6 weeks clear of disseminated GA using Acitretin

Posted , 6 users are following.

85% Clear! Tried many, many remedies, this is the first one that worked. It has some side effects but today was the first day in 3 years I wore a sleeveless shirt when I wasn't using Prednisone. 😂

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  • Posted

    I took ACCUTANE which i think is probably similar when i was young.. I am all for trying ACETRETIN .

    Was it hard to get your doctor to prescribe it and was the medication covered by insurance? What were your side affects.? how long have you had GA?

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    • Posted

      I had disseminated GA for 3.5 years.

      The Drug is covered by my insurance, otherwise it is $33 a pill. I went to a well known Dermatologist in Coral Gables that used to be the head of U of Miami Dermatology. He suggested the medicine. I tried everything else. I still have some residual spots of the GA but 85% better. I am supposed to use topical steroids for the smaller areas.

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  • Posted

    Hi Lucy,

    I have just started taking isotretinoin, (day3), and I'm thrilled to hear that you have had some success with the drug.

    Could you let me know what dosage you were on & how long it took to see any improvement?

    I would be so grateful as I have been living with this for over 3 years now. I have over 100 lesions on my legs & it is now spreading to my arms & chest. I know the condition isn't life threatening but it really is effecting my mental health.

    Any information you could give me would be greatly appreciated.

    Kind regards,

    Debra

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    • Posted

      Hi Debra,

      I have over 100 lesions now as well, and I dont want to leave my home. This is really effecting my mental health as well. Im here for you if you want to talk as it helps me too. I do not have any lesions on my face yet, do you? I pray they find a cure for this awful skin disorder.

      How long have you had it? I was diagnosed in August of 2018.

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    • Posted

      HI Patti,

      Thanks for your message, so sorry to hear that you have been suffering too.

      I've had this dreadful skin disorder for over 3 years now.

      At the moment I am taking 40mg of Isotretanoin daily. I took 20mg for 4 weeks & have been on the higher dose for about 5 weeks now. As yet there doesn't seem to be any improvement but I am hopeful. Side effect haven't been to bad, skin is a bit dry especially my lips. Having regular blood tests as the medication can effect liver & kidneys, so far so good.

      Will keep you posted if i have any success.

      Likewise if you have any luck with any treatment please let me know.

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    • Posted

      I absolutely will let you all know if anything works ! i never knew how much wearing shorts or sleeveless shirts would be missed!!! I live in Florida!

      It helps me mentally just talking to others with same condition, thank you!

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