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I am writing from Canada as there are no sites in my country dedicated to this condition. I have been suffereing acutely with the symptoms of a Pheo for almost a year, my first attack was 4 years ago. The attacks have slowly become more frequent and more dibilitating. The attacks include violent shaking, blister headache, vomitting, sneezing, heart pounding out of my chest. After an attack, I feel nauseated, weak, ache all over and have a headache that lasts for many hours. I have an attack almost every day and little exertion is now required to bring one on - sometimes getting out of bed does it. In between attacks, my BP is normal. It has disrupted my personal and work life beyond recognition. I have seen every "ologist" under the sun and only recently was told after blood and urine tests done by an Immunologist that I likely have a tumor on my adrenal gland. I am now waiting to see an Endocrinologist to have the diagnosis confirmed.
While I wait for this appointment (7 weeks - don't believe what you hear about the Canadian health care system being wonderful), can anyone reccomend anything that can reduce the chance of having an attack or the severity of these attacks. This seems funny but I was out on the town with my girlfriends several months ago (drank copious amounts of alcohol) and danced to the point of being out of breath and sweating - and NOTHING happened. Has anyone been prescribed CNS depressants as a way to ward off attacks? I'm willing to try anything though obviously becoming an alcoholic is not an option...hahaha.
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