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My little girl id 10 and was diagnosed 2 yrs ago, she is also chronic asthmatic she is on augmentin antibiotic constantly and has been for 2yrs also inhalers ,singulair and goes in for IVs for 2 weeks every 3 months these help for approx 3 weeks then she starts to slip again she never goes a month without a course of prednisolone,
in the last 3 yrs , my brave little girl has had at least 12 partial collapses and more than 50 chest infections/pneumonia. she often has pains in her joints , mouth ulcers, high temps, vomiting with tummy pains that only last short bursts, and now severe sudden headaches and fatigue have just started.
she also suffers from geographic tongue and gets this around the times of illness.
is there any one out there that has a child with similar symptoms ?
i am exhausted from watching my child suffer and she never complains but we are in hospital at the moment and the constant tiredness and headaches is getting to her i feel her flame has gone out
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