6 year old with gall stones

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Three years ago my son had a ketotic hypoglycaemic episode he's blood sugars were 1.2 - the specialist we saw said I could control with diet and he would grow out of it we are now at the stage where the last 6 weeks on and off he has had tremendous stomach pain in which we have been advised by my doctor to give calpol etc I've taken him to a&e and been discharged with the diagnosis of torn muscles - recently they have done blood tests which reveal extreme high level of liver function we were admitted to hospital and after ultra sound they have found gall stones (not normal at this age) - we were going to be transferred to another hospital to remove he's gall bladder which didn't occur as on now they say he can wait 9 days to c specialist - while in hospital another doctor when taking bloods said she believes there is an underlying issue but didn't want to say as it may frighten me and it was down to her boss (consultant) as to what will happen she said he's liver function then after being in hospital for 3 days had dropped to over 1000 and a 'normal' person was 100 - my problem being I've been discharged from hospital with a child who previously had extreme pain once or twice a week to now been in moderate pain constantly extremely lethargic ketones in urine (even tho hardly weeing) unwilling to eat or drink vomiting and passing grey/white stools even when leaving hospital they were aware of this Any advice appreciated

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  • Posted

    Hi everyone, I have been on a search for answers for my sister in law. I found your forum and saw my sister in law reflected in your concerns, questions and care for self and one another. She ha been in this situation for 16 months now, with gnome surgery 3'5 months after pain nausea started. She has all symptoms you all have. She has lost several stones, and walks constantly. She also has very bad knee, which has amplified terribly due to the constant walking when awake, which is most of day n night.. I have tried to help as much a I am able. Sadly we live in different states. They are moving back, but I am still on search for HELP for n with her. My brother has medical issues an is wearing himself out helping his wife. She to has had a gazillion tests. They have referred her to special ist in different city. But they want lots of cash. Up front. She won't have coverage til January. So she waits waits till then or what.?? Thank you for any input advice.

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  • Posted

    Oh. My little guy. I am sorry. I wish I had some answers. This seems to be something Des. Are aware of, but are shaking there heads n passing people else where. Keep praying one of them will persevere to find out what this is that is affecting so many young n older people's. There is an answer. Just where???
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  • Posted

    I am new to the forum and I see I have words in that I wasn't trying to use. The forum I was following was with a lot of people that have same systems and issues my sister in law has. I have tv and have the nausea and the other systems that go with it. But I really worried for my sister in law. She wants to give up, n I keep trying to help. I too was hoping to get some advice from those who have been dealing for so long with this. Well I will advice my sister in law of this forum and hopefully someone might be able to help her or she could help someone else.
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