8 months, no treatment has helped, when can I start to walk?

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Hello, I've been through orthotics, physiotherapy with ASTYM, stretching, expensive athletic shoes, special arch support sleeves, etc., and I'm still where I was when onset occurred. I have achilles tightness and soreness too. Pain in mostly in the arch, rarely the heel, and worsens throughout the day. It's fine when I first get up but as I move about the pain gets worse. In about a year, I'd like to travel to Israel, but I can't see it happening. Both a podiatrist and orthopaedist told me that I'd have to "train" for the trip so that I can stand and walk for 6 hours a day up and down hills with cobblestones, etc. I can't even walk for 5-10 minutes, or stand for more than a minute. Given then PF is degenerative, if I were to start a walking routine (which I know would cause more pain), am I hurting myself rather than helping? I am almost completely sedentary, because that's the only thing that reduces the pain. I get in about 500-1700 steps per day. During travel, I could expect 10,000 steps per day, 10 days in a row. I have no idea what to do. Any ideas? Thanks so much! cheesygrin

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  • Posted

    Ok my credentials first. I have 5 years of pain in both heels. 3 surgeries, no relief from treatments what so ever. Could barely walk for months at a time!! Recently my young  son joined a soccer (football in UK) team. I forced myself to help in with the kids practicing.. retrieving errantly kicked balls etc. It was painful! The next day...experienced a pain "reduction"!!! I continue to help and am doing massage and ice still.. but my pain is down to "discomfort" most of the time. I can even run short distances! I cannot be sedentary! I think it allows the condition to tighten and tighten. Try doing something crazy like that. come home and stand on ice packs a bit. See what happens. You might be suprised!!!
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  • Posted

    There is another forum about PF,  with some interesting views.  I myself have recently purchased a FS6 compression sock (£12.99 of the net) and have found this helpfull.
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    • Posted

      Thanks so much for your reply. I have two compression socks almost identical to those. They really help relieve heel pain in my left foot, when I have it. I started wearing them all the time, but didn't notice any sort of serious improvement. After a month, I started to have significant pain in both great toes, which I think the socks had something to do with, so I stopped wearing them. The toe pain was starting to cause a limp.

      Regarding activity, I went for a 15 min walk in the woods on a soft, lumpy grass path in December, and ended up bedridden for 5 days (and missed work). I felt relatively OK during and afterwards, but by that evening my feet and legs were terribly painful. I had to shuffle to the bathroom the whole time. So, I'm very wary of setting it off again like that. 

      Another odd symptom is that after walking or standing, my feet and legs  (up to my knees) twitch constantly in direct proportion to the pain. Specialist did a nerve study to rule out neuropathy or ALS.

      This came on after some mild travel last summer. I've had PF about 4-5 times in the past 15 years (age 48) but it's never been this bad or lasted as long.

      I guess the thing I don't understand is that PF is degenerative - so with every step I'm causing more tearing and more damage...which my body seems to confirm with increased pain, twitching, etc. Has anyone ever had a doctor tell them to run or walk despite the pain? (Mine didn't.)

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    • Posted

      Joe. I do realize that many cases are very different. I am feeling so good but not  "cured". Last year I could barely walk. I wish I could help everyone get here... sad
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    • Posted

      Martin,

      It's encouraging that you found relief. The body can behave in some pretty surprising ways.

      I've started to wonder if this bout of PF is permanent. Over the last 5 years, I've had a few health issues suddenly become permanent. The first thing was chronic pelvic pain, then neck pain, and then TMJS. Each appeared suddenly, or after being occasional annoyances. They may wax or wane in severity, but they are always there.

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    • Posted

      Thanks Joe.. please, eat a great diet of veggies, fruit and lean meat.. and become an excersice freek! I went through several chronic pain issues.. smim a million laps in a pool!! and eat good..mulitivitamins. you will improve!!!!
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    • Posted

      Thanks for the tips. My doc has put me on a gluten free, high protein, fruit, veg diet for the last few months, with tons of vitamins and supplements, so I've got that part down. I'm starting to get back into gentle yoga because I have arthritis almost everywhere, shoulders, knees, etc. and its very easy to overdo it with exercise and cause a flare up.
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  • Posted

    Try clicking on my name, see if it takes you there, as I have commented in them.
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    • Posted

      Kate,

      Sorry, I'm a bit thick. I clicked on a few but didn't see a different forum name. Is there a certain approach that seems effective?

      Thanks!

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  • Posted

    Sorry for delay.  Click on my name,  then on rightb hand side of screen, it should show what I have commented on.  Look for someone called soreheel.
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  • Posted

    Hi, sounds to me like you have been misdiagnosed... have you had a blood test? I was diagnosed with PF originally, but eventually got correctly diagnosed once i explained pain in arch and achiles and asked for a blood test.  PF pain is really in middle of heel (only). Once it goes from there, then something else happening.  Go back to GP and insists on appointment with Rheumatologist and blood test to rule out other things. GOod luck
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    • Posted

      Sparkle, Yes, I've had some blood tests to look for rheum. problems and came back normal, but a variety of other things were off (Vit D, etc.). Prescriptions and supplements so far haven't had any effect. I do see a rheumy every 6 months for widespread osteoarthritis, and my family is plagued with diagnosed autoimmune diseases, except it doesn't show up in my blood tests. I do have a weakly positive rheumatoid factor but not enough to diagnose or treat as rheumatoid arthritis.

      Like you, pain is in arch and Achilles tendon, rarely ever in the heel, and gets worse throughout the day. May I ask what your diagnosis was?

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