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6 Operations

Posted , 7 users are following.

zoe61288
zoe61288

Hi All, 

I have had 6 operations to get rid of Bartholins cysts and abcesses. They get so painful and are so frustrating as you cant walk, sit or stand or anything comfortably!

One of them got so big it was the size of half an avocado.... you can imagine how bad that was !

They have all been in my girlie region and just get so intense... and then I get the surgeries and out for about a month of pain and healing... 

One thing that I do suggest to all, it that if you do get the surgery done, to have biodegrable mesh put in the insinsion. I got this done on the reoccuring side and it hasnt come back and no issues with that side so far ! unfortunately it has come up on my left side but they put mesh in there so hopefuly, that gets rid of it once and for all.... 

2 likes, 8 replies

8 Replies

  • crystal_08850
    crystal_08850 zoe61288

    Posted

    Do you have sjogren's syndrome by chance? My doctor said the bartholins gland isn't related to HS but I am currently being tested for sjogren's which is where your moisture glands are attacked. Eyes, nose, mouth and vagina moisture glands. It can progress to other things after that such as lungs and liver, etc.??? I've had trouble recently with my bartholins, saliva glands in my mouth and my eyes lately...
    • dale21499
      dale21499 crystal_08850

      Posted

      I have HS, Sjogren's Syndrome and multiple sclerosis. They say it is very common to have severest autoimmune diseases and I'm 100% conclusive on all of those. My mother also had HS

      I just got the abscesses cut out and sent to the lab for testing. They were never called Bartholins. I also have the tracks so I'm sure mine is HS. Does anyone know the difference between HS and Batholins? I'll post again when I get Lab results of what it was.

    • crystal_08850
      crystal_08850 dale21499

      Posted

      It's a gland in the vagina, so if you're a male then you wouldn't have that problem!
  • hypercat
    hypercat zoe61288

    Posted

    Hi I think HS is different.  The way to stop these recurring in the same place is to have them incised and any matter scraped out.  I am glad the mesh is working for you though. x
  • tammyjo311
    tammyjo311 zoe61288

    Posted

    I have HS and an awful flare up right now Dr on Wednesday, they have no clue that in 2 days things can die down alil then come back with a vengance, and i need them to see what im dealing with now, its so bad...the right side of my vagina is 2 times the size of the left due to inflamatiom..i sit at work, which doeant help, not that walking and standing is any circus..;(..sick of this horrible disease...and im 50 and thought and was told things would improve over time..it has NOT..;(
    • michelep54
      michelep54 tammyjo311

      Posted

      I have the same problem and I was told there's nothing they can do and surgery is painful and usually doesn't help. I just saw a specialist last week.

      I was also told it gets worse with age. I'm 45 and been dealing with this for about 15 years. It's gotten so much worse in the last 3 years. I left the doctors in tears as I just don't know how I am going to live with this problem for the rest of my life.

      When mine flare up like yours I sit in a super hot bath every day until it finally bursts on its own. Then I put neosporin on a non stick gauze pad and place it over the area . It's the only thing that I have found that moves things along quicker and makes it a little more tolerable to wear pants or sit or walk etc.

      I hate that we have this stupid embarrassing disease. Hope you find some relief.

    • tammyjo311
      tammyjo311 michelep54

      Posted

      Thanks Michele..luckily it has calmed down luckily..he put me on Clyndamicin 300mg which I thought I would die from I got so deathly sick, and now on Bactrim, but he has referred me to a specialist in Washington DC to begin Humira treatments and after reading about its pretty darn scary, however I just cant do this anymore...DONE!, so the side effects will just have to be what they are, I swear its like having a terminal illness at times, it sucks the life mentally and physically right out of you, and Im certainly not trying to make light of any terminal illness...but im tired of living in pain..sad
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