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Reaching out in a last ditch effort to anyone who is/has gone through this, as no doctor has been able to figure it out.
I’ve had ongoing “dizziness” for 8 months. It’s constant. Not such that I’m falling over or unable to function, but enough to know that something is wrong as I live day to day, like a “swimmy” sensation or being a bobble-head. It’s worse when i move my head, position, or eyes, or come to a stop when driving. Sometimes my surroundings seem like they’re “crawling” and certain visuals bother me; rocking motions, action movie scenes, scrolling through my phone. The only time i get relief is if I’m laying down completely still or sleeping. Some days are better than others. Its miserable. It started 3 months after a miscarriage & worsened during my second pregnancy, which i unfortunately lost as well. It did ease up for a couple weeks after the second loss, but has come back.
Tried allergy meds, meclizine, the vertigo maneuvers, tons of bloodwork (checking iron, b12, sugar, etc.) had an MRI & CAT scan (normal), seen two ENTs that ruled out anything to do with inner ear or vertigo & had a hearing test, seen a neuro multiple times that ruled out anything and tried migraine meds (topomax for a month), gone to PT for vestibular rehab for 2 months, had my eyes examined, began anxiety meds due to this causing my panic attacks to return, had an EKG and wore a heart monitor for a day, had my hormones & thyroid tested, had autoimmune bloodwork testing after the second miscarriage (negative).
And finally...saw a balance and dizziness specialist who did eye movement tests, warm and cool liquids in my ear and a test where they moved the wall and floor. His final conclusion was that my “symptoms are too vague and not severe enough to find a cause nor will any other specialist be able to, being that there is nothing showing up on the tests ...hopefully it will just go away w/ anxiety meds (which I’m already on) or after i deliver (which I’ve since lost, and this started well before the pregnancy) 😑😒
I really don’t want to live life feeling like this. It’s not stress or anxiety, I’m otherwise fine and coping with the losses & staying hopeful, it’s CAUSING my anxiety and completely interrupting my life.
Any advice is appreciated ??
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