6 or so months in... fatigue is no joke

Edited , 4 users are following.

Hi all,

after a carousel of symptoms since october of last year, I finally had a couple of good weeks around the middle of february. Thought this was finally behind me but went on a week long trip to LA and boom got hit with some manor fatigue again that has lasted everyday for the past two weeks. dont know what to do at this point. doc is gonna run some more blood work this friday but to have 2 good weeks then relapse is defintely disheartening!

doesn't help with the anxiety either as now it makes your mind wander again.. has anyone else had moments of normalcy just to have the fatigue come back in a bug way this many months in?

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  • Edited

    Yes it is normal to have this happen. I am in my 26th month and still feel at times especially with a cold or after a stressful week. Hang in there, don't make this bigger than it is, remember how far you have come and keep the faith!

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  • Posted

    Hi Eric,

    Yes-if I don't get enough sleep or have a really busy weekend (working out, running too many errands, cleaning, etc) then I will get hit with that almost breathless fatigue feeling a bit. Not nearly as bad anymore though.

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  • Posted

    Thanks guys! It's always comforting to hear from others so I really appreciate it. It's the roller coaster of it all that pulls the rug from under you. To have 2 good weeks like that just to have extreme fatigue hit RIGHT before my vacation definitely sucked. I have to keep a level head through it all and keep reminding myself it's a long process.

    @Clidecjay sorry to hear you're on month 26. Hoping that the majority of the time you're feeling good though!

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  • Posted

    Hi Eric,

    yes, it has been almost 2 years for me and I still get periods of fatigue! Not nearly as bad as the initial feelings of weakness and tiredness but it still gets to me, and with it comes the anxiety. It's just the weird way this thing is.

    It can be so discouraging to have these ups and downs, especially when all we wanna do is go back to normal and go out and do things and socialise and work. But being able to accept the situation and trying not to worry is the best thing to do for yourself. Get as much rest as possible and self care! Stress makes it so much worse.

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