7 years with Achalasia And The Pain

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    I just had the worse pain ever since having this awful disease. I could'nt do nothing sat in car for 30 till it eased a bit paid some bills in post office and it started again each time sipping ice water which i have learnt to carry with me Always and its eased but just got home and bang it come back with a vengeance . So painful i could feel the blood pumping around in my ears. To be honest it frightened me if it did'nt go within 10 minutes i would had to phone for an ambulance. So glad i took water with me because it would of gotten worse.

​    The feeling i can only describe is like if someone had a red hot pliers and forced it into my chest pulling and twisting I even started to feel sick with the pain.

​  I took a mouth full of Gavison and sipping ice water and the pain is now manageable but still there. I pray it does'nt come back. I would rather a couple of toothaches than these Spasms any day of the week.

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12 Replies

  • Posted

    Hi Dodman,

    In my experience, copious amounts of (preferably cool) milk is the sure way to alleviate pains from spasms / heartburn every time.  By contrast, Gavison had not effect whatsoever.  Hope you find a 'solution' that works consistently for you soon....

    Regards,

    Mick

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    • Posted

      I understand what you are going through. I have a "magic bullet." Instead of water drink very cold whole milk. You will be amazed. Just drink until the pains  stop. I always have cold milk with me wherever I go. I carry an insulated bag and I keep a small container of milk which I wrap in an insulated sleeve. You will never suffer again. Please let me know how it works.
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    • Posted

      I will do that anything is worth trying I always carry a flask of water with ice cubes in a rucksack. I remember being caught out a few times without anything to drink and i thought i was going to faint plus it was a very hot day. I just sat in car for about 45 minutes sweating and in a strange like daze.

      ​  Thanks for the in put. I will ley you know.

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  • Posted

    I feel for you, it is awful. Think we all find our ways of coping with the pain/spasms......I find eating a banana often helps as does drinking of course!I 

    thought it was possibly a heart attack at first but at least we know what it is and we have got through the attacks before and survived!!

    All the best to you.

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    • Posted

      When it got really bad i did start thinking it might be haert attack because i could feel my heart pounding and a rushing sound in my ears. So glad it has passed still get little twinges but its managable.

      ​    Nice to tell someone that knows the pain.

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  • Posted

    I completely understand how you feel. I suffer from severe pain every day since my surgery in 2013 and it's stopped me from working or doing any other activities or hobbies such as dancing or fitness. I pray this pain would just go away and didn't come back. Specialists did not tell me that I could have this severe pain after surgery it's so frustrating!
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    • Posted

      Well i do hope your on good pain meds and i feel for you because i love playing Guitar and obviously when ones in pain all you want to do is curl up on sofa and ride it out. Acids in esophagus can burn like hell i hope you have ant-acids at hand. What operation was it ? Hellers myotomy I was going to have but Doctor said there was to much scarring. So I must put up with this horrible disease for good. Hope you feel better soon.
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    • Posted

      I had the Hellar Myotomy and Fundoplication. So your dr recommended that you don't get the surgery? Maybe you could get a second opinion if you're unhappy with the decision? I'm on acid reflux medication 40mg twice a day but it doesn't help with pain. Although when I don't take them the pain seems to be worse!
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    • Posted

      There is only one surgon in my area A Docter Nutt unless i travel hundreds of miles. I will find out but he wouldnt lie about my esophugus is to badly scarred would he ?
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    • Posted

      So how will you cope with symptoms if you don't have any type of surgery? Was another surgery recommended like a balloon dilitation? I recently saw a new surgeon because I was having major problems with my gastroentologist who recommended me the Hellar Myotomy. Since the surgery as I mentioned before, I have been having severe chest pains and recently difficultly swallowing again and not being able to gain weight since the op and I re visited my gastroentologist who was not helpful at all and disgustringly rude! He was trying to say it's al phsycological and has nothing to do with the surgery and didn't suggest we do any tests. He even said there's nothing more he can do for me. So I went to a helpful GP who suggested straight away that I should get a second opinion and I saw the new surgeon who immediately said I need a barium swallow and ultra sound to see what's going on. He said it could be tissue scarring or a few other problems so I'm waiting to have tests and see what the go is.

      I can't help but feel deperessed and worried about my condition as symptoms are starting to return sad

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    • Posted

      There is sometimes a difference of opinion between gastroenterologists and surgeons.   Sometimes this is a positive thing because they look at thongs from a different perspective, but you were right to get the second opinion and the tests should indicate how things might be approached.

      It might depend on whether your chest pains are connected with acid reflux or not, or caused by spasm.   Do they happen at night?   You could try Gaviscon (over the counter) to see whether this makes a difference.   If so, it would tend to indicate reflux.

      An endoscopy would indicate whether there is scarring or not.   There are also tests like manometry to test pressure in your oesophagus and 24 hour pH monitoring for acid.  

      Overall, it is the best approach to get the diagnostic tests all done so that any further procedures are directed against the root of the trouble; and it is possible that an increase of reflux after the surgery may be the natural consequence of that surgery, and that anti-relfux medication may alleviate your pain.   But you need the tests to find out either way.

       

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