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Extreme fatigue, weakness, exhausted and don't know why

I am suffering from extreme fatigue and exhaustion and every test is coming back negative. Except for vitamin d deficiency. Vitamin d is just a missing part to my symptoms. I am worried that it's my adrenals and maybe thyroid. I finally got my doctor to refer me to an endo.

Still waiting for approval from my insurance. I was wondering if anyone with adrenal problems have similar symptoms as mine.

I awake very tired in the mornings unreplenished from sleep and I am very hungry, I have to eat something. I have to eat every 3 hours or I get weak.

My fatigue is physical and some what brain fog. I can't function normally any more on a daily basis. Doing simple chores exhaust me. Some days I am unable to do anything not because I am lazy but I don't have the energy. It feels like I am recovering from running a marathon.

My fatigue started in October with a stressful job and doing too much. The fatigue just started getting worser as time went on. The lighthead, head pressure, irregular hearbeat, palpitations, irregular highblood pressure spikes, neck and shoulder pain and hands and legs get heavy at night, fingers sometimes get numb.

I don't get replenish from eating or sleeping. I don't understand it. What is wrong with my body? I've never been this sick in my life. Always been healthy except for doing a little bit more than I should.

Some days I feel like this his how it feels like to slowly die. Wondering if my body will eventually shut down. It's been 7 months just sitting and waiting for more tests and suffering.

Any insight or advice on what test to request to take from endo and questions to ask.

Thank you

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  • kenzii92818 taro93814

    What tests have come back normal..

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    • taro93814 kenzii92818

      Vitamin b12, folate, iron, ferritin count, mono, Antin unclear antibodies (ANA), rheumatoid factor, MRI, Aldolase, total CK, C- reactive protein, sedimentation rate, and TSH. All came back normal but vitamin D.

      I'm waiting to get a echocardiogram, been having irregular heartbeat, random highblood pressure spikes, fast resting heart rate and alot of headpressure. I'm already fatigue but when my heart acts up I get extra weak and lightheaded.

      Waiting also to get referred to an endo to rule out others things.

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    • kenzii92818 taro93814

      Ok, have you been losing weight even if you eat normally.

      Have you increased thirst and/or urinating more or been checked for Diabeties,

      Have you had your cortisol output checked

      The list could go on, however seeing that you had an MRI scan I think this would have picked up anything abnormal, so wait to see what the endo says,  just ask would the MRI scan have picked any adrenal problems, relating to low cortisol, as you said you are always tired in the mornings and dont feel refreshed after a nights sleep.

      I am sure it would have but hey it is still worth asking the question to rule that one out.

      Once  the echolcardiogram is done and hopefully  all is ok with that. Then work from there and hopefully after seeing the endo he/she may be able to look at everything you have had checked already and go from there.

      Unfortunately it is one step at a time to rule things out, even though that is the worst part as it is always a waiting game, and maybehe/she will do more tests . hopefully you will get the answers you need to sort this out for you.

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    • taro93814 kenzii92818

      Thank you so much for replying and giving me such sound advice. I will definitely ask about the MRI picking anything abnormal on my adrenals.

      I'm just learning about the health care system and seeing how frustrating it can be. I've never been this sick in my life. Always taken good care of myself to stay healthy. Only time I've been to the doctors is only once a year for a physical.

      First time seeing so many specialist and it can get very overwhelming not knowing what to ask or advocate for myself, just relying on doctors expertise.

      It will be a long road ahead but I'm very hopeful. God is good everything happens for a reason. Thank you again. Your words gave me much comfort and direction for the next steps.

      Have a blessed day! Take care.

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    • kenzii92818 taro93814

      Thank you Taro,

      When problems arise in health  it is very daunting especially when you feel so bad and still have no answers. So hang in there and I hope you get the answers very soon as to why you are feeling so bad. And you get the help you need to make you better, so that you can get on with your life GOOD LUCK , and when you have the answers please drop me a line on here. And try not to worry (easier said than done I know).

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    • kenzii92818

      Forgot to say even if your adrenal from the scan come back normal, still ask for Cortisol levels to be checked, the scan will just show if the adrenals are damaged, but you can still have low Cortisol output.

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  • Justhormonal taro93814

    Ugh that sounds a bit like me. They diagnosed low B12 a year ago and the B12 shots help but don't get me back to "normal." Women's doctor did some hormone tests and I'm not in early menopause (turning 40 this year) but some hormone levels are quite low so they sent me for the cortisol stimulation test. It has come back borderline but just on the "ok" side - they did it 3 times to see if it changed - so they are not treating anything. Ok great, so this is how I'm going to feel the rest of my life?? Brain fog and everything. The only other thing it might be, in both my case and maybe yours from some of your symptoms, is anxiety and depression. I had anxiety 6-7 years ago and the symptoms are not the same, but I can't quite rule it out. I may go back to my GP and request a trial of anxiety meds to see if it helps. For you, I hope they figure out something with your endo and that you can get the testing done SOON to get some answers!!

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    • taro93814 Justhormonal

      Thank you Justhormonal, I'm thinking it's my hormones, adrenals or thyroid and hopefully the endo will have some answers for me. Im hoping this is not a life sentence either.

      Feeling like this every single day at 36 years old is very depressing especially having kids to take care of.

      BTW have you considered supplementing with magnesium? I've started on 300mg now increased to 400mg. It's helped a little bit with my energy, headaches and brain fog. Better than nothing at this point.

      I hope you get better soon.

      I hope you start feeling better soon.

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  • fara35640 taro93814

    You poor thing.  I feel the same even though I am on the Hydrocortisone.  I know what it's like to feel exhausted all the time.  You must ring your doctor and make an emergency appointment and this doesn't sound good.

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