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My 6yr old daughter was diagnosed with Chiari last year after we found her unconcious in bed one morning. She ended up on a ventilator in ICU with brainstorm compression (they thought it was encephalitis), but made an amazing recovery and eventually was diagnosed with Chiari from her follow up MRI.
She had decompression surgery 4 1/2 months ago and since about 2 months ago has been wetting the bed every night, sometimes twice a night. Has anyone out there experienced this? She's been discharged from neurology and had no follow up from neurosurgery since her operation and I don't know whether to contact her NS (who is 3hrs away) or see our local family doctor (who has no Chiari experience). Is this a possible Chiari symptom or just one of those childhood things?
Her NS was fantastic, but feel like now she's had the surgery, there's no real support for what we do next (we're in the UK).
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