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Our son has recently been diagnosed with achalasia. Last thursday he has had his second dilatation because the effect of the first dilatation only lasted for one day. He uses a nasogastric tube, because the only thing now he can keep inside is custard..
As parents we are sad because of the impact it's having on him now and we fear for the impact on his future. What can we expect because of his age, so young! Will more dilatations help him, surgery seems so drastic... And he's still growing..
I apologize for my writing, I'm Dutch and couldn't find what I was looking for on Dutch websites.
I hope there is someone here who has experience with young achalasia patients, how to deal with it all....
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