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Adrenal Disorders

Also known as Addisons Disease, Hyperaldosteronism, Phaeochromocytoma

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  • Can adrenal deficiency be cured?

    I have very low cortisol, and I'm waiting for further tests. I suspect my deficiency is caused by a medication, but it might be autoimmune. I'm just speculating. What I really want to know, is, is this deficiency always incurable or is there the possibility it can be cured? I really don't...

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  • Enlarged adrenal gland

    Hi All, I have been suffering with right sided flank/back pain for some time, it's got so bad recently especially after eating in the evening that I've been back to docs. I was sent for an MRI where it shows my right adrenal gland it enlarged! I've had a terrible few months but put most of...

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  • Scarry dizziness… low cortisol?

    Hi Summary: (I apologize for the long post but i tried to make it sufficiently detailed. I made this summary in hope of making the rest of the text more digestible.) I was sent to ER and diagnosed with adrenal crisis. When i was discharged several days later this diagnosis was disputed. I still have...

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  • Cushing's, adrenal surgery, high cortisol day after?

    My mom just had a right adrenalectomy to remove 8 cm tumor. She has been diagnosed with Cushing's. Day after cortisol dropped from original reading of 31 to 28. Endocrinologist is concerned. Doing 24 hour urine test today. Waiting for pathology results on tumor. Has anyone else had a slow decline...

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  • I'm looking for advice on pheochromocytoma

    For a year I've had severe headaches, very high no of 240/180, uncontrollable sweating spells, dizzyness, back pain, Palpatations and tremors in my arms. I have been under a cardiologist had a 24hr urine test which came back borderline and 2 renin tests both show slightly raised renin but the...

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  • Adrenal surgery and tumour removal post surgery pain?

    hi I've just had major abdominal surgery to remove a 15 cm benign tumour from my adrenal gland. They took it out successful plus my left adrenal.  I've been recovering well and am 3 weeks post surgery. However in the last week I've started to feel a real heavy dragging feeling (more...

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  • Extreme fatigue, weakness, exhausted and don't know why

    I am suffering from extreme fatigue and exhaustion and every test is coming back negative. Except for vitamin d deficiency. Vitamin d is just a missing part to my symptoms. I am worried that it's my adrenals and maybe thyroid. I finally got my doctor to refer me to an endo. Still waiting for approval...

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  • Trying to have a proper diagnosis of my adrenal insufficiency

    In 1965 in Spain whilst pregnant I was treated for 'problems with my adrenal glands'.  I was diagnosed in a Hospital in NSW with Addison's disease in June 2015 and doctors refusing to prescribe me HC in spite the fact that before leaving the hospital I was told I should not stop...

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  • Addison’s symptoms and dosing and menstruated cycle

    Hi everyone I wanted to ask how you are with your Addison’s symptoms.  Im female 33 years old  I’m on 10mg a day I take 2.5mg 4 x day. I don’t tolerate  higher doses say if I take 5mg I just feel really revved up and anxious. My doses regardless of the amount seem to last only...

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  • Your Addison’s symptoms and doses and menstrual cycle

    Hi everyone I wanted to ask how you are with your Addison’s symptoms.  Im female 33 years old  I’m on 10mg a day I take 2.5mg 4 x day. I don’t tolerate  higher doses say if I take 5mg I just feel really revved up and anxious. My doses regardless of the amount seem to last only...

    Posted
  • Addisons disease and sleepless nights

    Good morning, I have Addison's disease and I have been having trouble sleeping. I get terrible night sweats and have I never experienced this before. I barely sweat at all before addisons. I know the hydrocortisone and fludrocortisone have terrible side effects but I was wondering if anyone has...

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  • Phaeo-like symptoms?

    After a month or two of almost daily 'episodes' (high/volatile BP, quivering stomach, pounding heart, ringing ears, often followed by periods of shaking) which would come on randomly in a life which is not stressful, I have been checked out with MRI and MIBG for a pheochromocytoma and cleared...

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  • Weird SST results... or is it in my head ?

    So I have had a 30-minute short synachten test, a 60-minute synachetn test, a 24h cortisol collection and numerous other tests done. On my recent SST I got very weird results  9 am ( 0 hour) 771 nmo/L 9:30 (30 minutes) 894 nmo/L The consultant said all is good ( even though lab thought results...

