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Adrenal Disorders

New discussion Join group Also known as Addisons Disease, Hyperaldosteronism, Phaeochromocytoma

Can you help? Discussions needing a reply

  • sarah4336 1

    Confused by Results

    I had an 8AM cort stim test done recently, and my results were as follows: 1st Cortisol: 10.9 2nd Cortisol: 17.2 ACTH: 15 Aldosterone: 47 ng/dl The doctor said she would've liked to see my second cortisol hit at least 18, but she wasn't concerned about it (I am comfortable with that assessment).  She...

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  • jane17946 1

    Completely confused needing advice

    So, I've been on steroids on and off for over a year due to autoimmune arthritis. Had a steroid injection a few weeks ago then went to see my consultant this week for a routine appt. I'd lost half stone in 4 weeks, I've been feeling incredibly tired, forgetful, emotional and nauseous. Consultant sent...

    5 replies 0 votes Last reply
  • kenzii92818 2

    Primary Addisons 8 years

    Has anyone with Primary Addisons came off Fludrocortisone completely without problems. I have been told  to come off them and I  am only on a quarter of a tablet. Now??

    2 replies 0 votes Last reply
  • sarah4336 1

    Confused by Results

    I had an 8AM cort stim test done recently, and my results were as follows: 1st Cortisol: 10.9 2nd Cortisol: 17.2 ACTH: 15 Aldosterone: 47 ng/dl The doctor said she would've liked to see my second cortisol hit at least 18, but she wasn't concerned about it (I am comfortable with that assessment).  She...

    0 replies 0 votes Posted
  • john32020 1

    Pheochromocytoma Symptoms - But It's Not - What Is It?

    Writing on behalf of my wife who has been expereincing dibilitating headache pain that started on the right side of her brain and now is focused on the left side. She has had CT scans, MRI, Octreoscan (nuclear), X-rays, urine  and blood tests which have indicated nothing wrong. Recent lumbar puncture...

    2 replies 0 votes Last reply
  • taro93814 2

    Extreme fatigue, weakness, exhausted and don't know why

    I am suffering from extreme fatigue and exhaustion and every test is coming back negative. Except for vitamin d deficiency. Vitamin d is just a missing part to my symptoms. I am worried that it's my adrenals and maybe thyroid. I finally got my doctor to refer me to an endo. Still waiting for approval...

    21 replies 0 votes Last reply
  • melissa11970 2

    High cortisol? Only 18, EXTEEMELY SCARED

    Hi all, sorry for long story but here goes. I've had an incredibly rough few years - aunt committed suicide, mother and father separated, mother and uncle extremely depressed and bi polar and I constantly worry about making sure everyone's okay. I recently went to my doctor about small stretch marks...

    5 replies 0 votes Last reply
  • jen06195 2

    MD won't treat secondary adrenal insufficiency

    I have type 1 diabetes of 46 years. I have been recently diagnosed with secondary adrenal insufficiency and also have low insulin like growth factor. They refuse to scan of my pituitary and refuse treatment with a steroid for the adrenal insufficiency. What am I to do? By the way my doctor told me to...

    6 replies 0 votes Last reply
  • Guest M


    I was diagnosed with addissons when I was twenty nine I am now forty five, I had all the pre signs as shown in symptons of this subject, I had a brilliant doctor and consultant who made me well again after three days of steroid treatment. I gained weight and find that a battle, I also have discolouration...

    1 reply 1 vote Last reply
  • beeboop 2
  • StrivingOn 2

    High Cortisol with Mental/Psycholoical Fatigue

    Can someone help me with any advice on my combination of symptoms (primarily fatigue with high cortisol) as I can’t find my combination with various internet searches and my brain is foggy on how best to approach my GP? I’m a man in my late 50s who has always kept himself fit and relatively slim. Main...

    3 replies 0 votes Last reply
  • leckroj 1

    Autoimmune urticaria (hives)--more HC needed?

