragging feeling (more...

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  • Addison's Disease

    Hi my name is Tracy I have been in agony with my spine now for years , I had an opp to my c5-c6 and had a cage fitted in may this year . I would complain to my GP all the time saying I feel like I'm being strangled . I feel sick all the time have what feels like acid belly and when I need to go to...

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  • Are these the right tests?

    Hi Could someone tell me if these tests are the tests that diagnose or rule out Addison’s.  -ACTH blood ( I was not injected with anything) -Cortisol blood ( 8 Am  only not at any other time) -IGF 1 serum  -metanephribes plasma -calcitonin serum  I had potassium , sodium too ...

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  • Synacthen test

    I recently had a short Synacthen test. Within minuits of receiving the injection my blood pressure dropped and I stated to sweat.  I recovered after sweet tea in a few minuits. A few hours after the test I experienced severe fatique and slept solidly for a few hours. This was a repeat of one of...

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  • Possible Pheochromocytoma - Please help with any advice

    Hello all,  I am writing from Canada as there are no sites in my country dedicated to this condition.  I have been suffereing acutely with the symptoms of a Pheo for almost a year, my first attack was 4 years ago.  The attacks have slowly become more frequent and more dibilitating.  The...

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  • Hi there

    Had my urine tests back yday it was a 24hr 1, I work in the operating departement myself & very lucky to have a close realtionship with alot of surgeons & different specialities. When i explained my symptoms to the Endocrine consultant, He was not very happy with what i was saying so hence why...

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  • Just diagnosed with Addisons

    Hi everyone, I have just yesterday been diagnosed with Addisons disease and I'm pretty damn terrified. I'm not sure what to think or feel and all i see is horror stories about this disease. My doctor and nurse has reasured me I can just go back to normal after I recieve my meds but I'm scared....

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  • severe fatigue/insomnia

    I have cancer 4 years ago and since chemo, rads and surgery I have been pretty much floored!  Over the last 18 mths I have struggled with chronic fatigue and insomnia, memory problems, low bone density, chest issues, dizzyness etc.. In July I suffered a "crisis" basically had an argument...

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  • Adrenal related?

    Symptoms: Very sore flanks near kidneys and adrenals. Heavy constant low back pain. Have lived with intense social isolation and behavioral stress with rare friendly relaxation since high school. No friends, no acquaintances, no lovers, no parental involvement. Religious repression of personality. Just...

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  • adrenal cyst

    Following an mri which confirmed a cyst in my left upper abdomen, I am due to have ct scan to determine its origin. My consultant think it's likely from the adrenal gland. Has anyone had an adrenal cyst? Mine measures roughly 7cm by 5cm. I feel pain in rib , flank and now back . Very scared...

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  • my daughter just diagnosed with addisons disease

    hello everybody,my 17 year old daughter has just been diagnosed with addisons disease after years and years of suffering, doctors told us she could be anorexic but we all knew 100% it was not about body image she just could not eat through severe anxiety her puberty was delayed and at 13 she struggled...

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  • Secondary amenorrhea 2 years update ::

    Just had my first appointment with the endocrinologist last week. Now have woken up and seem to have a period??! Has been absent for two years.. Do you think it is still worth investigating? I don't see the endocrinologist for 6 weeks so will see if I ovulate again between that time.. Bit annoyed...

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  • Pheochromocytoma?

    This started a few months ago and began by me feeling extremely hot. People would comment on how hot I felt and initially I thought I had a kidney infection. I suffer from a genetic disorder that causes issues. So much so I had my right kidney removed some years back. Urine came back clear, I even did...

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  • ACTH Stimulating test

    So i was recently in thehospital and was told i may have a adrenal issue adrenal blood test was preformed in an around7am cane bank as 1.1. Next day had the stimulating test done at 30 min after steroids were administered leaks were raised to 15. At 1 hour they were 17. I was told in the begining...

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  • Prednisone, Anxiety advice please

    Hi new to forum and I am in the US. I have been on 5mg daily of prednisone to treat low cortisol for almost 2 years. Recently over the last few months I have noticed that I am very anxious and dealing with anxiety issues. When the treatment for low cortisol began for me the MD tried hyrdocortisone but...

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  • "Episodes"

    Do these seem like Addison's-related episodes? Every once in a while (1-2 times a month) I have these days where I wake up feeling nauseous, and it stays most of the day, but I try to eat normally - I NEED to eat because I feel woozy, dizzy, lightheaded, and just generally uncomfortable (and cranky)....

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  • MD won't treat secondary adrenal insufficiency

    I have type 1 diabetes of 46 years. I have been recently diagnosed with secondary adrenal insufficiency and also have low insulin like growth factor. They refuse to scan of my pituitary and refuse treatment with a steroid for the adrenal insufficiency. What am I to do? By the way my doctor told me to...

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  • Fatigue

    Hi for the last 2 years with my addisons I've been getting really tired just lately it's getting worse I have told my consultant but there not doing owt any clues cheers

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  • Unknown disorder, likely adrenal - need help

    I am 21 years old. My nightmare all started in February. I got a bout of what I thought was the flu. Horrible back and joint pain, shaking chills, excessive sweats at the same time, fatigue and muscle weakness, fever that would rise to 101 and then fluctuate up and down, diarrhea, no appetite, and a...

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  • Addisons and pain

    Hi, I'm just awaiting synthacen test for Addisons as I have blood sugars that keep dropping, low BP and low cortisol. I am just wondering if anyone has experienced muscular/joint pains especially in arms, around ribs and back? Occasionally the pain goes into my legs aswell, it is intermittent and...

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