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7 year recovery.....still on-going

Posted , 4 users are following.

7yearitch
7yearitch

i went in for my first op about 7 years ago......i went through about 4-5 operations in between......a few months ago i had to get a skin graph on my wound.......this helped and it finally healed.....brilliant, until about 3 weeks ago, my wound opened AGAIN......imm thinking theres no hope anymore and im just going to leave it, and live with it.

1 like, 9 replies

9 Replies

  • Guest
    Guest

    Posted

    I really feel for you...it's one of those things that doesnt go away quickly or easily.(or,might I add, painlessly)

    I always feel like just giving up with it,too, as it never seems to work, 80% of the treatment socially and medically has been poor, to say the least, and I get so down,too...but this only lasts until I get the sinus again.

    I really hope things start looking up for you,soon, reply with your progress,maybe?

    look forward to hearing back from you, all the best.

  • sparkleyjewel
    sparkleyjewel

    Posted

    I originally had my surgery for a pilonidial synus when I was 19, due to anti biotic's not working from being on the pill. I had a massive wound and was seen at home by nurses daily, as it isn't an area I could dress myself.

    Then in 2009 I had one more infection that only took one course of anti biotic's to go away and it helped as the doctor had had it too.

    Now I am with a new doctor and I ended up having surgery because the first doctor who was a trainee didn't give me medicine. I went back the next day and the doctor was amazed I didn't receive treatment and I admit I probably left it a bit late but fellow sufferers know how the condition ( pilonidal synus ) can flare up very quickly. So I ended up with more drugs, then I got so bad I rushed myself to A& E and needed surgery the following day. Since then I have been on at least 5 courses of medication. And I truly believe that if the district nurses had dressed my wound at least once a day I would not have had the bad results I have. One nurse didn't even know if I should stand up while being dressed, how stupid can you be. I had a male nurse and wasn't warned so I could have been in danger living alone. And they said they prefer for my kind of wound to have me mobile as soon as possible, but considering it's in an area where there are tones of bacteria all the time why would you want to cause it to get sweaty and rub together? The fact that they only dressed it every other day , and sometimes the dressing wouldn't stay on properly for a day. And I couldn't dress it myself is the reason I think it keeps coming back. If they leave a dressing inside the wound that is covered in bacteria then no wonder it stays infected. I have seen 2 surgeons since my operation who both said it's fine but it obviously isn't. The first surgeon hardly looked and the second was really kind and helpful and said the problem is there isn't enough known about the condition and why it's hard to treat. I am getting so frustrated and it always seem to come back near summer when I want to go on holiday. I think if I had gone to an out of hours doctor near Christmas when I noticed it was weeping and slightly bloody, but it was too far for me to go alone.And I was meant to have a referral to see a surgeon but the appointment I had with the previous doctor was a month ago and the wound was tiny then , how do they expect to make a diagnosis if they leave it soo long. And my doctor is so frustrating that you can only make an appointment at 8 am , so you are waiting while everyone else phones at the same time, I don't understand why they do this. I really hope they don't want me to have more surgery, I want to refuse it but I don't want it getting worse. The doctor I saw last at the hospital said the success rate was low with this kind of surgery, so why risk it? I don't get why they can't make a smaller insicion and just drain out the fluid that keeps it infected?

    • Charliewales
      Charliewales sparkleyjewel

      Posted

      Hi I am exactly the same. I've had 8 operations and I'm due to go in very soon for another and a skin graft , I'm 29 and had enough of all the hassle and pain I've suffered since I was 13 sad 

      I hope you have recovered from it or are dealing with it x

    • 7yearitch
      7yearitch Charliewales

      Posted

      Wow thats a long time well it went away I made a full recovery thankfully ... I found what helped me was getting fit and eating right especially the diet part I ate plenty of protein and had a balanced diet ...when I could exercise I did and it eventually helped ....  some people just give up cause its not a simple solution sorry to hear you had it for so long and I wish you a speedy recovery.

      My advise is eat right ..eat to recover.

      I hope this helps anymore advise just ask for it.

    • Charliewales
      Charliewales 7yearitch

      Posted

      Hi thanks for your speedy reply, 

      I will take your advice on board . I do need to lose weight , I have also stopped smoking 4 months ago aswell which they said will help but who knows. I don't just get them on the rear I have a condition and get then other places. I have done a thread all what's happened. Thanks for your honestly and well wishes. And pleased yours hasn't come back. X

    • 7yearitch
      7yearitch Charliewales

      Posted

      Ah im sorry to hear that .. it was a nightmare for me so I sympathise with you ... I do believe the smoking can slow down recovery ie. Slow down blood cells so giving up smoking is definitly a wiser choice and will give you a chance at recovery ... all the best and I hope you recover eventually.
  • 7yearitch
    7yearitch

    Posted

    hi sparkleyjewel,..and guest sorry for the long awaited reply i forgot i had this account,..........ya sparkley i know exactly how you feel as i went through te same ting the first doctor screwed up and ive been paying for his mitake for a long time, it sucks.

    as to my progress well,......its all good ,....ive gotten into fitness and developed a pma (positive mental attitude) which does help,......im keeping it clean and most importantly DRY,.......i cant stress how much this simpl solution works wonders,............DRY DRY DRY DRY DRY by any means neccessary, i used to leave tissue or toilet roll there after a showe to dry my wound,...........well its worked so far.

    sparkley i really hope you have success with your ailment, keep yer chin up, and there will be light at the end of the tunnel.

    trust me smile

    yours sincerly 10year itch ........as ive had it longer than 7 yrs smile.

  • 7yearitch
    7yearitch

    Posted

    oh and p.s i can spell,........i just cant type smile
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