    I have Addison's Disease, hypothyroidism and vitelligo. I  was recently diagnosed with autoimmune hives. A burst of prednisone + high=dose antihistamine (Zyrtec generic) took care of them. The hives resolved, but two weeks after I discontinued all meds (except my 20 mg. of hydrocortisol (HC) and L-thyroine,...

    1 reply 0 votes Last reply
  • tismesue 2

    Addison's disease psychological symptoms

    Hi, after 13 years of being unwell and always declining, much faster in the last 3 years I seem to finally have an answer. I have a short synacthen test tomorrow for Addison's but I have many classic symptoms including darkening of skin, so I think it is highly likely to be positive. I really hope so!...

    7 replies 1 vote Last reply
  • Chris6543 1
  • brenda88659 1

    Possible Pheochromocytoma - Please help with any advice

    Hello all,  I am writing from Canada as there are no sites in my country dedicated to this condition.  I have been suffereing acutely with the symptoms of a Pheo for almost a year, my first attack was 4 years ago.  The attacks have slowly become more frequent and more dibilitating.  The attacks include...

    11 replies 0 votes Last reply
  • adesa11340 1

    ACTH Stimulation test results

    Greetings everybody,  I had a ACTH stimulation test last week and these are the results: cortisol basal 106 ng/ml cortisol_30'    190 cortisol_60'     228 The endo thinks that AI is ruled out in light of these results, which makes me happy. The baseline seems a little low to me tho, specially considering...

    4 replies 0 votes Last reply
  • Justhormonal 2

    3 "borderline" cortisol stim tests, am I ok?

    Last December my OBGYN ordered a bunch of hormone tests due to some strange female cycles. Several of them were lower than normal, so she sent me to the Endocrinologist, who wanted to do a cortisol stimulation test, I think because of the very low DHEA result (31.1 mcg/dL; normal range is  57.3-279.2)....

    11 replies 0 votes Last reply
  • fara35640 2

    lumps in the body

    I keep getting a lump on the right side of my ribs, feels like a bony mass and really hurtss. Has anybody else experienced this? I read on the internet that this could be related to Addisons.

    3 replies 0 votes Last reply
  • StrivingOn 2

    My cortisol results

    Please can someone give me their views on my results in simple easy-to-take-in terms (I'm really struggling with brain fog and just can't take in the long reads that I can find on the internet). I had a Cortisol test done as I'm looking to see if adrenal issues could be the source of my debilitating...

    9 replies 0 votes Last reply
  • daisy1 1

    Phaeochromocytoma difficult to get a diagnosis

    I have been suffering a headache every day for the last 12 months, the specialists have blamed it on everything from thyroid trouble to cluster headaches, eye strain & migraines. All of which have proved totally wrong. I am positive that at first my GP & the \"experts\" thought I was...

    5 replies 0 votes Last reply
  • jameshartley 1

    Low Energy Levels, Unable to Figure Out Why

    Hi, I've been to a doctor's recently about this issue. It used to be quite worse, and I often required at least 12 hours sleep to feel well (I am in my mid 20s). Most days I am only out of bed around 2-3pm. However, these days I find it difficult to get out of bed most days. I also find it difficult...

    4 replies 1 vote Last reply
  • kristinathomas 2

    Phaeochromocytoma Specialist

    Hi everyone. I have been very ill for almost 2 years and doctors have struggled to diagnose me correctly. I have been getting gradually worse and worse. Finally after an MRI scan it turns out I have a tumour in my adrenal gland and it has a self contained hemorrhage which shows that it is still growing....

    23 replies 0 votes Last reply
  • crustyduh 2

    Horrible symptoms no diagnosis yet, can you help?

    I'm a 47 year old female. Health conscious vegan, not overweight, non smoker & until recently, drinking well less than the weekly limit. (due to ill health have given up all caffeine - including tea & alcohol). I apologise for the length of this posting, but I am desperate to get some support & some...

    1 reply 0 votes Last reply
  • Castle805420 2

    Can Addison's Disease symptoms come and go?

