7 months since episode of dizziness and now head pressure, weird vision, etc.

Posted , 7 users are following.

hi all,

ive been to a few doctors and i have not been given a diagnosis. im so fed up and would appreciate any helpful suggestions of what this is that i have.

it all started with a feeling of off balance and fatigue. One day, around 9 months ago, i threw up because i had eaten too much (it was voluntary and to this day i regret it). i developped severe tummy aches and a huge headache the likes of which i had never known (i dont get migraines); i go to the er and they give me pain killers basically. turns out later that i had developped ulcers, but thats not the concerning part. the nights after, i get extreme insomnia and i develop brain zaps. the insomnia lasted a long while; i had to resort to some sleeping pills which worked sometimes and at at other times not. this takes a hold of my life until i start to feel like maybe things would get better although there is still some insomnia, head zaps and weird head pressure.

However, one day, while walking i get this immense sense of fatigue and i head home. This is followed by an episode of dizziness that lasts for a few hours. I wake up next day and my vision has completely altered; it looks like the floors seem slanted and things look weird, i cannot really express how. my balance is off; it seemed like my footsteps were not coordonated with my vision. i would be in a strange room and i would have the sense that the room was crooked, falling off even to one side. Sometimes it seemed like my environment was in flux, motion even though it wasnt. I go see a neurologist who asks for an MRI; the result shows that theres nothing wrong there. i go see an ENT who suggests that maybe i got an inner ear infection that would soon heal. I even went to a psychiatrist for medicine to help with the incurrent anxiety...

Here Iam many months after and ive had a myriad of of symptoms, the latest of which is nausea, weird head feeling, feeling very feeble. ive had tinnitus, constricted throat, stiff neck (all the way down to shoulder cradle at one point), weird shaky vision, hyperventilation at one point, brain zaps that gave way now to a weird head feeling (i can only express it by comparing it to the way one feels when stung, but inside the head), panic attacks, etc. I feel so down because of all this, because of the uncertainty of my situation. ive checked neurology, ive checked if i had lyme...all lead to dead ends. i have no clue what is happening to me and im scared.

Thank you for reading this and again, any helpful suggestions wouls be much appreciated.

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4 Replies

  • Posted

    Look into Vestibule Migraines, I'm lucky enough to be allficted with these beauties.

    Constant dizziness and brain fog, which is accompanied short quick spirts extreme, feel like the world is spinning dizziness. Its awful. Apparently mine is brought in by allergies, which entails being allergic to basically every nice tasting food there is.

    Oh, and these migraines are painless, so you don't keven know you them.

    Awful, they have ruined my life. The worst is the brain fog and lack of short term memory and constant pressure around the bridge of my nose.

    Something to look into.

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  • Posted

    Hi Tammy65716,

    I am sorry to hear that you suffering with this silence disease as I called.

    How do you know you don't have migraine?

    Migraine is not only headaches, you cannot believe the other hidden symptoms of migraine as my Neurologist explained to me. (nausea, blurry vision, rocking sensation, unsteadiness, and unbalanced body).

    Please see all my replies to see how i suffers with horrible symptoms and lasted nearly 3 years and i am still suffering, I must say sometimes I am better some days I completely come back to where i was as first time this symptoms started.

    Firstly you need to push to see different Doctors to find out a good neurology, don't stay in bed all day it makes your symptoms worse and bring other illness, like i t happen with me.

    you could have vestibular migraine,

    Mine was diagnosed with Migraine prophylaxis which affected my brain and caused PPPD.

    this condition it cannot detected on MRI, is special test which last for about 2 to 3 hours and they will control your eyes on the computer while they put cold and hot water in your ears and they make you spine purposely to find out exactly the problem.

    Mine it has been diagnosed and i have taken candesartan for 3 months but it didn't work with my body, i had to decrease the dose and stopped it for last 3 days, I feel a bit better.

    I am starting my first session to day for Balance Therapy to teach the brain to come back to normal.

    I hope you will find a good neurologist and please don't let yourself down, you are the one who is going to heal yourself, find million way to exercise , to go out for walk, swimming ... ect

    Please let me know how you cope.

    Best of Luck


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  • Posted

    Tammy sounds like my life story. are you still getting ulcers? I have an auto immune disorder and suffered many of your symptoms. i am glad to say I am now in remission after treatment but took a long tine to get there. Have you ever seen a rheumatologist? Has anyone along the way tested esr crp or ana in your blood? Probably not or never mentioned it to you perhaps.

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  • Posted

    i agree with everyone. look into vestibular migraines, you dont need the pain of the headache. silent. but all your symptoms could be your migraine. you need to look into a dizzy clinic in the major city where you live. they will do the proper testing. i have vestibular migraines. i am better now, its been over a year and i am on medication. it gave me my life back.

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