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My 10 year old daughtet is still suffering from this awful disease.
Her swelling on the ankles and knees has gone down although ankle swelling does come and go! The rash is still appearing on a daily basis mainly on face, thighs or arms now and she is so pale looking all the time
I think one of the worse things is the pain she is in. She is constantly in pain in the hip joint,legs ,wrists fingers and complains of a headache quite often.
We went for a check up on the 5th week from being discharged from an over night stay in the hospital and to be honest i came away quite deflated and upset when the consultant said ah its fine call me at the end of may if she hasnt improved but in the mean time carry on with pain relief which might i add seem to do absolutely nothing
My poor girl can't walk up the stairs she has to drag herself up by sitting on her bottom and pulling herself onto the next step and on a bad day myself or my husband has to carry her up the stairs which as you can imagine is some weight to keep on carrying.
our gp said he feels she hasnt made any progress over the last 3 weeks so we should consider maybe steroids to help and advised me to call the consultant which i did do. apparently he is sending her to see the rheumatologist specialist for symptoms of juvenile arthritis .
She clearly has this going on as she is hunched up in pain when walking. My question is has anyone had the arthritis if so how long did it last? We were told there is a very slim chance that this juvenile arthritis could stay with her throughout childhood. Has anyone else had long term arthritis since this.
Thankyou for taking the time to read this long winded post . We are going out of our minds watching and not knowing if this will get better.
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