    Just to make this short because I don't feel the greatest right now I'd like to get the opinion of someone diagnosed with Addison's on this. Is it possible for the symptoms to come and go or are they just there permanently until you start getting treatment? Any help with this would be much appreciated....

    2 replies 0 votes Last reply
  • fara35640 2

    Addison's and hairloss from the scalp

    Before I was diagnosed with Addison's I noticed I started to lose a lot of hair from my head. I have lost 60% of what I used to have.  I now wear a scarf as I don't like wigs. it's not coming back even though I am on the Hydrocortisone tablets.  I was only diagnosed back in September 2016.  Has anybody...

    3 replies 0 votes Last reply
  • Needhelp asap 6

    Does this sound like Addison's disease?

    Hey, so for the past 3 days I've had extreme fatigue. It started 3 days ago when I was coming back from uni and I suddenly felt my legs really heavy and I felt overwhelmed with fatigue. I was eating pretty much fine, I ate fine that day too. (quite a lot). 2 days ago, I went out for a walk where I felt...

    17 replies 1 vote Last reply
  • rachael92330 1

    SAI, following kidney transplant - anyone else?

    Hi all, new to this latest problem.  I am almost 5 years post kidney transplant.  Since October 2015 have been throwing up and it's getting to the stage it's every 2 weeks now.  I was only diagnosed with secondary adrenal insufficiency on 1st Feb 2017.  Haven't actually had an appointment with a nurse...

    2 replies 0 votes Last reply
  • Lorraine W 2

    Hydrocortisone and wind

    Hi does anyone else suffer with bloating and wind?I'm currently on 40mg hydrocortisone daily. I find myself feeling very bloated most of the day. Thanks Lorraine 

    2 replies 0 votes Last reply
  • Only Way is Up 2

    Low Adrenal Glands

    Hi! ​Does anyone have any experience on the best way to raise adrenal glands without eating animal glands?  My blood pressure is fine but adrenals are too low.  Am currently using licorice root as a tea, however would like to know anything else I could be taking to assist with improving their levels....

    1 reply 0 votes Last reply
  • gayle14m 3
  • david72297 5

    Adrenal tumors

    I have 2 Adrenal tumors on each kidney. Can anyone give me information on this?. The doctor  just said that she would just moniter their size yearily. Can anyone tell me how they effect a peson?

    36 replies 0 votes Last reply
  • rosie34970 3

    How long to feel better?

    Hello, me again I'm afraid. Just wondering - for those of you diagnosed with adrenal issues - how long did it take you to start feeling better once you were on medication? Roughly? Thankyou Rosie

    24 replies 0 votes Last reply
  • seesmith123 2

    My Adrenal Insufficiency Disappeared?

    i was diagnosed with AI, due to hypopituitarism, a little over 6 months ago. been taking hydrocortisone 3 times a day, and i got tired of it so i just stopped taking it. I was expecting headaches, tiredness, vomiting even but none of that has happened, i feel wonderful. i dont know how this happened...

    20 replies 1 vote Last reply
  • ScattyFairy 2

    Cortisol levels

    Hi to you all, I am a new member and my question that I need an answer too is what is the measuring scale that indicates a cortisol level. I had the short synacthen test this week and my level is 155 from a previous blood test. I do not know if this is anything to be concerned about and the nurse couldn't...

    9 replies 1 vote Last reply
  • kenzii92818 2

    Primary Addisons Disease ignorance

    I just got the realisation of how I have been fighting my diagnosis of Addisons disease for 8 years. Maybe going to a therapist that worked on massaging my adrenals didnt help,  when she told me that my adrenals were still working afer the massage I couldnt sleep till 4am even though I didnt take my...

    2 replies 0 votes Last reply
  • sarah8393 2

    Primary Addisons Disease

    I have had Addisons for 6 years, I take 12.5mg of Hydrocortisone daily 10mg at 10.30am with 0.5 of Fludrocortisonethen evenings just  and 2.5mg of Hydrocortisone at 4.30pm, I am managing fine, however I forgot to take my meds all day and realised this at 5.15pm after work so took them straight away....

    11 replies 1 vote Last reply
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