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Adrenal Disorders

Also known as Addisons Disease, Hyperaldosteronism, Phaeochromocytoma

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  • Anna1021 Anna1021

    Pheochromocytoma

    I was diagnosed with a pheochromocytoma, which is rare I’m told. I’m nervous becaus the mass is 5.6 cm. My doctor doesn’t seem to think it’s not cancer. I have to go in to discuss with my endocrinologist and then to a surgeon. I have no idea what to expect. Should I be scared that this can be …

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  • I was just diagnosed with a mass on my adrenal gland!!

    I was just diagnosed with a mass on my adrenal gland 5.6 cm. I was told they believe at a phaochromocytima. I need to have it removed because it’s large, and I have high blood pressure, excessive sweating, tiredness and anxiety. I was told it’s most likely not cancer because it’s very rare but I’m …

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  • New and haven't a clue!

    Hello everyone! I am new here. I went searching for a forum where someone may understand what I'm going through. I had spinal surgery in August 2017 and was placed on a special floor because my heart rate dropped extremely low and my blood work was coming back abnormal. I was told to follow up …

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  • Pheochromocytoma

    I was diagnosed with a pheochromocytoma, which is rare I’m told. I’m nervous becaus the mass is 5.6 cm. My doctor doesn’t seem to think it’s not cancer. I have to go in to discuss with my endocrinologist and then to a surgeon. I have no idea what to expect. Should I be scared that this can be …

    Posted
  • Help! :(

    Most days, with the exception of a few here and there- I have the “jitters” inside. I do not drink caffeine at all because of this. I feel like I would if I were to drink Coffee or a few Redbulls. This makes it terribly hard to fall asleep at night. Sometimes it feels like my heart is beating a …

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  • Extreme fatigue, weakness, exhausted and don't know why

    I am suffering from extreme fatigue and exhaustion and every test is coming back negative. Except for vitamin d deficiency. Vitamin d is just a missing part to my symptoms. I am worried that it's my adrenals and maybe thyroid. I finally got my doctor to refer me to an endo. Still waiting for …

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  • Cortisol levels

    Recently had my cortisol checked through my doctors office via a 24 hr saliva test. My results are as follows:  8AM- 0.19 mcg/dL  12PM- 0.10 mcg/dL 4PM- 0.19 mcg/dL 12AM-0.10 mcg/dL The doctors office says these are within normal range, but is still referring me to a endocrin to explore …

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  • Please help

    So I have been dealing with this for about three years now! I have repeatedly told my primary doctor that something is wrong but got absolutely no where I was sent to a psychiatrist for “depression” well that didn’t help anything at all, I have just recently asked my primary doctor for the referral …

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  • Hormones and stress

    In 2012 I had a hysterectomy I was put on estrogen. In 2015 I quit which I regret and I don't remember why I quit. I did really will not having to take the estrogen. In August 2017 I lost my job and that's when the stress begun. I went through hurricane Harvey, lost my cats, and lost …

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  • Please help me...

    I am desperate. I am scared. I have lost all hope. I just had my 22nd birthday, but somehow I feel as if I will not make it to my 23rd. I have been suffering from a mysterious debilitating sickness for a year and a half. I have seen numerous specialists and doctors in hopes of getting this …

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  • Post Adrenal Insufficiency Primary

    I will appoligize in advance this post may be lengthy; History: 3/2017 had an left adrenalactomy. (Cushing’s Syndrom)Placed on HC 30mg per day. 1/2019 after a stim test was ordered because my numbers looked good we began to ween me off of the HC because the right suppressed adrenal gland began to …

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  • excess hormones

    i've been experiencing symptoms of high cortisol for about 4-6 years. i finally went to my GP to get it checked out. bloodwork came back showing high cortisol. i've been sent for a CAT scan. GP isn't saying much but he says it might be a problem with my adrenal gland. i'm so worried …

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  • Is this an adrenaline rush

    Ok so I wasn't having a panic attack it came from my heart palpitation and it was causing tightness in the stomach then tightness in the heart area. I've had it for 20 minutes and I've been suffering from extreme anxiety disorder but tbh this one was caused by having the heart …

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  • ACTH test

    hi can anyone tell me how they got on with acht test SSTest side effects if any as due one this wk thank you

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  • synacthen short test

    Had this done last week. They put a Cannula in (took some time, my veins are a bit rubbish) and took blood, injected the synacthen and took some more blood 30 mins odd later. That was it, I felt great for rest of day and evening. However woke up at 5am didnt feel great, flu like feelings and really …

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  • Addisons affecting my nails

    Hi people I was diagnosed with Addisons recently and started taken Hydrocortisone a month ago. Since then my toenails have got really thin and are splitting down. It is getting painful and I am worried they might rip off. Has anyone had this too? And help or suggestions what to go would be amazing!

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  • Adrenal Tumor

    Hi, After being treated for about 20 years with conditions such as stomach pain, high blood pressure, diabetes, tons of stomach issues, and bowel surgeries, I recently requested that my doctor send me to a gastroenterologist. A few years before that, a tumor showed up on a stomach CT. They had …

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  • Worried incase I have addisons disease

    Hi all, I'm 32yrs old and have 5yr old twins and a 2yr old. Since I had my youngest I've been very unwell. I was diagnosed shortly after his birth with underactive thyroid and take daily levo thyroxine. Still don't feel at all well even with adjusting dose etc. When he was 3 months old …

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  • MD won't treat secondary adrenal insufficiency

    I have type 1 diabetes of 46 years. I have been recently diagnosed with secondary adrenal insufficiency and also have low insulin like growth factor. They refuse to scan of my pituitary and refuse treatment with a steroid for the adrenal insufficiency. What am I to do? By the way my doctor told me …

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  • Please Help. Undiagnosed Disorder

    Please I am looking for help understanding if my issue is related with the adrenal glands and the cortisol production. I think I am in the right place since many of you should know the symptoms of that. Please advise me. I have been sick for seven years and no Dr knows what is the cause of all my …

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  • Taking levothroxine and vitamins

    Hi there I'm new here so hello to you all. I take 75mg of levo every morning with a full glass of water 1 hour before food. The doctor said I could take 100mg one day and 75mg another day if I wanted to test it as my level was a tiny bit low. I noticed that I have alot of hairloss recently it …

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  • Low Cortisol...little NHS help

    Hello, I'd been feeling fatigued/jelly legs/craving for sugar/energy for about a month until I went to the doctors. First blood tests identified cortisol was down at 170 (bloods done at 11am) and lacking in Vitamin D. 2nd Round of tests was at 9am and cortisol remained at 170. 3rd test (9am …

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  • Sleep, pain, anger

    Hey so I’ve been getting my 8-9 hours of sleep at night, but I wake up 3 times to go to the bathroom. I have a syndrome called elhers danlos and my body produces too much adrenaline while I’m asleep. I get to sleep normally, but wake up every 3 hours or so to go to the bathroom. I’ve noticed I’ve …

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  • adrenal fatigue? Could this be it?

    Twice now in the space of 12 months I have developed a very similar set of symptoms which have followed a similar progression yet I remain undiagnosed. On both occasions I began with some mild stomach discomfort which I thought might be gastritis. My GP didnt seem overly concerned though. …

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  • Cfs

    Skinny, physically exhausted, restless legs. Can this all be hormone imbalances? I seem to have chronic fatigue and Fibro symptoms poking me throughout a day. Pain in lower right side of tummy, scan shows a bulky uterus.  This has been happening all my life every time u have been off …

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