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6 months till 2nd neuro appt....

Posted , 9 users are following.

mariat63
mariat63

.... but I have the MRI results and am wondering if anyone can help me make sense of it all? I have had many MS-similar symptoms but my worst problem when I saw the neurologist last was leg jerking and arms flailing ( used to be so bad it woke me up!) He only wanted to focus on one symptom so couldn't mention other symptoms. Tingling fingers, stiffness in neck, legs and ankles, pain in feet, lumbar, neck, knees and shins, EXHAUSTION, muscle twitches, words disappearing before i can say them, memory and cognitive problems, tinnitus, etc. So he thought the jerks and flailing may be due to the antidepressants. Seems he was right as a month on I am left with only occasional jerks and a strange wrist rolling action.

MRI (head) shows periventicular high signal white matter foci seen bilaterally at the centrum semiovale in t2 and dp images, may represent small vessel disease, microangiopathy or myelination. In areas of the spine there are a couple of cysts and several mentions of disc protrusions and disruptions. Do you think my symptoms may be due to the spinal problems or does the demyelination suggest ms?

0 likes, 22 replies

22 Replies

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  • regie01246
    regie01246 mariat63

    Posted

    I've been receiving treatment for 2 yes now....its not bad except for the injections three times a week....
  • jaime_00003
    jaime_00003 mariat63

    Posted

    It could be spinal, but very likely MS related also, if other similar diseases have been ruled out.
  • jaime_00003
    jaime_00003 mariat63

    Posted

    ... Like PainFury has mentioned, MS generally causes multiple symptoms and I find it so very silly for these so called neurologist  not to acknowledge this, and quite dumb and suspecious to be honest about it.
    • mariat63
      mariat63 jaime_00003

      Posted

      I know! Think I got a bum deal with this neurologist! I will be much more assertive when I do finally see him again....they need to remember that they have real people in front of them, trying to lead real lives.
  • graham6214
    graham6214 mariat63

    Posted

    hi mariat my wife has the same problem her nuroe said it could be jue to nerve sleve damage but in the end come up with te diagnoses of mus medicaly unknown syndrome my wifs physio suggested conversion disorder in which we are looking into all the best for the futer graham
    • mariat63
      mariat63 graham6214

      Posted

      Hi Graham, I've heard of conversion syndrome, let me know....
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