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Adrenal Disorders

Also known as Addisons Disease, Hyperaldosteronism, Phaeochromocytoma

Can you help? Discussions needing a reply

  • ACTH Stimulating test

    So i was recently in thehospital and was told i may have a adrenal issue adrenal blood test was preformed in an around7am cane bank as 1.1. Next day had the stimulating test done at 30 min after steroids were administered leaks were raised to 15. At 1 hour they were 17. I was told in the begining...

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  • Hi there

    Had my urine tests back yday it was a 24hr 1, I work in the operating departement myself & very lucky to have a close realtionship with alot of surgeons & different specialities. When i explained my symptoms to the Endocrine consultant, He was not very happy with what i was saying so hence why...

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  • Possible Pheochromocytoma - Please help with any advice

    Hello all,  I am writing from Canada as there are no sites in my country dedicated to this condition.  I have been suffereing acutely with the symptoms of a Pheo for almost a year, my first attack was 4 years ago.  The attacks have slowly become more frequent and more dibilitating.  The...

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  • adrenal cyst

    Following an mri which confirmed a cyst in my left upper abdomen, I am due to have ct scan to determine its origin. My consultant think it's likely from the adrenal gland. Has anyone had an adrenal cyst? Mine measures roughly 7cm by 5cm. I feel pain in rib , flank and now back . Very scared...

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  • my daughter just diagnosed with addisons disease

    hello everybody,my 17 year old daughter has just been diagnosed with addisons disease after years and years of suffering, doctors told us she could be anorexic but we all knew 100% it was not about body image she just could not eat through severe anxiety her puberty was delayed and at 13 she struggled...

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  • Just diagnosed with Addisons

    Hi everyone, I have just yesterday been diagnosed with Addisons disease and I'm pretty damn terrified. I'm not sure what to think or feel and all i see is horror stories about this disease. My doctor and nurse has reasured me I can just go back to normal after I recieve my meds but I'm scared....

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  • Secondary amenorrhea 2 years update ::

    Just had my first appointment with the endocrinologist last week. Now have woken up and seem to have a period??! Has been absent for two years.. Do you think it is still worth investigating? I don't see the endocrinologist for 6 weeks so will see if I ovulate again between that time.. Bit annoyed...

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  • Pheochromocytoma?

    This started a few months ago and began by me feeling extremely hot. People would comment on how hot I felt and initially I thought I had a kidney infection. I suffer from a genetic disorder that causes issues. So much so I had my right kidney removed some years back. Urine came back clear, I even did...

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  • ACTH Stimulating test

    So i was recently in thehospital and was told i may have a adrenal issue adrenal blood test was preformed in an around7am cane bank as 1.1. Next day had the stimulating test done at 30 min after steroids were administered leaks were raised to 15. At 1 hour they were 17. I was told in the begining...

    Posted
  • Prednisone, Anxiety advice please

    Hi new to forum and I am in the US. I have been on 5mg daily of prednisone to treat low cortisol for almost 2 years. Recently over the last few months I have noticed that I am very anxious and dealing with anxiety issues. When the treatment for low cortisol began for me the MD tried hyrdocortisone but...

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  • "Episodes"

    Do these seem like Addison's-related episodes? Every once in a while (1-2 times a month) I have these days where I wake up feeling nauseous, and it stays most of the day, but I try to eat normally - I NEED to eat because I feel woozy, dizzy, lightheaded, and just generally uncomfortable (and cranky)....

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  • MD won't treat secondary adrenal insufficiency

    I have type 1 diabetes of 46 years. I have been recently diagnosed with secondary adrenal insufficiency and also have low insulin like growth factor. They refuse to scan of my pituitary and refuse treatment with a steroid for the adrenal insufficiency. What am I to do? By the way my doctor told me to...

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  • Scarry dizziness… low cortisol?

    Hi Summary: (I apologize for the long post but i tried to make it sufficiently detailed. I made this summary in hope of making the rest of the text more digestible.) I was sent to ER and diagnosed with adrenal crisis. When i was discharged several days later this diagnosis was disputed. I still have...

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  • Fatigue

    Hi for the last 2 years with my addisons I've been getting really tired just lately it's getting worse I have told my consultant but there not doing owt any clues cheers

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  • Unknown disorder, likely adrenal - need help

    I am 21 years old. My nightmare all started in February. I got a bout of what I thought was the flu. Horrible back and joint pain, shaking chills, excessive sweats at the same time, fatigue and muscle weakness, fever that would rise to 101 and then fluctuate up and down, diarrhea, no appetite, and a...

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  • Addisons and pain

    Hi, I'm just awaiting synthacen test for Addisons as I have blood sugars that keep dropping, low BP and low cortisol. I am just wondering if anyone has experienced muscular/joint pains especially in arms, around ribs and back? Occasionally the pain goes into my legs aswell, it is intermittent and...

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  • Possible adrenal problem - shakings, adrenaline rush, palpitations

    Hi guys, wondered if any of you know what it could be. Years ago I made a silly things by drinking loads of coffee and apple juice and exercising straight after. I started shaking, I had palpitations, and my health deteriorated after that somewhat. I wasn't able to drink any caffeine or eat sugar,...

