8 year old daughter diagnosed
Posted , 4 users are following.
Hi I'm looking for suggestions and support hopefully. My 8 year old daughter was just diagnosed with GA which of course has us upset. We just are looking for suggestions and advice from all of you that have been battling for years. We don't want this to spread out of control and negatively affect her childhood. Any help or suggestions of next steps to help control this.
Thank you.
0 likes, 9 replies
j0603 kim62152
Posted
I am 53 years old and I have had generalized grannuloma annulare for 3 years. The type I have will most likely be with me for years. Your daughter most likely has the localized version which is common in kids. The good news is that type almost always goes away completely on its own in a few months but less than 2 years.
I tried everything under the sun to get rid of my GA. Nothing works! So, I was desperate and talking to my pharmacist who takes plaquenil for lupus. She assured me it would clear up the GA. Doctor said no so I went to another doctor who said no. Then I went to a rheumatologist who prescribes plaquenil all the time for lupus and RA and SHE spoke to the doctor (who didn't know how to prescribe it) and I got some! My GA is under control, not gone completely but not spreading like wildfire anymore.
Do some research about plaquenil as I don't know if it's okay for kids. You need to weigh out the psychological effects the GA is having on your child and the effects a short term course of plaquenil would have and talk to an expert on that medication.
Again the good news for you guys is that she most likely has a very temporary version of GA. Good luck and tell your daughter to hang in there.
katie10840 kim62152
Posted
Good luck!
patty98033 kim62152
Posted
Anyway after about 3 years, I ended up getting an intolerance test. there were about 5 foods on the list that I ate all the time so I eliminated all that were on the list. None of these were on the "elimination" diets that I had already tried but they are also a good place to start - especially eliminating wheat & dairy for 30 days to see if there is any difference. When I elimated the foods on my list, within about 2 weeks, I no longer had any new ones popping out. This was a slow process but in another month, I could see that they were fading. It took a little over a year for them to be completely gone except for some very faded coloring that you really have to look to see. I am a believer that food or other intolerances are the most likely cause. If you have insurance for allergy testing, that would be a step I would take. I didn't so found a company in the UK that was very reasonable.
If you want more intormation, let me know.
Patty
kim62152 patty98033
Posted
patty98033 kim62152
Posted
The cost to me on the hair test was $105 US so very reasonable. My daughter had a blood test for allergies done a number of years ago that insurance would not cover. It cost her $300 at the time and when I checked about a year ago, thinking I would do the same, it was $600. That's why I kept hunting for a different testing facility that I could deal with via mail & email.
Patty
sabrina03852 kim62152
Posted
kim62152 sabrina03852
Posted
j0603 kim62152
Posted
If it were my daughter Knowing what I know I would consider doing both. An allergist may help IF the GA happens to be being triggered by an allergy which may or may not be the case. In any event it will take time up to 3 months to figure that out. Note it also takes 3 months to notice results with plaquenil.
Do your research on plaquenil and speak to a doctor (maybe not a DERM) tell him what you have learned and hopefully he/she will be sympathetic enough to guide you.
Remember also spontaneous resolution can occur at any time.
sabrina03852 kim62152
Posted