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  • Possible Pheochromocytoma - Please help with any advice

    Hello all,  I am writing from Canada as there are no sites in my country dedicated to this condition.  I have been suffereing acutely with the symptoms of a Pheo for almost a year, my first attack was 4 years ago.  The attacks have slowly become more frequent and more dibilitating.  The...

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  • Acute adrenal failure?

    6 years ago I was under severe depression and anxiety and stress and got super stomach sick...didn’t go away, bad headache could barely walk more than a min ana nauseous morning till night. No aperite. I had to take medical leave. I became my own doctor I though I needed a psychologist . I went on Prozac...

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  • Unsure on what's wrong?

    At the start of the year I got dizzy and it shot my heart rate up to 190. It took hours to go down even though medics made sure I was relaxed. I remember being extremely thirsty and having diherea. Pretty much all bloods and a 27h ecg was done after my hospital appointment and all om. On and off I'd...

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  • Pregnancy

    I'm 3 weeks pregnant and my endocrinologist says he doesn't need to see me until my regular check up in 6 months time. Does this sound normal? I've already missed 2 days of work because I'm not sleeping at night and when I get up in the morning I'm so tired that I'm dizzy. Any...

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  • Prednisone, Anxiety advice please

    Hi new to forum and I am in the US. I have been on 5mg daily of prednisone to treat low cortisol for almost 2 years. Recently over the last few months I have noticed that I am very anxious and dealing with anxiety issues. When the treatment for low cortisol began for me the MD tried hyrdocortisone but...

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  • High cortisol and high blood sugar?

    I show nearly all the symptoms of high cortisol and high blood sugar. I'm 21 years old and a male. I done a lot of research online and found that if you have high cortisol you shouldn't do intense exercise. The thing is though that whenever i do high intensity exercise for a few weeks even, it...

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  • Recently diagnosed with Addison's

    Good morning I was recently diagnosed with Addison's disease. It took about 6 months lost 60 lbs mostly muscle finally went into the ER on October 14th and that's where they diagnosed me. I started getting lots and lots of compliments on my tan even though I didn't go out in the sun so much....

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  • New to the group. Just a few questions.

    March of 3/2017 had my left adrenal gland removed, tumor producing excessive Cortisol benign, was diagnosed with Cushings now Adrenal Insufficiency. My right gland is sleeping and I am currently on 25 mg of hydrocortisone. Cushing was horrible and i am pretty sure it started somewhere around 2005, when...

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  • Dosage of hydrocortisone for Addison’s

    Hello! I have had Addison’s for 20 years now and for the most part have been taking 15mg hydrocortisone each day (10mg in am 5mg in late afternoon)  My endocrinologist has recently changed my does to 20mg a day (10mg am 5mg afternoon 5mg evening)  Just wondering how many mgs other ppl take...

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  • Mother was misdiagnosed with Addison's 15yrs ago. Now what?

    She was diagnosed with Addison's Disease over 15yrs ago. Now her endocrine, a new one by the way, is hinting that she never had Addison's to begin with. He will not come right out and say it. Now that she is getting older I am having to step in and help when and where I can. Her has been in extremely...

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  • New here... what do you think of my symptoms?

    Hi there, I recently read about Addisons after many years of struggle... I'm sure it's not my only issue but... here goes... * Neuropathy / nerve pain in legs and feet. Rarely, in my hands * Extremely low weight + fatigue * Muscle wasting / tightness * Dizziness when eating, especially high...

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  • Low Cortisol Levels

    I'm getting very depessed & upset.My Physician just upped my Fldrocortisone to 12 0.1mg a day along with Decadron 3 2.5mg tablets. I am maintaining and holding a AM Cortisol level at 1.6........We can't seem to get above that level.Any one out there that has experienced this before?? I'm...

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  • Cortisol test results

    Hello there! I was wondering if I might ask someone to lok over my test results? I have been very ill all year and newly diagnosed with FND. However, I now want to revisit my cortisol results, as they were low. I had these done through Blue Horizons: SALIVA:  Waking: 2.19       LOW...

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  • Addison's Disease

    Hi my name is Tracy I have been in agony with my spine now for years , I had an opp to my c5-c6 and had a cage fitted in may this year . I would complain to my GP all the time saying I feel like I'm being strangled . I feel sick all the time have what feels like acid belly and when I need to go to...

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