9 year old daughter diagnosed with vaginal LS I'm in despair
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After a recent exam due to an accident she was diagnosed with LS, I had never heard of it. Having read up on it since her outcome seems bleak medically. We are waoiting for a specialist dermatology referral & have been given Eumovate cream to use in the meantime. I would be grateful of any advice to halt the damage in its tracks before it gets any worse, from people who have experience. The Dr told me it was very rae in young children
0 likes, 29 replies
j02359 sue5740
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AnneMarie4321 j02359
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sue5740 j02359
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I can't help but worry for her, most people seem to end up with severe tissue damage and childbirth/sexual problems. I feel like she is doomed before she has experienced life at all and it seems so unfair
Our GP says to take it one step at a time but its easy to say and hard to do! I also feel very guilty that i have dismissed it for a while as a sore patch or poor hygiene and treated her with sudocream, if only I had realised sooner there would have been less damage inflicted already
Its also not nice for her to be genitally examined at such a young age she was so embarrassed, very proud of her though she was so very brave
Neldog sue5740
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xxx.
sue5740 Neldog
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sandra01720 sue5740
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sue5740 sandra01720
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AnneMarie4321 sue5740
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sue5740 AnneMarie4321
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She loves her sweets,I shall certainly start cutting back on those if they are a concern. She also loves fruit, is natural sugar to be avoided also?
Regarding wheat is that just bread and pasta? I havent any experience with exclusion diets so will have to research this I think
AnneMarie4321 sue5740
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Have controlled with amending my diet. Conversely, when I cheated and ate a bunch of wheat, my LS came roaring back. Learned my lesson. I don't even want wheat or sugar anymore. If it works for your daughter, just tell her to tell people she has celiac. It's easier!!
Best of luck -- it's all going to be OK. There are worse things to suffer in the world. You will figure this out. Big hug.
AnneMarie4321 sue5740
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Guppy007 sue5740
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I understand how awful it seems as she is very young, but often with LS it goes into remission, often reappearing in menopausal women so that she might be one of the lucky ones, on one knows for sure. The thing to watch out for is that she doesn't scratch the area as this can make things so much worse.
sue5740 Guppy007
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She isn't scratching at all & says its not itchy which the GP found strange
Its good to know there is a chance of remission as her current condition is quite severe
I will certainly consider intolerance testing for the foods mentioned as it seems quite a few food groups may contribute, not quite sure where to start!
rockin_R sue5740
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sue5740 rockin_R
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No symptoms I could really have worried about to be honest, it was picked up during an exam for something unrelated, which I am grateful for
I will be asking for advice about the dietary link when I see the specialist as it is clear from my brief time on here that there is one