90% Transferrin saturation: How worried should I be?
Posted , 7 users are following.
Hi, hope someone can put my mind at rest; mI am posting this in the Haemochromatosis forum, although I haven't been formally diagnosed.
I've had quite a few blood tests recently, following an abnormally high Transferrin Saturation of 90%;
Also, Serum transferrin 1.75g/l,
Serum iron level of 39.3 umol/L (a bit high).
Mean corpusc. haemoglobin(MCH) 32.7 pg (a bit high)
Everything else, including Liver, renal and Thyroid results are fine.
I spoke to a doctor, who didn't think I needed any immediate action; I have an abdominal scan booked for the end of June, which seems a long wait (and the way things are, could be longer..).. I suggested might it be worthwhile having a phlebotomy (or venesection) as an intermediate, and relatively harmless procedure.. but she said no, wait for a 'formal diagnosis', which will obviously be months away. Meanwhile, I'm worried permanent damage might be occurring!
Any thoughts welcome.
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lewisham_phil
Posted
A quick update: I've been on a monthly blood donation (specially organised as a 'Haemochromatosis Donor' to allow monthly donations for five or six months now... I've just had a blood test, and I am down to a good level of Ferritin 39 (was 900 or so), and Trnsferrin sat Index: 45% (was 90%).
So it's taken about 10 or so venesections over 14 months to get down to that level.