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9 year old with osteoporosis

Posted , 3 users are following.

joanna18220
joanna18220

My daughter had a bone density scan 18 months ago after repeated fractures . It showed she had osteopenia . She was born with hypotonia and our doctor believes this is the cause as she needed physio to get her to walk etc . We had a repeated scan yesterday in preparation for our doc appointment this week . I've looked at the report and her t score for her spine is -5.7 . Previously it was -1.87 . I am so worried . I don't even know what the " cans and can't do's " are until we see her doctor .For now I am telling school " no Pe " . Going off this report I'm presuming treatment will be started . We have had heaps of bloods all of which so far are normal but our go is now testing for a specific thyroid . Any info much appreciated .

1 like, 3 replies

3 Replies

  • kathleen65757
    kathleen65757 joanna18220

    Posted

    Oh I am so sorry for your daughter and you for all the worry this must cause.

    I am guessing her diet is very good with you in charge of that. Can you check her vitamin D via her blood tests as well as her calcium levels. 

    I would find a very good nutritionist who specialises in this kind of thing. Adults on here know what to do but a child is a different and unusual prospect to deal with this with diet and exercise.

    -5.7 is very serious as you well know. My heart goes out to you.

    Is she small? 

    Huga for you and your daughter.

  • joanna18220
    joanna18220

    Posted

    Hi Kathleen

    Her diet is not so good but we see a dietician and she has supplements- her vit d, calcium and all bloods are normal. We have just been to see our GP, they have found a fracture in her spine too . We see our endo on friday but the gp said to expect treatment to start straight away. She is quite tall , she does have other issues such as autism and hypotonia - we have gone down the genetics route before but suspect we will end up there again now after this latest result. On a positive note our gp said its treatable , i cant find much info on it though for a child.

  • Juno-Irl-Dub
    Juno-Irl-Dub joanna18220

    Posted

    Joanna, sorry to hear about your daughter's osteoporosis and this must be a big worry for you.  This is really a case for a paediatric endocrinologist. I'm sure he/she has seen it before and, once they've found the cause,  there will be a recognised treatment plan for her. 

    In the meantime, I'm sure your doctor will advise her not to jump around, twist her spine ( eg.by turning around quickly),  bending over (to pick up something) or other play activities that may carry an increased risk of her falling.  However, this will all change when she is treated for her condition. 

    Kind regards, J

     

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