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  • Adrenal gland

    I have been  diagnosed  with a    Benign 7mm module within my right adrenal gland I was  diagnosed 30-June-2017 after a ct scan after a chance in my bowel movement I have seen the gp after the scan and she said nothing  about the adrenal gland  I am worried why she...

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  • CRK CRK

    5 days no sleep, does this sound right?

    I've been chasing my tail, been on many medications from Lithium to sleeping tablets at 3x dose like Zopiclone, nothing can put me to sleep, I go WIRED to the moon to Shattered and I know it sounds crazy but I go at least 4 days a week with no sleep at all, no bed nothing. When I sleep it's 4...

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  • Understanding Synacthen Test Results

    Hi there, recently had a short synacthen test and I am struggling to understand the results. Morning baseline cortisol level of 166 nmol/l which they are saying is low. But 30 mins and 60 mins after the injection it went to 675 and 840. Any advice appreciated

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  • Addisons Disease

    Hi, I have recently been diagnosed with Addisons Disease after being really sick for about 6 months, but sick before that for a few years.  I have started my new medications and finally I am able to eat and the vomiting has stopped and my skin already is starting to lose the dark tan look.  ...

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  • Sleep problems such

    Does anyone else have sleep problems with meniears disease I wake up every hour it is exhausting. Mbalance is worse when I do this. One night I slept and my balance was much better

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  • Is this an adrenaline rush

    Ok so I wasn't having a panic attack it came from my heart palpitation and it was causing tightness in the stomach then tightness in the heart area. I've had it for 20 minutes and I've been suffering from extreme anxiety disorder but tbh this one was caused by having the heart palpitations...

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  • I'm diagnosed with Addison's disease last week.

    Hi all, I'm a naval officer n last few months started to develop black pigmentation on my knuckles elbows and had slight light headedness. Consulted a endocrinologist n he advised few blood tests. The results were really shocking as my acth was 1064 and 8am cortisol was 6.35.Together with I had...

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  • Short Synacthen Test Results

    Hi all, I hope someone will be able to advise me. I have just received my results for my Short Synacthen Test. The specialist tells me everything is normal but I am still experiencing a lot of issues like; Dizziness, Fatique, Lack of concentration and extreme headaches. My friend who is a GP told me...

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  • Elbow, armpits and knuckles change color inside the day

    I have it for at least 12 years. These parts change color from normal to brownish/black and then go back to normal. This happens throughout the day many times especially when I do exercise or have stress at work. Everytime I have some sort of stress ( even light stress) I look at my knuckles change...

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  • Adrenal Insufficiency and Alcohol

    Hi I was wondering if anyone could shed some light on this for me or even share their own experience. I used to tolerate alcohol quite well and could enjoy a night out with only a mild hangover if anything! I was diagnosed with secondary adrenal insufficiency about 2 years ago and have been on hydrocortisone...

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  • Adrenal related?

    Symptoms: Very sore flanks near kidneys and adrenals. Heavy constant low back pain. Have lived with intense social isolation and behavioral stress with rare friendly relaxation since high school. No friends, no acquaintances, no lovers, no parental involvement. Religious repression of personality. Just...

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  • Completely confused needing advice

    So, I've been on steroids on and off for over a year due to autoimmune arthritis. Had a steroid injection a few weeks ago then went to see my consultant this week for a routine appt. I'd lost half stone in 4 weeks, I've been feeling incredibly tired, forgetful, emotional and nauseous. Consultant...

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  • Primary Addisons 8 years

    Has anyone with Primary Addisons came off Fludrocortisone completely without problems. I have been told  to come off them and I  am only on a quarter of a tablet. Now??

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  • Confused by Results

    I had an 8AM cort stim test done recently, and my results were as follows: 1st Cortisol: 10.9 2nd Cortisol: 17.2 ACTH: 15 Aldosterone: 47 ng/dl The doctor said she would've liked to see my second cortisol hit at least 18, but she wasn't concerned about it (I am comfortable with that assessment)....

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  • Pheochromocytoma Symptoms - But It's Not - What Is It?

    Writing on behalf of my wife who has been expereincing dibilitating headache pain that started on the right side of her brain and now is focused on the left side. She has had CT scans, MRI, Octreoscan (nuclear), X-rays, urine  and blood tests which have indicated nothing wrong. Recent lumbar...

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  • Extreme fatigue, weakness, exhausted and don't know why

    I am suffering from extreme fatigue and exhaustion and every test is coming back negative. Except for vitamin d deficiency. Vitamin d is just a missing part to my symptoms. I am worried that it's my adrenals and maybe thyroid. I finally got my doctor to refer me to an endo. Still waiting for approval...

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  • High cortisol? Only 18, EXTEEMELY SCARED

    Hi all, sorry for long story but here goes. I've had an incredibly rough few years - aunt committed suicide, mother and father separated, mother and uncle extremely depressed and bi polar and I constantly worry about making sure everyone's okay. I recently went to my doctor about small stretch...

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  • addissons

    I was diagnosed with addissons when I was twenty nine I am now forty five, I had all the pre signs as shown in symptons of this subject, I had a brilliant doctor and consultant who made me well again after three days of steroid treatment. I gained weight and find that a battle, I also have discolouration...

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