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9weeks in of my second flare up and asking for help

Posted , 6 users are following.

jonzan
jonzan

Hi guys, great forum so I was wondering if I could ask some questions.

I am into 9 weeks now of my second flare up( my sons wedding was 4 weeks ago..that wasnt fun I can tell you!) and was wondering..does it move around ..mine started on my right side and moved all around to under my left breast causing so much pain..under my arm, my sides , my sternum, and then today my back is aching so much at the bottem of my rib cage too...

I have twice been to hospital and been diagnosed with CC after thinking I was I having a heart attack, the last time last week while on holiday. I was given diazepam for  week to relax me and cocodamol which has definately helped with the sleeping, not so much the pain....I cant relax..never have been able to and am constantly tense no matter how I try to chill. Someone said White tiger balm, would help...

can anyone advise on painklillers that arnt addictive and also some none smelly oils ...Ibrufen gel maybe? Olbas oil is a good one for night time but daytime is it a bit to strong smell wise for work?.(if you get my meaning lol)

1 like, 15 replies

15 Replies

  • yvonne99380
    yvonne99380 jonzan

    Posted

    Hi

    the pain certainly does move around

    I had a bad fall a year ago that bruised my ribs badly. Several weeks after that cleared up I had terrible pains in my right side. This was diagnosed as inflammation  of the cartilage between the ribs and I was told it was as a result of the fall, which I found hard to believe after such a time.

    That then moved to my breastbone and under my left breast and lasted ages.

    The second episide was different and started gradually with pain deep inside my left breast and round my left shoulder blade. Sometimes I couldn't even touch a certain spot without yelping but five minutes later it didn't hurt at all but was painful somewhere else. It was in my breastbone too and just about everywhere in mu upper torso at some point. 

    Eventually after describing it as I flamation again the GP agreed that it was Costochondritis. I was told it differs enormously from flare up to flare up. Some people only have one or two - others have it all the time and some are hospitalised with it . There's no way of k owing what type you will have or how long it will last.

    i can't take anti inflammatory medicine as it upsets my stomach even with stomach protective medicine, 

    i take natural anti inflammatories every day now and fine they help. My current episode is improving every day.

    I take Glucosomine and Tumeric. I also rub Arnica Gel on the painful parts and find that helps a lot. It doesn't smell and you can use it as often as you like

    good luck! 

    Yvonne 

     

    • jonzan
      jonzan yvonne99380

      Posted

      thank you so much Yvonne and I will definately try the arnica gel...at least I can stand near people then. Your pain sounds so like mine..I agree iwth thee area hurting one day then not the next ..so very weird and very scary too. I am going to see my doctor about stronger pain killers now as teh one from teh hospital have run out and ibrufen doesnt touch it..

      I ahve heard glucosamine mentioned before..what does it do please? x

      ..

  • Conta10
    Conta10 jonzan

    Posted

    I just agree, it moves and changes shape all the time. It is a kinda never ending story. I have swellings, too. Then it is called Tietze's syndrom, even if I dont care what it is called. Sometimes my left breast hurt,s sometimes my right. Sometimes everything is in flames. I have a feeling that I know more about this condition than most of the doctors do. My GP didnt event know it can get chronic, geeeeez

     

  • yvonne99380
    yvonne99380 jonzan

    Posted

    Not sure what the Glucosimin does except make the pain go,away. It's a natural inflammatory - like Tumeric. You can get them both in health food shops and some chemists. Glucosomin also goes under the name Devils  Claw but I think it's a bit more expensive under that name. Either works for me but I take Tumeric as well in capsule form as I don't like spicy food so don't eat it much.

    if you google them you can see what people say bout them. my old GP told me about Devils Claw as he took it for,Arthritis and he swore by it. 

    Best wishes

    yvonne 

  • jonzan
    jonzan

    Posted

    thanks both of you..I will try the glucosamine and tumeric as I have so many other tablets Id prefer the natural way. I have M.E. too so people are saying this is fybromyalgia, but I am sure it isnt...as the pain is manly in my rib area...what do you girls do about bras??? I get more pain if I wear them...but need to if you get my meaning..black eyes are not a good look...
  • mitouback
    mitouback jonzan

    Posted

    Please insist on MRI scan to rule out EVERYTHING. .

    Insist that uou want this scan.

    Mitouback

  • kippy7
    kippy7 jonzan

    Posted

    Hi there i know the feeling.I have been battling this in what seems like forever and became really concerned with the jumping from one side to the other.My shoulder blades and breast area are the worst and i feel like my Dr just brushes it off.I've tried many things and some have worked mainly Bromelian and i've tried Tumeric but i think i need something more.Will try Devil's claw and Glucosamin.

    Thank you guys for starting this it really helps.

  • yvonne99380
    yvonne99380 jonzan

    Posted

    Just a point.  Glucosamine and Devils Claw are the same thing.  You don't need both. Devils Claw is a generic name for Glucosamine. 

    Hope that helps.

  • jonzan
    jonzan

    Posted

    I am sooooooooo fed up..yesterday I felt so bloated and in pain that I was going to burst...today the pain is back where it began 9 weeks ago!!!! I am sleeping sat up to help the pain too.....arghhhhhhhhhhhhhhhhhhhhhhhhhhh
    • mitouback
      mitouback jonzan

      Posted

      Do you have swollen chest or stomach, ?

      Have you had proper scans. lime MRI of he chest area.

      Just to rule out other pathologies.

      Mitouback

    • jonzan
      jonzan mitouback

      Posted

      no no tests for it like that just full blood count . Can I ask for an MRI..what reason shall I give

       

    • mitouback
      mitouback jonzan

      Posted

      I don't know your age or how long you have had CC..but my aunt in Sweden suddenly developed C C and all ecg and X rays were clear, as was blood tests. .but she felt that things weren't right and had an MRI . They told her she had swollen lymphnodes between breast bone and spine which then was investigated. ..

      Im not saying you have this, but I think you can ask for further investigations. ...it's your body and you know what feels right...If it was me. ,I would....have tests and scans, even if I did all this privately.

      My aunt was told she had non hodkins lymphoma..and this was setting off the CC..

      Hope you get better soon.

    • jonzan
      jonzan mitouback

      Posted

      thank you sweetie...I am 52 today actually and have had it about 6 ,months I think. I will ask xxx
    • jonzan
      jonzan

      Posted

      if all my tests come back clear I am going to ask for an MRI thanks sweetie xx
  • jonzan
    jonzan

    Posted

    so ..update...

    On friday I was in so much pain I couldnt move, breathe, stand up, sit down, swallow, and then to top it all I sneezed!!!! So I rang the doctor...and after a few minutes chtting to him he asked I come down...that was fun getting into mums car and the ride and then literally falling out....

    he tried to do an examination and in the end sent me for a million blood test with the nurse, ecg...flu jab (why not) and another xray at the hospital that afternoon.. I cant complain about my doctors they are really great..he gave me naproxen, dizapam and cocodamol and said if it get that bad EVER straight to hospital.....

    so I ahve booked my be for next week lol.

    He doesnt seem to think it should move as much as the pain has...but I am sure reading yoru posts it dose..its taken 10 weeks to move from the left upper rib cage to the left lower via every rib in my rib cage...

    In a way I hope they find something.......in anotehr way I hoep not..do strange..but so demoralising looking at a life time of this......

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