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Self diagnosed myself with TN in 1998 after 7 neurologists failed to find. Found by typing in a few search words & TN kept coming up. How can 7 neurologists miss this? Things got worse and in Jan 2002 had MVD surgery by Dr Tew in Cincinnati,OH. My pain is all in the V3 - Mandibular Branch of Nerve that has the Lingual Nerve attached to it. MVD lasted until 2010 & had Gamma Knife in Kettering, OH. That lasted til I had another Gamma Knife in Jan 2014 by Dr Melvin Field in Orlando,Fl. Typical meds thru all years were Tegretol of various doses & Gabapentin of various dosed. Baclofen & Lyrica were worthless as of course Morphine. So monster of monsters hits Mar 2017 & I am rushed to hospitals 7 days in a row. A Doc at Bethesda Hosp in Cinti shrugs & says ," Try this pain patch." Within 24 hrs I was almost into total remission. I had a PSR Surgery anyhow in Apr 2017 which was totally unsuccessful. Something stopped the needle from reaching the nerve. After a total of 9 days worth of patches I was in total remission. Damn if in Feb 2018 varmint hits bad again & after begging Docs for Fentanyl Pain Patches I get some in Orlando, Fl. The pain keeps winning though, but it can't seem to "knock me to the ground in agony". I am currently on 400 mg x 3 daily of Tegretol. Ignoring any Gabapentin prescribed. I have been on patches 21 straight days & have 15 more days worth left. Today I pretty much went into remission. These patches have worked wonderfully, yet good luck getting them prescribed to you. They have no side effects on me whereas Gabapentin causes memory problems, shaky hands & double vision. I needed to start patches as soon as pain hit last month, but waited a week til it broke thru hard. That is probably why they have taken so long to be effective, yet even before then they kept the pain to a livable state. Dr Field in Orlando, Fl has offered to do a 3rd Gamma Knife (most Docs refuse a 3rd). I have debated cancelling as patches & tegretol are sending into remission. But I'm going thru with it & may have to beg more Docs in the future to provide me with 72 hr 50mcg Fentanyl Pain Patches. And it all started because a Doc at Bethesda Hospital ER tried it on a hunch. Anybody with V3 Mandibular Branch Pain should try this. Please forward to as many TN sufferers as possible.
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