72 hour 50mcg Fentanyl Pain Patches

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Self diagnosed myself with TN in 1998 after 7 neurologists failed to find. Found by typing in a few search words & TN kept coming up. How can 7 neurologists miss this? Things got worse and in Jan 2002 had MVD surgery by Dr Tew in Cincinnati,OH.  My pain is all in the V3 - Mandibular Branch of Nerve that has the Lingual Nerve attached to it.  MVD lasted until 2010 & had Gamma Knife in Kettering, OH. That lasted til I had another Gamma Knife in Jan 2014 by Dr Melvin Field in Orlando,Fl. Typical meds thru all years were Tegretol of various doses & Gabapentin of various dosed. Baclofen & Lyrica were worthless as of course Morphine. So monster of monsters hits Mar 2017 & I am rushed to hospitals 7 days in a row. A Doc at Bethesda Hosp in Cinti shrugs & says ," Try this pain patch." Within 24 hrs I was almost into total remission. I had a PSR Surgery anyhow in Apr 2017 which was totally unsuccessful. Something stopped the needle from reaching the nerve. After a total of 9 days worth of patches I was in total remission. Damn if in Feb 2018 varmint hits bad again & after begging Docs for Fentanyl Pain Patches I get some in Orlando, Fl. The pain keeps winning though, but it can't seem to "knock me to the ground in agony". I am currently on 400 mg x 3 daily of Tegretol. Ignoring any Gabapentin prescribed. I have been on patches 21 straight days & have 15 more days worth left. Today I pretty much went into remission. These patches have worked wonderfully, yet good luck getting them prescribed to you. They have no side effects on me whereas Gabapentin causes memory problems, shaky hands & double vision. I needed to start patches as soon as pain hit last month, but waited a week til it broke thru hard. That is probably why they have taken so long to be effective, yet even before then they kept the pain to a livable state. Dr Field in Orlando, Fl has offered to do a 3rd Gamma Knife (most Docs refuse a 3rd). I have debated cancelling as patches & tegretol are sending into remission. But I'm going thru with it & may have to beg more Docs in the future to provide me with 72 hr 50mcg Fentanyl Pain Patches. And it all started because a Doc at Bethesda Hospital ER tried it on a hunch. Anybody with V3 Mandibular Branch Pain should try this. Please forward to as many TN sufferers as possible.

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  • Posted

    - Hey Luisa

    I had been suffering from TN too for a couple of years now and used to take tegetrol, which stopped working after a while. In faqct i decided to go for gamma knife, but a friend of mine told me that her sister's trigeminal pain came back despite the Gamma knife last year! So, i tried for more natural forms of treatment and about 3 months ago I started on Homeopathy and Ayurveda. This was after reading tons of research supporting them. Im posting one such study result for you to read too.

    All 15 patients completed treatment. The results for both the reduction of pain intensity and attack frequency were statistically significant (P<0.001) during the four-month evaluation. We observed overall reductions of more than 60% in pain intensity using homeopathic treatment.

    http://www.sciencedirect.com/science/article/pii/S1475491607000161

    I've since found that combinatons of Aconite 30; Hypericum 200; Hekla Lava 30; Spigelia 30 help in this condition. Even herbs like Drakshadikasayam Bacopa monnieri - Brahmi Pluchealanceolata are great for pain.

    I've been using it and it seems to have worked in the most amazing way. So far there is absolutely no relapse in the pain and I’m delighted to have my life back!  

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  • Posted

    Michael, I feel so sorry that you're going through this. You don't describe the pain you're having. May be more of us can help if they knew the type of pain you have and where you feel it. I have had T.N. for many years and take 1000mg of tegretal a day ( precribed - not self-medicated) so try asking your doc if your dosage can be increased. It's the most effective drug for this.

     Good luck, Gill

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  • Posted

    In my experience you have to stay away from sugar & acid foods like tomato;s. I had acupuncture. It took the pain away but only for a brief time.

    Someone on this site suggested taking B 12 & also a B complex ( use B 100 from Puritans Pride. They have buy 2 get 3 free) .  

    Then I take 1/2 tablet Carbamazapine at night. If I do get pain during the day I take 800 mg Turmeric. (It's a spice, soft gel cap through Puritans pride also. No side effects! Good luck & God's blessings to you!

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  • Posted

    Hi Michael-

    I’m so sorry for all you’ve been through. I’m currently considering MVD surgery but keep reading how it is only effective for so long. Since I am 44 I want to keep it at bay for as long as possible. When I finally went into the ER originally for my TN pain they gave me dilaudid and fentanyl. Neither worked. I was told that was because it was nerve pain which explained why all the ibuprofen Tylenol and Vicodin I had been taking the month before hadn’t done anything either. My TN is from MS which may make it a different animal but I’m surprised that fentanyl patches work. Did the doctor explain it to you at all? Right now I am tegretol, gabapentin, backofen and methadone. The methadone is different than traditional opiates and actually works on neuropathic pain which was a surprise to me because I’ve only heard of it as a treatment for heroin addicts.

    But I’m so sorry you’ve gone through all this and I’m glad you found something that worked but do you know why it works? I know it’s the strongest opiate that exists. Right now is a very hard time for chronic pain medications that rely on opiate medications. Have you tried methadone? I think because of its properties doctors are more willing to try it.

    I have just had my third trigeminal nerve block and each time it aggravates the pain something awful but I will know in about two weeks if it works. Im praying. I would love to get off the methadone and other drugs because I have a 7 year old daughter and I don’t feel comfortable driving with her at all.

    Fentanyl patches would not be an option for me. I would worry 1000x more about driving.

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