7 Months Since Surgery - Still Issues

Posted , 2 users are following.

Hi guys,

Thought I'd post here and see if anyone has any tips or advice.

I'm late 20's, fit and active and no health concerns (part of my job requires passing a strict medical assessment) and had a hydrocele for a few years now. I went to see my GP about it and ended up getting the surgery to have it corrected. During the healing time, it got infected about a week after the procedure, but I got prescribed a treatment course and completed that and carried on with the healing process.

Approximately one month after the surgery, I was expecting to see results but I was noticing that my testicle was sitting really high and not descending in height. It looked and felt like it was sewn to the scrotum. I checked various forums like this because I was beginning to get concerned. To put it into perspective, the operated testicle sits right below the base of my penis and the other testicle moves up and down normally. I can fit my entire finger horizontally between the bottom of the operated testicle and the normal testicle's top. It looks ridiculous but it's the physical aspect that concerns me most.

I phoned my GP and he was busy, so I spoke to a female GP who I explained the situation to. Her comments were less than useful and by her comments, it was clear and very obvious that she didn't know what I was meaning by the testicle not moving. She even claimed that one testicle is supposed to sit a little higher than the other so it's nothing to worry about. I knew fine well that she wasn't getting what I was saying. She even suggested that the connecting Vas Deferens (I had to Google that after the call which freaked me out) may have been cut during the procedure and that was why it was a little higher than normal. But her last words were that it's too soon to really see anything wrong and to leave it 3 months and check in then. She also suggested I contact the surgeon and get my medical records as without them, it'd be difficult to truly assess what had happened or what was going on with the healing.

I contacted the practice where the surgeon practiced (I was an outpatient to another health board) and he was supposed to phone me before Christmas. I gave my name and number and said that I was working from home but I'd step away to answer his call as this was an important issue to me.

He never ended up calling me and I had to call him again in January when places opened up again. He said he had never heard of what I was describing before and that due to covid, he would personally write to the urology consultants at my local hospital for me to be seen there. I also scheduled an appointment with my GP around the same time, though he was busy for the next few weeks, so instead I saw one of his male colleagues who acknowledged the testicle was significantly affecting my life. He put me on the urgent waiting list for a scan.

I attended the scan and just my luck, it was quite cold outside, which made the scan process difficult with a tight scrotum as it doesn't look bad when the scrotum lifts the other testicle up. There is still a big height difference but not as bad as when it's warm and more flexibility. The scan showed a bit of extra scar tissue but nothing that would cause enough to be concerning. I was disappointed because I'd rather much have found what was causing it because then there would be a solution to my problem.

My GP phoned me a few weeks after to talk about the results and said that there was nothing from the scans that concerned him and that it's best that we wait for the urology consultants to take a look as they're specialised in this area and he is limited on his advice.

I left it a few weeks and spoke to my girlfriend about it. She is a medical student and was able to speak to urology consultants at the hospital she was doing a placement at. She was told that the infection may have caused the testicle scar tissue to bond with the scrotum tissue. To break that scar tissue would require more surgery, or the tissue could be broken down by rubbing. The rubbing wasn't very well explained, so I gave it a try, trying to be as rigorous as I could withstand, but it leaves me with a high degree of pain and discomfort for days after.

A few more weeks passed and I phoned my GP to express my concern about the length of time it is taking. I even mentioned one of these forums where I read that a guy was in a very similar position to what I was in and he essentially waited too long to get his testicle 'unstuck' and was therefore told that there was nothing that could now be done. I posed the question to him about rubbing and whether that would work, or even that when I list the shaft of my penis, the operated testicle moves further up, suggesting that there's something connecting the two (the other non-operated testicle doesn't move and floats about the scrotum as normal). I suggested gently holding a finger over the top of the operated testicle and pulling the shaft of my penis up and seeing if that put pressure on whatever was connecting the two together, perhaps helping break down any connecting tissue. He warned me against doing anything that may cause permanent damage. He did say that there may be other non-invasive treatments to breakdown the internal scar tissue, though he would have to go away and research that, and that he didn't know for certain but he knows the right people to ask who would know. That was a few weeks ago and I've still not heard anything back yet.

I should add that the height of the testicle is really giving me a load of problems. I can't sleep on my front any more because the testicle doesn't move and so gets squashed if I lay flat, and then I get that sicky feeling in my stomach. I have woken up by the sicky feeling and it's horrible. I ended up sleeping on the sofa since about a week after the procedure was done because I could raise my leg and wedge my left knee between the seat cushion and the back cushion and that way my hips would be ever so slightly elevated and I could get a good night's sleep. Other aspects of my life that have been affected are an inability to exercise due to the testicle location rubbing off my thigh repeatedly. Sitting down normally is challenging because the testicle overlaps my thigh and pulls on the scrotum skin. Sex with my girlfriend has been incredibly challenging because of the location of the testicle and repeated knocking of the testicle kills an erection. Even masturbation is difficult now. I went for a walk along the beach a month or so ago, nothing strenuous, but I was in physical pain and discomfort for 3 days after it.

This issue has caused my girlfriend and I to argue a lot. She is aware of my mental health really taking a kicking. I've admitted to her that I don't feel like I'm living any more, more existing. I don't feel like I am myself because I'm unable to do many of the things I would normally do. I also feel full of self-hate because I went to see the GP and instigated this whole procedure. I won't go into detail here, but I've just spent the entire weekend in bed with the curtains shut and lights off, with some very alarming and dangerous thoughts going round and round in my head. I feel like I had a really good life before and I have ruined that and I'm not too big to admit that I am scared of being told that there's nothing that can be done and that invasive surgery would be too risky, so essentially I should learn to live with it.

