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6 month worrying symptoms swollen lymph nodes - anyone had the same ? :(

Posted , 5 users are following.

markm70857
markm70857

Hi,

This is my 6th+ month since it was said most probable cause of my struggle EBV + CMV co-infection / reactivation + on top s. aureus in my throat, for which I got two antibiotics, unfortunately they didn't get rid of persistent bacteria and cause flare up of my symptoms 😦

Mono was diagnosed based on symptoms and very high Igg EBV + CMV (igm antibodies were not captured at that time since it could have been too late for the test, I got EBV tested 1 month after initial symptoms).

My symptoms got better over time since awful start of the whole thing, but I feel my lymph nodes constantly in my neck and submandibular being swollen plus in the armpits occasional pin pains - they got bigger over time. I feel like a cold sensation there, the pin pain migrates form the nodes (but it is a center of it) to my jaw, ear, saliva glands. Its awful. I re-gained my energy levels and despite this lymph nodes being swollen I feel quite normal but this swollen nodes scare the s... out of me 😦

I started asking myself is this mono causing this, can mono give such problems in 6th month.. How come they are large for so long. Could it be this bacteria is causing constant glands being swollen around my jar and neck on top of mono ?

I started to help my immune system by taking natural stuff like garlic, monolaurin to fight it but it was not big of a help so far.

I am comforting myself that there is a progress since the symptoms are definitely decreasing from initial big hit of fever, extreme fatigue, night sweats. Now this is all gone only but this lymph nodes 😦

I got tons of tests, several USG scans of my nodes and they got bigger over time, nothing suspicious found except they are oversized, two reached 0,9 inches few others are also swollen (their structure on the scan is ok except being swollen) all other test are perfect liver test came back to normal, blood is ok (elevated white cells came back to normal, C-reactive protein is very low showing no inflammation) and got some additional tests like LHD + proteinogram and it all came good. I visited hematologist twice so far since I was worried ab this lymph nodes being swollen for so long and I was told this is not lymphoma. At the time of a visit glands were smaller.

Anyone got same symptoms in your 6th month ? Is this normal with mono ? I am very worried 😦

0 likes, 2 replies

2 Replies

  • Mono_too
    Mono_too markm70857

    Posted

    Hi Markm,

    I had swollen lymph nodes in the neck and jaw area for over six months, I am not sure why mono does this, it will eventually pass. I didnt have any bacterial infections that I know of, but keep an eye on that.

    • choowho
      choowho Mono_too

      Posted

      were you tested for cancer? just in case. I'm worried too, one of my lymph node is just there 😦

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