Just wondering if anyone else is or has been in a similar position and if you have any advice?

0 likes, 4 replies

4 Replies

  • Posted

    Hi Bob, May i first say that I have had very simular problems to yourself.

    I had my hydrocele which was the size of a grape fruit for 3 years. I am now 5weeks post opp and still haveing some pain and discomfort.

    After my first opp i was sent home but six days later i took a turn for the worst with an infection which was Sepsis. My wife had to get an ambulance because it had travelled up to my head.

    Also Blood was coming through my stitches in my schrotam. They had to reopen the wound and clean it out. I spent 5 days back in hospital,

    It is still uncomfortable but better than it was.

    My advice to you is to keep on badgering your surgeon and telling him or her that you are still very uncomfortable from the opp and would you have another look at your opp.You say you are 1month after surgery which i think is still a bit early. These things can take months to heal up.

    Good luck and keep your chin up

    • Posted

      Hey John,

      Thanks for your response.

      My hydrolectomy got infected but I was prescribed various medications, so I completed that and thankfully that was the end of it.

      However, that was cleared up by November last year but I could quickly tell something was wrong in that the testicle didn't move the way it should. As described by others on here, I was given zero warning about it potentially being temporarily sewn to the scrotum, so naturally I began freaking out that my testicle wasn't moving.

      It is still a little tender, especially the underside of the scar, but my real issue is the permanent (?) height that the testicle sits at. The sensitivity wouldn't be an issue if it could move but the fact it moves so little is what is causing me the real issues.

      It has now been over 8 months since the surgery (7.5 months post infection) and the testicle still doesn't move freely. During lockdown, it wasn't a big deal because I wasn't going anywhere, but it still prevented me from exercising, sleeping or sex. But now that things are opening up again and I'm back in the office, I'm finding more issues (having to man-spread when I sit down etc) and part of my job involves being flexible and mobile, and I don't feel like I can because of how frequently and easy it is for the testicle to get knocked and impede normal movement.

      I'm on a waiting list to see a urologist consultant but the waiting time is 80 weeks. It feels like I've been abandoned by my GP and every other medical professional. I'm at a loss for what to do other than maintaining living this alien lifestyle where I don't do much, until I see the consultant. My GP says there's nothing he can do for me other than prescribe painkillers. The alternative is that I pay to go private. I'm still waiting for the initial surgeon to contact me back, hoping he will see me sooner.

      As I tried explaining to my girlfriend, it feels like I'm living in someone else's body and my own life has been put on hold. It is utterly depressing

    • Posted

      Hii Bob,Sorry your still in some discomfort down there.I am about 6 weeks now post opp.

      Things dont feel as they should do down there

      but I am not in as much pain as I was.

      You say that you are still uncomfortable could it be that the stitches have not desolved yet inside the schrotum . I am still on the painkillers I was perscribed and they seem to be taking the edge off the pain I still have.

      I hope things start to get a bit better for you very soon. Having to wait 80 weeks is a long time. Have you not got a follow up appointment with the surgeon who did the opp . They are supposed to see you in 3 months after your opp.

      Hope you get sorted very soon..........John

    • Posted

      Hey John,

      For me, the pain only occurs because the testicle doesn't move freely. If it was possible to move naturally then I think it could move out of the way and so wouldn't get constantly knocked or suffer repeated impact.

      It had got infected after the surgery, so I have a gut feeling that the infection has caused the scar tissue on the testicle to adhere to the scar tissue on the scrotum, because the scar on my scrotum seems to pull the testicle around when I move it about. I got a scan carried out and unfortunately nothing substantial was found, a little extra scar tissue but not enough to be a concern. But yes, I think there's a chance that either the scar tissue has adhered together or the stitches haven't been able to dissolve, perhaps because of the infection? To be completely honest, I've gotten very little help, advice or information from any medical professional I've spoken to. Nobody seems to know what has happened or what a solution would be.

      My GP had initially said that there may be non-invasive means of breaking down scar tissue, such as a water bath treatment, but I left it with him for a month and called him back and he unfortunately confirmed that the most likely answer will be another invasive surgery, though that requires another urology consult, which has an 80-week waiting list. I can go private far sooner and be added to the surgery waiting list, which is apparently far quicker than the 80-week wait for a consultation, but he expects it to cost a couple of hundred. At this point, I'm seriously considering just going for it to speed this up and get a sense of normal mobility again.

      My surgeon is based in another health board, and because of coronavirus he had suggested I see my local urology department at my local hospital instead, but that's the 80-week wait. I have contacted the private hospital that he works at and left multiple messages for him to contact me about this, hoping that he will take the decision to see me himself as he knows what work was carried out and can if there were any complications, but so far I've not heard anything from him. It's quite frustrating how difficult it is to get in contact with him, but I'll be phoning again on Monday to try again.

      I'm very anxious that if something isn't done soon then it may permanently heal in this way and be stuck and I'm dreading to be told that there's nothing that can be done because too long a time had passed. I've read other forums where this seems to have been told to other guys in my situation.

      Hope you continue to recover speedily and everything works out well. I think my situation is more common than is thought in the medical world, though still rare. Keep in touch and if you have any questions then feel free to ask. These sort of forums have really helped talk to others who understand the issue and can properly relate to what is being said

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